Hi 59 year old finally waking up to the challenges MS presents
My MS journey started in 1989 with what transpired to be optic neuritis.
Living in London in a bachelor pad that resembled a scene from the movie Animal House after a major relapse and a dose of steroids life went on. Yes rugby was a non starter but the chaos of a 20 year old continued at a ridiculous pace. Work and play carried on. MS was parked. In hindsight I got lucky.
I had another relapse in 96 followed by 2 or 3 less severe in incidents with the .ove to beta interferon at the beginning of 2000.
This was continued for a number of years with relapses still occurring.
I then moved on to Tysabri with no actual relapses to report for circa 10 years.
What has occurred is that over time my mobility has detiorated quite dramatically. Finding this site and actually removing my head from the sand has been quite liberating.
Thank you for this site and providing a means for me to start addressing this condition
We have this particular disease NOT TO DESTROY US ..... ..... BUT TO GROW US We have NOT been buried - - WE'VE BEEN PLANTED Amen ? 🙏
My MS was diagnosed in December 2013 (Friday 13!). I didn't even know I had MS. It took nearly 20+years to be taken seriously that there was actually something wrong. When I finally had a diagnosis it was Primary Progressive. 11 years later its now Secondary Progressive. As there is no cure only drugs to suppress nerve pain. I can't believe how much I have gone downhill it's a struggle every day just to get through the day. I just don't have good or bad days maybe a slightly better day. Its hard not to feel despondent but you just keep fighting a losing battle. Its very hard not to think 'why me'