#work and play - Shift.ms

18 Jun 2015 15:23Last reply 3 Jul 2015 10:32

Let's get an MS drug picture of the UK..

Please say where you are in the UK, What drugs you are prescribed and your Type of MS....so I'll get started.. PPMS - Gabapentin 2500mg daily, Fluvoxamine 100mg daily, Zopiclone 7.5mg daily, Amantadine 200mg daily, Targinact 20/10mg twice daily, Lansoprazole 30mg daily (to stop reflux from other ta...

41

@Cazzzzzy

2 Feb 2013 19:49Last reply 4 Apr 2013 18:02

Vitamin d3... Brands ?

Hi :) Just wondering what brands of d3 people are taking on here? My daughter went to Holland & Barrett to pick some up for me today but they don't do any mega doses (5000iu ?) Also wanna make sure its Colecalciferol (?) and not the other one because I keep reading that the other one isn't...

41

@Mandela

3 Dec 2012 00:24Last reply 8 Dec 2012 13:33

Dreams/Ambitions/Aspirations/Goals

I was just wondering if MS has hindered anyone from pursuing their dreams, their goals in life, their ambitions, their aspirations, or just made you rethink how you are going to get where you want to go. Or has it made you grab the bull by the horns and pursue your dreams vigorously? I have experien...

41

@AmmaTime

3 Apr 2018 16:53Last reply 26 Jan 2020 17:40

Subject: Loneliness

Anyone up for meeting up for a drink and a chat sometime. Also, does anyone know when our nest MS meet up is?

41

@Denisa

17 Nov 2014 19:30Last reply 24 Nov 2014 11:17

Lumbar puncture - did you have it done?

Hello all, I'm becoming very anxious and annoyed by the fact that the neuro at the Teaching Hospital and MS Center scheduled me for a lumbar puncture this Thursday. How many of you had anxiety? How many of you had a lumbar puncture as a measure for getting a certain diagnosis. When I first had my...

40

@scarletmartina7

7 Feb 2013 11:53Last reply 11 Feb 2013 11:51

just been diagnosed with Ms

IM 23 and was diagnosed.with Ms just 7 days ago. I have double vision and fatigue. Can t see anything unless I have a patch on one eye. Can't work can't go out with my boyfriend! They say it will go away but when and for how long?? Help xx

40

@davemcfaull

11 Jul 2012 10:01Last reply 13 Nov 2012 16:17

Mobile Phone app to help with daily life

My name is David McFaull, I am about to go into final year in software development at University of Ulster Coleraine. As part of our final year we are required to create a piece of software and I want to create a mobile phone app to help people with MS. My mother has had MS for around 8 years now. I...

40

@Kitty

10 May 2017 07:55Last reply 19 Apr 2019 00:45

Confused

Hi, so dont know what to do. Ive known about my Ms over 7 years and only had 2 relapses. Ive also only ever tried 1 drug... Avonex for 6 months and then came off it as I felt it was effecting quality of life. This week Ive found out the results to latest MRI...3 new lesions and enhancement of e...

39

@Stumbler

27 Nov 2012 09:10Last reply 29 Nov 2012 21:42

Lexie123

This new user seems to have a cure for MS...........at a price! They've post a link to their website on the forum, as well as pushing it on our chat troom. They're now amassing friends on the forum. So, I'll leave it to you. Personally, I'm against anyone trying to make money out of MS with...

39

@loulou

12 Nov 2012 13:11Last reply 2 Aug 2021 17:56

Would you all help with this?

Hi there My husband and I are writing a letter to David Cameron highlighting the importance of Multiple Sclerosis research and the fact that MS does not seem to get as much resources and funding as other illness's and to expediate research in particular stem cell. If we write a letter and post ...

39

@pottypete

3 Sep 2012 13:33Last reply 6 Sep 2012 07:58

Jokes

I met a bloke in a wheelchair today, his face was battered and bruised. "What happened to your face?" I asked. "I'm a Paralympian." He replied. "Boxing?" I enquired. "No..." He said, "...Hurdles."

38

@DominicS

14 Aug 2020 10:18Last reply 15 Aug 2020 07:02

Your help needed- UK MS Register

Hi, - This is entirely without judgement and for UK MSers. It involves a few min of your time, no money ;) - I am interested to know who has ever been told about the UK MS Register? - https://ukmsregister.org/ (check this out as well if you like https://www.youtube.com/watch?v=s10osAwugO0&list...

38

@Stumbler

10 Sep 2018 11:51Last reply 30 Sep 2018 16:02

UK: Ocrevus Declined by NICE for PPMS

This is hot off the press and has upset people in the medical profession, as well as UK PPMSers. There's already a campaign to contest this decision :- https://signup.mssociety.org.uk/page/30088/petition/1

38

@RachaelLouise

6 Jan 2018 18:08Last reply 8 Jan 2018 12:56

How have all these people got better?

How of all these people got better with ms ? If you can’t cure it and it’s progressive how have they gone into remission ? They can’t have all been misdiagnosed or been ‘mild’ or benign ms . And not all on drugs . Stats say by 10-15 years go in from RRMS to Primary progressive . Some had been pro...

38

@ettelrahs

7 Sep 2019 21:15Last reply 22 Sep 2019 15:26

Epstein Barr Virus and MS links

I just want to hear people's stories, if there are any, about any experience with this virus and the possibility of it contributing to the cause of ms. I had Glandular fever at 16, and ten years later, DX with MS. Has anyone else experienced this or similar?

38

@mrspoffy

25 Jan 2016 18:43Last reply 23 Jan 2021 17:50

Daily Symptoms :/

Hey guys. I'm coming up on the worst first anniversary of my life, the day i was diagnosed with RRMS. Feb 16 and I currently take Gilenya daily along with a host of other meds for different things but the reason I'm here, is since the relapse that initially got me diagnosed last year, I've had pain,...

37

@SusieQ

2 Oct 2012 07:46Last reply 11 Oct 2012 18:16

Sorry - bit personal

Hi all, I hope this isn\'t too personal a question, but: I have had ms for six years and over those six years I have totally lost interest in sex. Has this happened to anyone else? How do I get interested again? I\'ve a husband I\'d like to make happy but I don\'t know how to when I just seem to hav...

37

@donnahazms

23 Jul 2012 21:28Last reply 26 Jun 2013 17:47

How many of you have been deserted by their spouse or they just ignore you...

...in general? Maybe I'm being selfish, but I live in almost total silence. My husband doesn't really talk to me and seems so bitter, resentful and angry towards me. He's already had an affair and said it was because he could not handle my MS. I showed him the door and told him he's welcome to go li...

37

@Angela351

7 Apr 2016 17:32Last reply 6 Mar 2021 18:10

MDMA made my MS go away for 5 hours

Hey all, just checking to see if anyone had the same experience. I took a small amount MDMA and I could do things I couldn't before. For about 5 hours I could stand long enough to have a conversation without having to find a seat. I could dance for an entire song. I was running up stairs and moving ...

36

@Scott_Socco_Pickworth

12 Nov 2015 12:43Last reply 21 Mar 2021 13:17

Sex life

Ever since I've been diagnosed with ms last year my sex drive is zero I rather turn over and go sleep,is anybody else like this or is it just me

36