Lemtrada
Hi, I am a bit shy but also slightly worried. I have RRMS and been on Avonex for about 3 years after previously been on Rebif , but this year I have had 4 Relaspes so my consultant at Queens Square advised I change after a MRI showed new lesions, I spoke to the MS nurse about options , I wanted Tysabri (sorry if spelling incorrect) but she said I was not eligible, so decided on lemtrada I have had blood tests and smear today can anyone advise me on what is next and possible time frames I am a busy mom of 4 and try as much as possible not to let MS rule my life my hubby and kids are very supportive but if I have to have a stay in hospital I would like to know so I can plan (forget to mention that I have 4 boys) so with hubby included preparing needs to be on point , I have not heard anything from my MS nurse even though my tests were nearly a month and a half ago , sorry for long post
Hi @marveless and welcome. There's a warts'n'all blog, recorded by @tracyd , which is a good place to start :- http://tracyslemtradajourney.blogspot.co.uk/ Tracy will be along soon, to offer her hand of support, I'm sure.
Hi @ marveless I just finished my second round of Lemtrada and I got a lot of support and information from the Lemtrada group on Facebook. I also really love a blog called 'In Everything' (www.ineverything.ca) written by a Canadian woman with RRMS who finished her rounds of Lemtrada and is a super positive inspiration to us all. Re hospital/planning the treatment: some hospitals prefer patients to be in-patients but I believe the great majority now offer the treatment as out-patient. I was initially nervous about going home (I shouldn't have been - it was a major relief to go home every night, honest) but you might feel different - especially with 4 children in the house. You WILL need them to respect that mummy needs rest during and after treatment while you recover. I hope I've answered some of your questions and again; read the blogs mentioned, ok? Godspeed x