#rrms - Shift.ms

14 Jul 2019 07:29Last reply 21 Jul 2019 16:36

RRMS

So I was diagnosed in march with RRMS because it's all new to me I'm not sure what's what,so what are the symptoms of a relapse? Thank you

20

@AngeShiftMS

20 Mar 2013 10:03Last reply 30 Sep 2013 16:01

Is anyone a relapsing remitter and DMD free? I've been having large and itchy site reactions with Copaxone, which last for weeks. I look like a battered woman when going to the swimming pool as I have all of these purple marks on my legs where the reaction hasn't fully gone...High dose antihistami...

33

@islandgal

24 Jun 2017 07:10Last reply 26 Jun 2017 12:44

Rrms or spms??

Iv got rrms diag 2015 relaped end of year and not too sure if iv had any since as iv felt bad lot on and off a lot so dealt with it.dmds offered constantly but not a fan so plodded on.ben going downhill a lot the last year moreso last 6 months im pretty dibilitated stuck at home now and all is way...

29

@ChezN87

2 Aug 2018 12:49Last reply 7 Aug 2018 15:25

Treatment for rrms

Not long back from the ms specialist clinic where I met the neurologist and my ms nurse (only took 3 months!) but they were talking about treatments I can take, they mentioned the biggie lemtrada, which sounds scary being in hospital plus the side effects being thyroid problems put me off, the other...

23

@BrokenDancer

27 Apr 2015 11:25Last reply 5 May 2015 09:04

PPMS => RRMS & stemcell trial

Hello, I just joined and I'm literally 3 days away from my MS 2nd Birthday and everything has changed! To cut a long story, I was diagnosed with PPMS, turns out I do have RRMS and I'm now involved in a stemcell trial. I'm actually waiting for my stemcells to grow now so I'm nervous, I think they ne...

21

@Vicky2826

8 Sep 2014 18:33Last reply 10 Sep 2014 18:03

Have defiantly got RRMS

Hi there been following site love how everyone is so helpful. Today found out I defiantly have RRMS. Consultant said I need to go on medication need to wait to see the MS nurse to get it sorted as currently on my 4 th relapse since April. So was just wondering what drugs anyone would recommend. I ha...

19

@DanRB80

16 Jan 2013 20:14Last reply 29 Jan 2013 15:38

RES RRMS???? & Tysabri

Just shocked by my first neuro appt follow up. They want to do second MRI within 12 months and mentioned stopping Copaxone and starting Tysabri i have had 2 disabling relapses withing 8 months and constant mini flare ups in between. What does all this mean?

18

@Nawal_Ibrahim

9 Aug 2017 09:06Last reply 3 Jan 2018 18:49

RRMS to SPMS?

Urm. First time I've wrote on here but I don't know this thought has been biting off my head. Does a continuous progression in symptoms like the inability to walk etc but no increase in lesion number mean that my MS has gone from relapse remitting to secondary progressive....

16

@mmhhpp

20 Jul 2017 14:32Last reply 26 Jul 2017 19:26

Rrms to spms

Hi all, i had my neuro appointment today. I have now transitioned to spms. They will stop fingolimod. I have been having that feeling for a while. I am really sad and mainly really scared about the speed of the decline. I was diagnosed in 2010 but i reallistic speaking had only 5 years until 2 years...

16

@StevenH67

13 Feb 2019 10:03Last reply 19 Mar 2019 13:28

Newly diagnosed with RRMS

Just thought I'd say hi and give a bit of background. I was diagnosed with CIS back in October 2016 at 49 years old after some very sudden numbness from my toes to my waist. Came as a huge surprise as I considered myself fit and healthyish, I had ran 10 miles the day before my symptoms started. Fast...

15

@Hartleybear

18 Aug 2018 07:30Last reply 20 Aug 2018 07:44

Newly diagnosed RRMS. Bladder query

Hi, Thanks for adding me to this group. I was recently diagnosed with MS. I had slurred speech which was treated with steroids. I've been having trouble passing urine, sometimes I go normally, other times I have to sit and wiggle before passing a pathetic amount of urine. Had a bladder scan but not ...

15

@Mererid

6 Aug 2014 11:34Last reply 11 Aug 2014 14:00

RRMS Disease Progression

Hi everyone, Apologies if this topic has come up on the board before, I haven't been mangaging to keep myself up-to-date. As an MS newbie with so much still to learn, I would really like to hear from people who've had MS for a while and have some stories to share about the progression of your RRMS...

14

@fourteen10

8 Apr 2014 08:51Last reply 9 Apr 2014 17:17

Diet and RRMS

I am newly diagnosed with RRMS although have probably had it for about four years without a medical definition. In those four years I ate pretty normally and was lucky enough to only have one real relapse (when I was finally diagnosed) and day-to-day balance problems, but I have been reading a lot a...

14

@sarahshift

26 Oct 2015 08:11Last reply 18 Dec 2015 12:12

Study on RRMS

Hi all, I've been contacted and asked to post this survey, more info below. Thanks Sarah "Opinion Health, an independent research agency based in London, is currently inviting people diagnosed with multiple sclerosis to take part in an online survey. This survey is designed to provide a bett...

13

@cheryl602

3 Jun 2020 11:05Last reply 4 Jun 2020 11:54

Newly diagnosed RRMS

Newly diagnosed with RRMS, worried about what the future holds Struggling to get my head around it

12

@cwe33

21 Oct 2021 21:20Last reply 26 Oct 2021 17:48

PPMS > RRMS

So after being initially diagnosed with PPMS (2019), it seems I have RRMS (2021) and soon to start Tacfideria - what’s everyone’s thoughts about this medication?

12

@Mrman93

20 Nov 2021 06:38 EditedLast reply 21 Nov 2021 23:38

Is RRMS turning into SPMS inevitable?

Hi everyone, I was recently diagnosed with MS this past August of 2021 after going through my first relapse in May. Since then I’ve started Ocrevus and have seen improvements in my symptoms which primarily affected my wrists. My question is with the new DMTS is the transition to Spms still a guaran...

12

@Elixir

10 Mar 2021 13:13 EditedLast reply 11 Mar 2021 21:51

Help, newly diagnosed RRMS

Hi there, I've recently been diagnosed with Relapsing/Remitting MS. My Papa (grandfather) had Primary Progressive MS and sadly died 2 years ago, due to UTI complications, which caused seizures and a coma. I first went into hospital in September, after I woke up with severe vertigo, migraine, naus...

12

@CLT

14 Nov 2017 14:46Last reply 16 Nov 2017 10:28

Considering a pregnancy with rrms

Hi All, Hope you are well. I am looking for some information or advice regarding pregnancy and how it affects ms. I have read that the relapse rate increases after birth. I just wanted to hear peoples experiences and try to get some positive perspective on it. I am looking to switch to copaxone befo...

11

@Felicityd

21 Aug 2017 16:52Last reply 29 Aug 2017 08:03

Hi newly diagnosed with rrms

Hi I'm really struggling with my diagnoses it is Normal to isn't it?

11