Feeling Defeated — Worsening Symptoms After Discharge 💔
Feeling Defeated 💔
I was admitted for an MS flare (C1 lesion) on Sept 29 and released Oct 3. They gave me oral steroids instead of IV — and since coming home I’ve gotten worse.
Now I’m dealing with weakness, hot/cold swings, mouth numbness & loss of taste, right arm tingling, nausea, rib/back pain when breathing, and even phantom coffee smells.
My neuro hasn’t seen me since July, and my next appointment isn’t until Oct 9… I feel ignored, scared, and honestly just defeated.
Has anyone else had symptoms worsen after being discharged? What did you do when no one listened? 💙
I need some advice and support from my MS fam right now — I’m trying so hard to stay strong.
— Arielle
Hi Arielle yea it is common for that to happen. It’s tough dealing with the symptoms. Don’t feel defeated you will get through it. Meditation is great to help you calm your body down.
I was on Copaxone which is an old therapy made by Teva. You need something more modern with greater efficacy: Kesimpta, Mavenclad or Ocrevus. You also need to switch your doctor because that type of treatment is no longer indicated. You should've started strong from the beginning. Watch Dr. Aaron Boster on YouTube. Good Luck!