Hi! my name is Kim. I have had MS since 2013. Looking for some insight on how to live healthy with MS. If anyone can give me advise on who to talk to get to be healthy and what to eat and what exercises should be done.
Hey All!!
Im new to this App i have only recently branched out to find out more about MS and healthy living.
I got diagnosed with MS when i was 13 years old i am now 25. I went threw all of school not talking about my ms i talk to nobody as it was a rollercoaster getting diagnosed with Ms and findin...
I heard that cutting down on/cutting meat out of your diet can slow the progression of MS. Has anyone found that it's helped their symptoms at all please?
Legit willing to try anything at the moment 😂🤞🏻
#diet#healthyliving#meatfree#rrms
My experience of using cannabis as an alternative to using prescribed drugs to aid my MS symptoms.
Having been diagnosed with Multiple Sclerosis in April 2004, I have gone through Relapsing Remitting (RRMS), Secondary Progressive (SPMS) and now for the past couple of years find myself at the Prim...
So….
I saw the neuro and have just received ‘the letter’.
It says… “Possible sensory cervical transverse myelitis? …demyelination. I am awaiting an appointment for MRI’s on brain and c spine. Most of the tests he carried out seemed to not turn up any negative results. It says that the lower limb exa...
Morning all! Hope you are well. So as u may or may not know I am a qualified nutritionist. I have set up my own website and work at 2 clinics in London. I do also do skype consultations. Diet and healthy living is extremely important for everyone but especially when you have a condition like ours. A...
I applied for PIP in November. I went for an assessment in January and failed to qualify - scoring 2 0's. I reapplied (sorry can't think of the proper word :D) after failing and someone from the DWP called me on Monday and spent 25 minutes on the phone with me going through how MS affects my day t...
Hi guys! Glad to e-meet you all :)
So, it is my first post here and i would like to share some info and try and see if someone has an advice.
My MS is pretty “mild” in terms of physical manifestation (had two minor relapses in almost 8 years that left no long term damage) but psychological side of ...
I currently ambulate without any aids or anything. My gait and balance worsen if I’ve physically don’t too much,
BUT when I first wake in the morning I can hardly walk. I have a super Ataxic gait and it’s like my legs are pencils and won’t bend at the knees. I walk with the furniture to get to the ...
Hello, Any good suggestions for falling asleep??? Melatonin is a no go for me unfortunately.
Would love to hear other MSers thoughts on the topic.
Thanks,
Kathy
This is just a little rant...
PIP. What a waste of time! My decision letter arrived and the report wasn't even close to what I wrote and spoke about in the assessment. It doesn't even reflect the letter I sent in supporting evidence from my neurologist.
It's left me feeling like I've been complete...
Hoping this will be a fun, informational thread!
They may not have the same effect (or no effect 😅) on everyone, but I'm curious of people's experiences.
So besides the good ol' vitamin D, what supplements strike your fancy?
Hi y'all! I went on disability about 5 years ago as a result of this disease. I have done ok up until my last hospitalization for Optic Neuritis 6 months ago. The recovery was difficult and there was a move right after discharge.
I'm very fortunate to be on disability, I do very part-time work to ...
Hello. I just joined and I’m excited as I’ve never talked to anyone else that has MS (I have an estranged aunt that has it but we don’t speak).
I’m a 27 year old interior designer and set designer for film and television productions from Colorado, which has an unusually high number of people diag...
Hello. I just joined and I’m excited as I’ve never talked to anyone else that has MS (I have an estranged aunt that has it but we don’t speak).
I’m a 27 year old interior designer and set designer for film and television productions from Colorado, which has an unusually high number of people diag...
I am currently taking steroid tablets over 5 days at home. Those were prescribed by GP (it wasn't easy to get prescription) for very serious relapse - I wasn't able to walk. What is concerning, that my MS nurse advised me not to take them, only wait and see, maybe it will improve by itself! And that...
I recently received a gift of CBD gummys from a friend who has seen people with MS really benefit from it. I wanted to try it as an alternative to the Baclofen that leaves me feeling spaced out and confused. I’ve been taking tadalafil for years as part of treatment for priapism. The mix of the CBD ...
Who is interested in joining a zoom call for Ireland based people?
I would love to see some faces and maybe meet someone in person for a coffee one day. MS Ireland used to organise these meetings and cafe chats but they stopped with the pandemic.