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We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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Topics

  • Balance
  • Bladder and bowel
  • Blurred vision
  • Brain fog
  • Brain health
  • Dizziness
  • Fatigue
  • Hot and cold
  • Mental health
  • Numbness
  • Optic Neuritis
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Found 1756 results

@chloeautumnx

Last reply

chloeautumnx

Is this MS hug?

Hi, Looking for some advice really. I have had MS for 8 years now and medics believe (after months of decline and no remission) that I have started on the path of secondary progressive. Since last summer, I became a full time wheelchair user due to a severe relapse leaving my left leg paralysed. Si...
  • Pain
  • Symptoms
  • Work and play
  • Accessibility
  • Relapses
  • Hot and cold
  • Balance
  • Family and children
  • Healthy living
  • Relationships
4

@colemobrownees

EditedLast reply

colemobrownees

Diagnosis Journey

Happy Friday! I’m new to this space. I’m currently in the process of ruling out what could be going on with me. This post will be a bit long but figured this is a safe space to get it all out. Late Jan 2021 was when I experienced some of my first symptoms. My left upper lip had some numbness. ...
  • Symptoms
  • Spasticity
  • Diagnosis
  • MRI
  • Dizziness
  • Fatigue
  • Pain
  • Brain fog
  • Hot and cold
  • Numbness
11

@melmel1

melmel1

Pain

Morning all I have been for the last 2 weeks getting a weird feeling in my left arm shoulder it feels so cold then can feel like burning and starting to feel it in my other arm and sometimes the burning in back, is this normal of ms or something else, its a combimation of numbness, bit of weakness, ...
  • Symptoms
  • Hot and cold
  • Pain
  • Relapses

@TheDreamer

Edited

TheDreamer

Plegridy

Hi people. My name is Tivanya. I've been on Plegridy for the last 3yrs and wanted to know if anybody else is taking it and what's your experience, side effects on it. I really suffer when I take it,extreme body pain,hot and cold polar opposite temperatures. But so far its kept the lesions in check...
  • Symptoms
  • Hot and cold
  • Pain
  • Plegridy
  • Treatment
  • Diagnosis

@worldunite193gmailcom

Last reply

worldunite193gmailcom

Brabio severe reaction - Is it likely with Tecfidera

I was taking Brabio for just under 3 months. In that period I had 4 occasions were 3 ish hours after injecting I would get hot and cold chills and a bit of a fever that I would sit through for a couple of hours. The last time I injected I noticed that the injection was going in slower than usual an...
  • Tecfidera
  • Treatment
  • Relationships
  • Hot and cold
  • Symptoms
  • Avonex
  • Work and play
  • Copaxone
  • Mental health
  • Plegridy
1

@Sharrona

Last reply

Sharrona

Struggling in Limboland :-(

Hi everyone I know many people go through this, but I am really struggling with being in limbo, with my current symptoms and with fears for the future. I had an MRI in November and saw the neurologist in December - a new area of inflammation was found (he called this transverse myelitis). This is ...
  • Symptoms
  • Diagnosis
  • Limbo land
  • Pain
  • Balance
  • Unlicensed
  • Hot and cold
  • Fatigue
  • Relapses
  • MRI
10

@caseyjane

Last reply

caseyjane

Newly diagnosed and worrying

Hi all, I’m new to this site but am excited to be here. Im 28 and was diagnosed with RRMS 2 months ago after over a year of numbness, tingling, fatigue and changes in my sense of hot and cold. Doctors suspected I may have Lyme disease so although they found spinal cord lesions in my first mri my dia...
  • Diagnosis
  • Newly diagnosed
  • MRI
  • Symptoms
  • Relapsing remitting
  • Fatigue
  • Hot and cold
  • Work and play
  • Work and Study
9

@samlex11

Last reply

samlex11

Advice. Help

Hi I only got diagnosed 2 weeks ago. I got diagnosed while in hospital and they just told me I had relapse and remission and sent me on my way and told me ill be seen in outpatients the waiting time is up to 10 weeks. I'm really confused and scared I don't understand what's happening what I'm suppos...
  • Diagnosis
  • Disclosure
  • Newly diagnosed
  • Relapsing remitting
  • Healthy living
  • Exercise
  • Symptoms
  • Hot and cold
  • Numbness
  • Pain
  • Relapses
8

@amvw

Last reply

amvw

Opinions welcome...PLEASE!!!

Hi everyone..I need your help / advice please...loooong story so please bare with me. I have been experiencing severe tingling on my left side especially worse in my leg and arm...no facial tingling and no weakness whatsover. Oh yes and a little bit on my right leg for the last year and four months....
  • Symptoms
  • Brain fog
  • Hot and cold
  • Mental health
17

@jman

Last reply

jman

Russel Square Picnic - Saturday 9th Aug

Xposted this to the London Group, but not sure if people get notified of posts, or it shows up when you log on to the speakeasy.. I would like to invite you to — Join the Outsiders Club for their August picnic, in Russell Square, Bloomsbury in the London Borough of Camden. Outsiders is a UK based ...
  • Healthy living
  • Diet
  • Symptoms
  • Hot and cold
  • Work and play
  • Accessibility
  • Going out
  • Meet ups
  • Money
  • Relationships
1

@funnybank

Last reply

funnybank

new pain

it's been 2 months since my last relapse, which took motor skills from my right side, i didn't take steroids as i'm still breastfeeding. as the motor skills slowly returned the nerve pain i experienced went through the roof burning itching hyper sensitive to hot and cold. i thought things had platea...
  • Symptoms
  • Bladder and bowel
  • Fatigue
  • Hot and cold
  • Mental health
  • Pain
  • Relapses
  • Steroids
  • Work and play
  • Fun drugs
2

@gpeps

Last reply

gpeps

Website - help us be better?

Hey everyone 👋 We’re always looking for ways to improve our service so that you have the support you need. As you can see, we’ve recently updated our website to ensure we can continue to provide support for many more MSers in the future. We had many issues with the previous site related to speed,...
Leeds, United Kingdom
  • Work and play
  • Work and Study
  • Positives of MS
  • Hot and cold
  • Symptoms
26

@Morgan_Cody

Last reply

Morgan_Cody

All Natural?

Anyone gone cold turkey on meds and decided to try a more natural approach to treating their MS? Just curious what people's experiences were. Thanks!
  • Hot and cold
  • Symptoms
  • Healthy living
  • Diet
  • Which DMT
  • Treatment
2

@Toni93

Last reply

Toni93

About to be diagnosed?

I was diagnosed with TM (transverse myelitis, MS’s rarer cousin) in 2020, have had a couple of flare ups since then and am currently experiencing what I think is a relapse because I’ve a bunch of new symptoms. Until recently my only persistent symptom was tingling in my left leg, following extreme s...
York, United Kingdom
  • Diagnosis
  • Symptoms
  • Newly diagnosed
  • Relapses
  • Mental health
  • Work and play
  • MRI
  • Hot and cold
  • Numbness
  • Going out
3

@Clary

Last reply

Clary

Ocrevus

Hi all 👋. Just a question about Ocrevus treatment. Just wondering if anyone knows of any reason why I wouldn’t receive my infusion? I am concerned that I will catch my child’s raging cold/cough. My infusion is due soon and I am concerned it may be delayed if I have the lurgy. 🤷‍♀️
  • Treatment
  • Ocrevus
  • Symptoms
  • Hot and cold
  • Mental health
5

@Ireneb74

Last reply

Ireneb74

I am ok!!!!

Sometimes we all just need time and space To adjust to whatever we have to face To step back, to stop, to readjust I have found, this for me, was a must My head was tangled, scared and sore Tbh I dreaded stepping out the door I sought help and advice, a little extra care A little gentle persuasion ...
  • Symptoms
  • Hot and cold
  • Mental health
  • Diagnosis
  • Meet ups
  • Work and play
  • Newly diagnosed
  • Balance
  • Brain fog
  • Treatment
1

@clairemaria

EditedLast reply

clairemaria

Stupid gardening

Hi... Any advice guys? Been feeling good for a long time... so spent yesterday in the garden for a few hours weeding cutting back bushes etc. Garden looks good today... me? Not so much! Actually in agony with my back, legs shoulders etc... i want to cry in pain everytime i move... have taken 2 na...
  • Symptoms
  • Pain
  • Hot and cold
  • Numbness
  • Relapses
4

@Rach1330

Last reply

Rach1330

Hey everyone im new 🖐

Hello my names rachel 31! Sooo last year I had my first ever episode! Numbness from the waiste down I had alot of symptoms like tingling dizziness blurred vision. Many many trips to a&e and doctors my first mri had 1 lesion. (Was told was a stroke but wasnt) moving forward I also had diffrent sympto...
  • Symptoms
  • Dizziness
  • Relapses
  • Diagnosis
  • MRI
  • Numbness
  • Hot and cold
  • Blurred vision
  • Healthy living
  • Disclosure
8

@Mfisher83

Last reply

Mfisher83

How many of you don’t take meds?

I’ve been taking Avonex for the last two years and have decided to stop. For the last 9 months I’ve noticed my immune system is completely ineffective, I’m sick all the time. Little normal cold viruses affect me for weeks. I’m tired up side effects, sore muscles and constant sickness. My doctor sugg...
  • Treatment
  • Symptoms
  • Which DMT
  • Hot and cold
  • Fun drugs
  • Fatigue
  • Work and play
  • Avonex
  • Healthy living
  • Gilenya
4

@MARCI

Last reply

MARCI

Hi all

I'm so aggravated... my feeling today. Really would love to go to group meetings... but there are none close...I'm in Tennessee. Hope yal have a good day...stay OUT of the heat 😥 I'm PPMS, on Ocreavus infusions..... anyone else ??? Let me know how you like....
  • Hot and cold
  • Symptoms
  • Diagnosis
  • Primary progressive
  • Treatment
  • Work and play
12
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