#tysabri - Shift.ms

Tysabri (natalizumab) is a disease modifying treatment (DMT) for highly active relapsing remitting multiple sclerosis. Tysabri is given as an intravenous infusion (drip), usually once every four weeks and trials have shown that it reduces the number of relapses experienced by around 70%.Find out how other MSers have managed their condition using Tysabri MS treatment and ask any questions you might have.

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@ShortStuffLou

27 Nov 2024 10:49Last reply 21 Mar 2025 08:45

Tysabri

Just came back from my ms appointment with the neurologist and I'm gonna be starting Tysabri potentially after blood tests? Is this a good medication? As I have no idea what's best treatment. I've looked at some of the potential side effects and worried as I already have some of the issues it says...

First posted on the Shift.ms app

@RachH

2 Aug 2016 16:54Last reply 17 Jan 2025 21:19

High jcv+ level, Tysabri and Gilena

Hi. I've been on Tysabri for over 7 years. My jcv+ level is 3.5, which I'm told is high. I've been told I may have to come off Ty to go on a tablet, Gilena, I think it's possibly called. Has anyone had to do this and how effective it is in comparison? Thank you

@Jimmyp47

23 Oct 2024 04:18Last reply 8 Dec 2024 01:05

Tysabri

Hey everybody. Ocrevus for 2 years and sadly didn't work now spine been really attacked from t11 and lower. Now neurologist has mentioned Tysabri as the next option after the Ocrevus fail. Has anybody experienced Tysabri and if so what can I expect from this treatment?? Thank you all in advance.....

Melbourne, Australia

@SBGill91

1 Jul 2021 20:23Last reply 16 Nov 2024 20:04

Subcutaneous Tysabri

Hi, I have been having the Tysabri infusion since Feb 2020, and today just found out that I’m due to swap from having the 2-3hr infusion (monthly) to the subcutaneous Tysabri jab (monthly) in its place….. plus side is it’s a lot quicker and for the first 6 months I just need to be monitored for a...

@Lisamarie6

23 Dec 2023 23:03Last reply 12 Nov 2024 07:44

People’s experiences of Tysabri sub cut

I was a bit nervous about changing from Tysabri infusions to Tysabri sub cut injections . I’ve had my 3 rd one on wed gone . So far so good . Just wondering if anyone is having any negative experiences with Tysabri sub cut . Thanks , Lisa

Tullow, Ireland

@bex1890

8 Nov 2024 09:09Last reply 8 Nov 2024 21:13

Tysabri

I was on tysabri injections every 4 weeks but I have now become JC virus positive so they switched me to every 6 weeks I have opted to switch treatment (can't remember the name) but I injections myself it's every month & I no longer have to go to the hospital which is a bonus!! I know I can't rememb...

First posted on the Shift.ms app

@hayleighjayne

24 Nov 2023 16:02Last reply 16 Oct 2024 09:15

Starting Tysabri?!

So, a bit of a backstory on my situation.. I was diagnosed in November 2021 with RRMS. I received my diagnosis after having numbness and tingling in both arms and legs and suffering optic neuritis which pretty much completely took my vision in my left eye. Luckily I got my vision back and it’s just ...

Loughborough, United Kingdom

@Bluebell2

5 Jul 2024 15:56 EditedLast reply 14 Oct 2024 16:07

Does Tysabri increase energy?

Hi, I’m currently going into my 7th week without my Tysabri infusion (usually 4 weekly soon to be 6 weekly but missed last infusion as had UTI and was on antibiotics so MS team advised I wasn’t allowed it). Does anyone feel that Tysabri increases their energy levels or reduces fatigue? I’m definite...

@Jennyaa

22 Mar 2018 20:44Last reply 28 Sep 2024 04:05

Tysabri and cbd oil

Hi can anyone tell me is it safe to take cbd oil whilst on tysabri ? Thanks Jenny

@SM_007

20 Apr 2024 16:59Last reply 11 Sep 2024 08:45

Tysabri - 6 weeks

Hi! Hope Saturday is being good to you! I moved to my 4 week Tysabri dose to every 6 weeks in August/September 2023... and wondering if anyone else did, and if so, how you're getting on with it? (I felt the 'need' for it in the week running up to infusion and have has repeat old symptoms', JCV went ...

Colchester, United Kingdom

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