Shift.ms

9 May 2025 06:40Last reply 9 May 2025 09:23

Weird one

Last night was scary... I had just come in from the garden, stood up and felt of balanced and legs went to jelly, took a slow walk indoors... Got inside and was by dinning chairs went I felt the MS hug.... It kept getting tighter and tighter, pins and needles started down both arms, pain in my chest...

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@Alice081

30 Apr 2025 22:44Last reply 30 Apr 2025 23:00

Hey I’m new on here and have not got a diagnosis my gp says my symptoms are related menspause I’m 45Some could be like fatigue struggling with hot flushes, but the lip twitching and numb feet in a morning tingling arm and having to think about swallowing and headaches worry me

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@runak

19 Apr 2025 02:08Last reply 19 Apr 2025 03:01

After taking my almost 2 years old from his crib, my shoulder and back got crazy stabbing pain, I feel like hot pain, and I could not move at all. Not even breathing. I am not sure is this happen because I carry him in a wrong way to it is MS. I got diagnosed in 2013 after I had double vision. Since then I didn’t took any medication. I had another attack on 2018 but I had no symptoms. I am so afraid of this new MS attack. I have little toddlers I have to take care of them :(. How is MS pain?

Alexandria, United States

First posted on the Shift.ms app

@not2bMSdwith

1 Apr 2025 16:30 EditedLast reply 7 Apr 2025 16:19

Ocrevus and Menstrual Cycle Absence

Ladies within child bearing ages on Ocrevus - **{ if you are not a woman, or a woman within child bearing age please keep scrolling.}** When you began Ocrevus did it disrupt your cycle? I took my first dose (full dose) of Ocrevus 1/31/2025. The first day of my last period was February 5th, no flow...

First posted on the Shift.ms app

@Kyekat

28 Mar 2025 11:06Last reply 31 Mar 2025 15:59

Temperature Regulation

Does anyone else have a hard time actually being able to warm up? I also get hot flushes and can’t cool myself down. Any advice for staying at a neutral temperature would be great. I’m 29 and live in the North of England where it’s always grey, cold & raining 🙈

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@jamescoke

27 Mar 2025 18:09Last reply 30 Mar 2025 16:29

Cannabis

Maybe I'm not up to date on this app but I was scrolling through some posts about pain and I was surprised that cannabis is rarely mentioned for pain management, sleep and general wellbeing. Personally it's made a massive difference in my own battle over the years for the better and I'm just surpris...

First posted on the Shift.ms app

@StillClaire

25 Mar 2025 21:54 Edited

Nobbly plastic or smooth metal hand rims on self propelled wheelchair?

Hi wheelchair using folk! I’ve tried a couple of lightweight, self-propelled wheelchairs (in Careco) and can’t decide if it will be best to get smooth metal hand rims- downside being they will be cold in the winter and potentially really hot in the summer. Or, plastic, nobbly rims- not so cold on ...

@emilymetcalf1

17 Mar 2025 02:45Last reply 17 Mar 2025 12:54

Does anyone experience more flares before you take your infusion?

I am suppose to get my infusion next month, but I feel like I am having a flare up. My body temperature has been off. For instance, I keep feeling cold and hot. When I feel hot, I feel like i am about to pass out. N my jaw and neck and my eye is starting to see spots. And out of the blue, I am feel...

First posted on the Shift.ms app

@Daciana

20 Feb 2025 03:04Last reply 20 Feb 2025 14:37

Vertigo

Hi! I have pretty extreme vertigo. I have done therapy for it and it helped a lot but it comes and goes. I had a test done where they blow hot and cold air into your ears. And my left side had a much weaker response. I am still waiting to get into an ENT to figure that out. Anybody else have experi...

First posted on the Shift.ms app

@nickp

6 Feb 2025 18:02Last reply 9 Feb 2025 19:53

MS or Not MS

I had optic Neuritis back in Nov 2023, MRI In December, I have 3 white matter leisons in my head and 1 down spine along with a mass in the head, In 2024 Jan. I had a hot shower and felt like I had crawlies in hair, down arms, shoulders and back, Feb 2024 I was called to watch out for a stroke, Ju...

First posted on the Shift.ms app

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