#tremor - Shift.ms

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Tremor

I had by diagnosed with RRMS 3 years ago and have had a tremor in my dominant (right) hand since late 2023. I also lost my ability to write with my right hand. Has anyone else found themselves with a tremor in one arm and has managed to cure it? If so, it would be good to know how. Many thanks!

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@Atina

Tremor

Hi everyone Am experiencing tremors to my head Very weird is a new symtom. Just going to wait for them.to go. Will listen to music so tremor has got a beat to tremor to. 🙂 Atina

Warwickshire, UK

@geeb98

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tremor

has anybody experienced a tremor when their MS first started? I have had one for about 5 months - it hasn't got any worse / better. It's most present when I bend a finger forward/down , but is also present when my hand is still. Has anybody experienced any type of tremor? What was it like and how lo...

10

@Huma_Javed

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Tremor

I was in and out of hospital last year and whilst I was there I developed a tremor in my right arm and right hand, is there any medication for this. I have Secondary Progressive MS and I had the Lemtrada Infusion last October. I can't write anymore or eat properly. Someone please help.

13

@Ozi77

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Tremor

I get tremor in my ankles and more recently in my knees. this seems to be worse since i got back from a break over new years. can anyone suggest vitamin/product to take that may make it better. cheers, Ozi

5

@nkinley

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I was diagnosed with RRMS over 10 years ago, but only recently started experiencing what seem to be flares and relapses. I’m meeting with a neuroimmunologist tomorrow and would appreciate hearing from others who have been through something similar.Was anyone initially misdiagnosed or told their MRI findings were unclear? My MRI only shows a few white matter lesions/scars, and I also have a history of Traumatic Brain Injury, which makes it difficult to know which symptoms are coming from MS versus TBI.Some of the symptoms I’m experiencing include:• Blurry vision, double vision, impaired color vision, and eye pain• Muscle weakness, stiffness, balance problems, dizziness, tremors, and difficulty walking• Numbness, tingling, heat intolerance, and possible Lhermitte’s sign• Brain fog, memory issues, concentration difficulties, depression, and mood changes• Bladder urgency and bowel issuesFor those with RRMS:Were you ever misdiagnosed before receiving a definitive MS diagnosis?Did your MRI show only a few lesions initially?What questions do you wish you had asked your neurologist early on?Which treatments have helped you most with fatigue, brain fog, mobility issues, vision problems, or relapses?Have any affordable medications or infusion therapies worked well with insurance coverage?Thank you for sharing your experiences and insights. I’m still learning how to navigate this journey and appreciate any advice.Questions I’d ask your neurologist tomorrowDo I meet the current diagnostic criteria for RRMS, or is further testing needed?Could any of my symptoms be related to my TBI, migraines, vascular changes, or another neurological condition rather than MS?Do my MRI findings show active inflammation, old lesions, or evidence of progression?Should I have MRI scans of my cervical and thoracic spine if they haven’t been done recently?Would a spinal tap (lumbar puncture) or additional testing help confirm the diagnosis?How can we tell whether what I’m experienced recently are true relapses versus symptom fluctuations?Am I a candidate for a disease-modifying therapy (DMT), and if so, which one do you recommend and why?What are the risks, benefits, and expected effectiveness of oral medications versus infusion therapies?What can be done specifically for fatigue, brain fog, pain, bladder issues, vision symptoms, and mobility problems?Given my family history, TBI history, and concern about possible CADASIL, are there additional tests you recommend?Common MS Treatments to Ask AboutDisease-modifying therapies (to reduce future relapses and new lesions) often include:Oral medicationsTecfideraVumerityAubagioMavencladInfusion therapiesOcrevusBriumviTysabriKesimpta (monthly self-injection rather than infusion)Many insurance plans cover these, and manufacturers often have copay assistance programs. Your neurologist’s office typically has staff who help obtain prior authorizations and financial assistance.One thing I’d specifically tell the neuroimmunologistBring up:Your history of MS diagnosis 10+ years agoRecent worsening symptomsHistory of TBI and cerebral contusionCognitive changes and memory issuesVision symptomsFamily history of stroke/CADASIL concernsAny heat intolerance and bladder symptomsThose details may help them determine whether there is one diagnosis explaining everything or whether multiple conditions are contributing to your symptoms.I’ll hoping tomorrow’s appointment gives me some clear answers and a concrete treatment plan. A neuroimmunologist is exactly the kind of specialist who can help sort through complicated situations like MS and my other neurological conditions.

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4

@Jacqueline27

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Body tremors

Hi has anyone suffered from body tremors when trying to sleep. Everytime I’m about to drop off they happen some nights I get no sleep other nights I only suffer with one or two tremors. Has anyone had this issue and what did the dr do to help?

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5

@show

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Tremors in hands and arms . Does anyone have this ?

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12

@Teresan

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Anyone have a problem with a leg tremor when they drive?I think mine is permanent now

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5

@Zainab

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Clonus and tremors

Hi gang, A fairly new symptom I’ve added to my collection is uncontrollable shakes and bounces…started on Baclofen for this but can’t really see that it’s doing much to be honest. What are people doing to manage this? Any information/ guidance will be greatly appreciated. Zainab

London, United Kingdom

First posted on the Shift.ms app

23

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