Advancing symptoms, no new relapses?
Hi, I was diagnosed with MS summer 2019.
At that point I had had some minor symptoms such as numbness in my hands and feet and some blurred vision. Optic neuritis led to my diagnosis.
Since then my day to day experience has got progressively worse. I have struggled to walk any distance at times and can no longer run long distance (5km slowly max) which I used to enjoy. I have also developed problems with adder control, fatigue and muscle weakness. My most recent MRI in July has come back showing no new progression. This is obviously good news but I am struggling to come to terms with what feels like a progression of the disease with no medical evidence to back this up.
Has anyone had a similar experience?
Thanks
I’m In the exact same position as you. No new lesions but my bladder control, fatigue and muscle weakness have declined massively within a few months. I’m at a loss of what to do. All I get told is to rest but with two young kids that’s impossible. There’s days I have to go up and down stairs on my bum because my legs can’t manage it. Has anyone got any tips to help with fatigue?
I have had the same so far! My balance has deteriorated meaning I often stumble but no new lesions at last mri. It’s so tough, but I try and remind myself that no lesions is good, and at the end of the day, the symptoms I am feeling are just the symptoms I am feeling, and I try to remind myself that the cause is kind of irrelevant. The hardest thing I find is to come to terms with it all, but when I accept how I feel, I tend to find it easier to deal with. Don’t get me wrong, it’s really hard to do, especially on a bad day. I’ve sought help for fatigue and I’ve been suggested to start with 15 mins light exercise whenever I can. I have young children too so never feel up to it, but I will do what I can. I believe there’s also cognitive behavioural therapy which can help deal with the mental side of fatigue. Hope that helps, but if nothin else, I can fully empathise x