Shift.ms

18 Jun 2025 12:26Last reply 19 Jun 2025 14:22

Hi Nuralga buddies...

(Everyone must be sick of me bringing this up 😒. Please forgive give me). Im on higher meds for another reylapse. Do far so good 👍 BUT every now and I get a tiny (hot horrific by means) shock. As uf to say I'm still here- font get too relaxed 😌. It scarss the shit out if me. I immediately get s...

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@n_bushell

17 Jun 2025 05:40Last reply 17 Jun 2025 06:04

Ocrevus side effects.......

Morning all I had my infusion yesterday, woke up this morning and my face is bright red and hot to touch, this happen to me after the last one in December too 🤔 has anyone else experienced this side effect?? The nurse has told ne to keep taking antihistamines, thinking of trying the subcut in Decem...

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@jen1382

9 Jun 2025 08:24Last reply 10 Jun 2025 01:58

Im hot is it just me or???

I get very hot, to the point where i go limp and weaker. I have to have fresh air but my mum who i live with sits with a blanket, could be m s related, i am 43 so im i just starting with that time of live??? 😳

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@Lauren_Bailey

2 Jun 2025 20:35 EditedLast reply 4 Jun 2025 17:24

Cold/Heat intolerance

I’ve been off the app for a while but I love a good hot vs cold deep dive. I HATE the cold with my entire being…autumn/winter is the absolute worst for me because it makes me feel like a literal slug, every movement is a chore and I nap like a hibernating bear but in the summer months there is a m...

First posted on the Shift.ms app

@kyrgyzkiwi

1 Jun 2025 03:44Last reply 3 Jun 2025 20:33

Hot Showers

Hi, i feel like the new kid on the block, having only received my MS diagnosis a couple of months back and am waiting for my first infusion. I’m in NZ and we’re heading into winter so I’m grateful for the cooler weather, and how it reduces the symptoms. Speaking of which i am finding that having...

First posted on the Shift.ms app

@Sheilamarie26

27 May 2025 22:29Last reply 29 May 2025 06:02

How did you find out?

Hi everyone! I have RRMS and I found out that I had MS after going completely numb on my left side. Even then the Doctor was still uncertain and chose to call it Tranverse Myelitis. 5 years later, same symptoms. Only this time, I was sensitive to hot and cold. I had an MRI, Spinal tap, and evoked po...

First posted on the Shift.ms app

@sam333

9 May 2025 06:40Last reply 21 Jun 2025 11:46

Weird one

Last night was scary... I had just come in from the garden, stood up and felt of balanced and legs went to jelly, took a slow walk indoors... Got inside and was by dinning chairs went I felt the MS hug.... It kept getting tighter and tighter, pins and needles started down both arms, pain in my chest...

First posted on the Shift.ms app

Deleted

@Alice081

30 Apr 2025 22:44Last reply 30 Apr 2025 23:00

Hey I’m new on here and have not got a diagnosis my gp says my symptoms are related menspause I’m 45Some could be like fatigue struggling with hot flushes, but the lip twitching and numb feet in a morning tingling arm and having to think about swallowing and headaches worry me

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@runak

19 Apr 2025 02:08Last reply 19 Apr 2025 03:01

After taking my almost 2 years old from his crib, my shoulder and back got crazy stabbing pain, I feel like hot pain, and I could not move at all. Not even breathing. I am not sure is this happen because I carry him in a wrong way to it is MS. I got diagnosed in 2013 after I had double vision. Since then I didn’t took any medication. I had another attack on 2018 but I had no symptoms. I am so afraid of this new MS attack. I have little toddlers I have to take care of them :(. How is MS pain?

Alexandria, United States

First posted on the Shift.ms app

@not2bMSdwith

1 Apr 2025 16:30 EditedLast reply 7 Apr 2025 16:19

Ocrevus and Menstrual Cycle Absence

Ladies within child bearing ages on Ocrevus - **{ if you are not a woman, or a woman within child bearing age please keep scrolling.}** When you began Ocrevus did it disrupt your cycle? I took my first dose (full dose) of Ocrevus 1/31/2025. The first day of my last period was February 5th, no flow...

First posted on the Shift.ms app

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