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We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@ShortStuffLou 

Last reply

ShortStuffLou

Tysabri

Just came back from my ms appointment with the neurologist and I'm gonna be starting Tysabri potentially after blood tests? Is this a good medication? As I have no idea what's best treatment. I've looked at some of the potential side effects and worried as I already have some of the issues it says...
First posted on the Shift.ms app
52

@Jimmyp47 

Last reply

Jimmyp47

Tysabri

Hey everybody. Ocrevus for 2 years and sadly didn't work now spine been really attacked from t11 and lower. Now neurologist has mentioned Tysabri as the next option after the Ocrevus fail. Has anybody experienced Tysabri and if so what can I expect from this treatment?? Thank you all in advance.....
Melbourne, Australia
32

@Ddott 

EditedLast reply

Ddott

Tysabri?

UPDATE: Thank you, everyone, for sharing your experiences. I know everyone is different but it really does help give me a sense of it and what I could experience. Hi everyone. I started my first Tysabri infusion today. The i fusion itself went seamlessly. I was wondering if anyone else was on Tysab...
Ottawa, Canada
  • Tysabri
  • Disclosure
  • Diagnosis
  • Treatment
  • Ocrevus
  • Relapsing remitting
  • Work and play
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29

@Gwenny 

Last reply

Gwenny

Tysabri,

Hi Folks, just wondering if anyone else is on Tysabri and would like to know is it working for you, any side-affects? I've been on it now for almost 6mths and am thrilled to say I have a lot of my movement back, just feel really tired the week leading up to Infusion. any comments would be appreciate...
  • Symptoms
  • Fatigue
  • Relapses
  • Treatment
  • Tysabri
19

@kea21 

Last reply

kea21

Tysabri

Had infusion number five, procedure went ok, but I had issues halfway home driving, It became quite dangerous couldn't get my right leg/foot to work! (Monday) Since then the week has been crap!, headaches,dizziness and my walking has been all over the place ( wobbling ) I was really struggling to dr...
  • Healthy living
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  • Symptoms
  • Bladder and bowel
  • Dizziness
  • Relapses
  • Tysabri
  • Work and play
18

@jojo75 

Last reply

jojo75

Tysabri

Hi this is my first post. Excuse me if I waffle! I was diagnosed in 2012 with rrms. I've had 3 different dmds. In September I was signed off work for 6 weeks. With what I now think was a stress related relapse. My first real severe relapse. Any way saw my Neuro in October who wants to change me...
  • Relapses
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  • Newly diagnosed
  • Mental health
  • Relapsing remitting
  • Work and play
  • Which DMT
  • Work and Study
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15

@AmyBarr55 

Last reply

AmyBarr55

Tysabri

Hi just seeing if anyone has switched to the injections of tysabri. I am thinking of doing this just want to find out if any difference and if has the same effect etc? Thanks a mill
  • Tysabri
  • Treatment
  • Symptoms
  • Relapses
14

@LisaNeighbour 

Last reply

LisaNeighbour

Tysabri

Hi Hope everyone having a nice evening, wherever you are. Just wondered if anyone had any words of wisdom on Tysabri? I’ve had all my blood tests, read my information booklet and am now just looking for advice. I’ve looked up tysabri on our site but any more advice or support before making this com...
13

@BFShadow 

Last reply

BFShadow

Tysabri

What are your thoughts on this? I’ve been told I’ll be out on this and next week I’ll be seeing MS nurses about the next step and booking me in for IV’s.
First posted on the Shift.ms app
13

@Hollie18 

Last reply

Hollie18

Tysabri

I had my third infusion of Tysabri today and I’m noticing the side effects getting worse than before. Is anyone else on Tysabri? What are your experiences? I was also curious on when they started to feel the full effects of it. Did it take 6 months to a year until you felt the positive change?
Joliet, United States
  • Tysabri
  • Treatment
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  • Work and play
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  • Mavenclad
  • Unlicensed
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13
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