Shift.ms

@Victoria1971

14 Jul 2025 08:31

Working with MS and mental health

Hi everyone. Since returning to work I’ve unwittingly created myself an issue to affect my mental health. Been back at work a month! All going well! This hot weather has finished me off and this morning can barely walk or function. Decided to listen to my body and not work today (I could’ve worked f...

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@skezz

11 Jul 2025 21:09 EditedLast reply 13 Jul 2025 21:08

Aircon in the uk?

Hi, anyone in the uk got aircon? Built in or portable I’d like to know how much these are and which portable ones are decent as I know they cost less. I physically can’t stand this heat any longer I’ve never been so uncomfortable. Sleeping outside has become a genuine consideration and I’m at wits e...

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@faybems

29 Jun 2025 19:40Last reply 29 Jun 2025 21:26

Bloody ‘ot!

Good evening Ladies, gentlemen & fellow hot MSers! I’ve discovered a chill tube! It’s under £10 online.. it’s like an ice pop type thing that is reusable.. freeze it and pop it round your neck! The coldness doesn’t last for too long, but certainly helps you to cool down! I’m over the moon with min...

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@Kiki12

18 Jun 2025 12:26Last reply 19 Jun 2025 14:22

Hi Nuralga buddies...

(Everyone must be sick of me bringing this up 😒. Please forgive give me). Im on higher meds for another reylapse. Do far so good 👍 BUT every now and I get a tiny (hot horrific by means) shock. As uf to say I'm still here- font get too relaxed 😌. It scarss the shit out if me. I immediately get s...

First posted on the Shift.ms app

@n_bushell

17 Jun 2025 05:40Last reply 17 Jun 2025 06:04

Ocrevus side effects.......

Morning all I had my infusion yesterday, woke up this morning and my face is bright red and hot to touch, this happen to me after the last one in December too 🤔 has anyone else experienced this side effect?? The nurse has told ne to keep taking antihistamines, thinking of trying the subcut in Decem...

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@jen1382

9 Jun 2025 08:24Last reply 10 Jun 2025 01:58

Im hot is it just me or???

I get very hot, to the point where i go limp and weaker. I have to have fresh air but my mum who i live with sits with a blanket, could be m s related, i am 43 so im i just starting with that time of live??? 😳

First posted on the Shift.ms app

@Lauren_Bailey

2 Jun 2025 20:35 EditedLast reply 4 Jun 2025 17:24

Cold/Heat intolerance

I’ve been off the app for a while but I love a good hot vs cold deep dive. I HATE the cold with my entire being…autumn/winter is the absolute worst for me because it makes me feel like a literal slug, every movement is a chore and I nap like a hibernating bear but in the summer months there is a m...

First posted on the Shift.ms app

@kyrgyzkiwi

1 Jun 2025 03:44Last reply 3 Jun 2025 20:33

Hot Showers

Hi, i feel like the new kid on the block, having only received my MS diagnosis a couple of months back and am waiting for my first infusion. I’m in NZ and we’re heading into winter so I’m grateful for the cooler weather, and how it reduces the symptoms. Speaking of which i am finding that having...

First posted on the Shift.ms app

@Sheilamarie26

27 May 2025 22:29Last reply 29 May 2025 06:02

How did you find out?

Hi everyone! I have RRMS and I found out that I had MS after going completely numb on my left side. Even then the Doctor was still uncertain and chose to call it Tranverse Myelitis. 5 years later, same symptoms. Only this time, I was sensitive to hot and cold. I had an MRI, Spinal tap, and evoked po...

First posted on the Shift.ms app

@sam333

9 May 2025 06:40Last reply 21 Jun 2025 11:46

Weird one

Last night was scary... I had just come in from the garden, stood up and felt of balanced and legs went to jelly, took a slow walk indoors... Got inside and was by dinning chairs went I felt the MS hug.... It kept getting tighter and tighter, pins and needles started down both arms, pain in my chest...

First posted on the Shift.ms app

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