Trigeminal neuralgia nerve block clinics stopped?!
I've had trigeminal neuralgia since 2015 when I was diagnosed. It's become a bit more prominent and a problem in my life since my MS diagnosis.
I was previously on tegretol (carbamazapine) for a period of time, unfortunately that stopped working even when increasing.
I was then given the option of a nerve block every 8-10 weeks, longer as long as it wasn't needed. I've been having them now for the past year and a half, maybe longer and they have worked for me. Saved me if anything.
I found out this week that my neurologist was told he was no longer able to run this clinic. So now I am dealing with unmanaged trigeminal pain and I have a 4 month old son. I'm also just about over a relapse too (which I've not heard from) - pals don't seem to be helping.
This is more of a vent if anything because I'm in constant pain every day, I cry most of the time now because of it. It's destroying me. I do not know what to do as I've been provided with no alternative, I've been left. Oh and I had to find this information out myself about the clinic being stopped, no one was going to tell me.
:/
I'm sorry to hear this, trigeminal neuralgia is the absolute worst - that doesn't even do it justice. I made an emergency dentist appointment when mine was unbearable last year and my dentist gave me a nerve block - dentists are able to diagnose and treat trigeminal neuralgia so maybe that's an option worth exploring? you may be able to get more regular nerve blocks there?
@Evie_Meldrum I actually have the dentist in the 15th July, so might be worth talking to her. I struggle with the dentist cos of the pain so it's the first time I'm dreading it cos I'm not prepared or managed with pain. Thank you for your response and advice!