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Hi, Looking for some advice really. I have had MS for 8 years now and medics believe (after months of decline and no remission) that I have started on the path of secondary progressive. Since last summer, I became a full time wheelchair user due to a severe relapse leaving my left leg paralysed. Si...

Happy Friday! I’m new to this space. I’m currently in the process of ruling out what could be going on with me. This post will be a bit long but figured this is a safe space to get it all out. Late Jan 2021 was when I experienced some of my first symptoms. My left upper lip had some numbness. ...

Morning all I have been for the last 2 weeks getting a weird feeling in my left arm shoulder it feels so cold then can feel like burning and starting to feel it in my other arm and sometimes the burning in back, is this normal of ms or something else, its a combimation of numbness, bit of weakness, ...

Hi people. My name is Tivanya. I've been on Plegridy for the last 3yrs and wanted to know if anybody else is taking it and what's your experience, side effects on it. I really suffer when I take it,extreme body pain,hot and cold polar opposite temperatures. But so far its kept the lesions in check...

I was taking Brabio for just under 3 months. In that period I had 4 occasions were 3 ish hours after injecting I would get hot and cold chills and a bit of a fever that I would sit through for a couple of hours. The last time I injected I noticed that the injection was going in slower than usual an...

Hi everyone I know many people go through this, but I am really struggling with being in limbo, with my current symptoms and with fears for the future. I had an MRI in November and saw the neurologist in December - a new area of inflammation was found (he called this transverse myelitis). This is ...

Hi all, I’m new to this site but am excited to be here. Im 28 and was diagnosed with RRMS 2 months ago after over a year of numbness, tingling, fatigue and changes in my sense of hot and cold. Doctors suspected I may have Lyme disease so although they found spinal cord lesions in my first mri my dia...

Hi I only got diagnosed 2 weeks ago. I got diagnosed while in hospital and they just told me I had relapse and remission and sent me on my way and told me ill be seen in outpatients the waiting time is up to 10 weeks. I'm really confused and scared I don't understand what's happening what I'm suppos...

Hi everyone..I need your help / advice please...loooong story so please bare with me. I have been experiencing severe tingling on my left side especially worse in my leg and arm...no facial tingling and no weakness whatsover. Oh yes and a little bit on my right leg for the last year and four months....

Xposted this to the London Group, but not sure if people get notified of posts, or it shows up when you log on to the speakeasy.. I would like to invite you to — Join the Outsiders Club for their August picnic, in Russell Square, Bloomsbury in the London Borough of Camden. Outsiders is a UK based ...

it's been 2 months since my last relapse, which took motor skills from my right side, i didn't take steroids as i'm still breastfeeding. as the motor skills slowly returned the nerve pain i experienced went through the roof burning itching hyper sensitive to hot and cold. i thought things had platea...

Hey everyone 👋 We’re always looking for ways to improve our service so that you have the support you need. As you can see, we’ve recently updated our website to ensure we can continue to provide support for many more MSers in the future. We had many issues with the previous site related to speed,...

Anyone gone cold turkey on meds and decided to try a more natural approach to treating their MS? Just curious what people's experiences were. Thanks!

I was diagnosed with TM (transverse myelitis, MS’s rarer cousin) in 2020, have had a couple of flare ups since then and am currently experiencing what I think is a relapse because I’ve a bunch of new symptoms. Until recently my only persistent symptom was tingling in my left leg, following extreme s...

Hi all 👋. Just a question about Ocrevus treatment. Just wondering if anyone knows of any reason why I wouldn’t receive my infusion? I am concerned that I will catch my child’s raging cold/cough. My infusion is due soon and I am concerned it may be delayed if I have the lurgy. 🤷‍♀️

Sometimes we all just need time and space To adjust to whatever we have to face To step back, to stop, to readjust I have found, this for me, was a must My head was tangled, scared and sore Tbh I dreaded stepping out the door I sought help and advice, a little extra care A little gentle persuasion ...

Hi... Any advice guys? Been feeling good for a long time... so spent yesterday in the garden for a few hours weeding cutting back bushes etc. Garden looks good today... me? Not so much! Actually in agony with my back, legs shoulders etc... i want to cry in pain everytime i move... have taken 2 na...

Hello my names rachel 31! Sooo last year I had my first ever episode! Numbness from the waiste down I had alot of symptoms like tingling dizziness blurred vision. Many many trips to a&e and doctors my first mri had 1 lesion. (Was told was a stroke but wasnt) moving forward I also had diffrent sympto...

I’ve been taking Avonex for the last two years and have decided to stop. For the last 9 months I’ve noticed my immune system is completely ineffective, I’m sick all the time. Little normal cold viruses affect me for weeks. I’m tired up side effects, sore muscles and constant sickness. My doctor sugg...

I'm so aggravated... my feeling today. Really would love to go to group meetings... but there are none close...I'm in Tennessee. Hope yal have a good day...stay OUT of the heat 😥 I'm PPMS, on Ocreavus infusions..... anyone else ??? Let me know how you like....