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I’m having a rough few weeks with my symptoms and think I have some new ones. I’m on Tysabri, had 4 sessions so it’s still early days and I don’t feel good. My normal dizziness, nerve pain, pins and needles (or stabbing!!) etc. are heightened but I now have gunky eyes (only way I can explain it) an...

I was diagnosed last year after MS throw. This week I have my first MRI since then (I take Tecfidera). And I'm stressed and scared, although I try to keep my nerves under control. It's still new to me. And besides, I'm a mother of a four-year-old and I want to be in the best condition for him.

Hello All, Since I was diagnosed with MS one of my biggest issues is to control my mood swings which I never had before. Where one minute i am good when talking to people/family, then I get so mad over the littlest thing which is really stupid to me but I can't let it go. Then I snap for no reason a...

I was diagnosed w MS back last year in August, after being taken to the hospital by my partner for falling unconscious & having my left side go numb. Since then I started in Kesimpta & Deluxetine for the nerve tingleness. I feel so alone as my partner & his family are the only ones that are understa...

Hello. I just joined and I’m excited as I’ve never talked to anyone else that has MS (I have an estranged aunt that has it but we don’t speak). I’m a 27 year old interior designer and set designer for film and television productions from Colorado, which has an unusually high number of people diag...

This is just a little rant... PIP. What a waste of time! My decision letter arrived and the report wasn't even close to what I wrote and spoke about in the assessment. It doesn't even reflect the letter I sent in supporting evidence from my neurologist. It's left me feeling like I've been complete...

Hi all I’m new to the site but not new to MS I’ve had it for over 25 years Initially relapsing remitting but now chronic progressive, or like my neurologist diagnosed me relapsing progressive because even though chronic progressive was my dx I’ve had a few relapses which were treated with massive s...

Hi everyone, I have to start Ocrelizumab in a few and honestly I'm really scared about side effects. Can you please your expercience about this medication? In late of this year or the next one, me and my partner want to have a baby, they said is quite safe, but still can be some risks. Thanks every...

Hi everyone 👋 I was wondering, how have you found building a good support network, and do you have a group of friends who have MS, who 'get where your coming from'? I regret not signing up to the buddy network on shift.ms after I got diagnosed (I don't think I really accepted it at first to be hone...

Me & my MS "everyone is different" phrase neurologists used adfinitum, I KNOW!!! I wanted to scream at them 😫 NOT MS advice🙂 My MS tale started 17 years ago, taken to my bed feeling wanting to throw up & intense nausia all the time. I had a lot of the classic symptons aswell-couldn't walk unaided,...

I’ve had MS for a long time, 25 years Was a family physician but retired 5 years ago on my neurologist‘s advice My world is sometimes good, sometimes not I’m just wanting some connection here Thanks I’m currently in Israel seeing my sister ( all sorts of special arrangements for special assistance...

It’s really hard to explain but I feel like MS is the least of my problems, pain, issues, etc. at least for the last 2 and a half years. One super stressful situation after another. and all completely out of our control…my husband and mine. Mother Nature can be a b*t*h Family can be the worst peo...

I recently got distracted this past December. After dealing with symptoms...speech issues...feeling my head tense up/roller coaster...using a walker. And now I went from being a school manager to being a stay st home mom (1 and 4) now I'm considered legally blind and just feel so stuck. Don't get m...

Happy Tuesday everyone! Just curious as to where everyone lives! I’m from Dallas, Texas, but a lot of my dear friends are global - Many are from the U.K. I’ve been a member here for awhile & have been following on Facebook & Twitter for years! BUT, I can’t believe it’s taken me so long to complet...

Hi 👋. I’ve been worrying for a while and as I’m the only one in my family with ms…. Do any off you guys ever feel like you have something stuck in your throat like your chocking it comes and goes and is it part off the ms ♥️

Hi, I am in near constant pain with my back. As soon as I start to walk, my back really hurts on my left side :( I can't walk far without being in a lot of pain and I can rest a bit, do a bit...but the pain means that going out isn't enjoyable or easy. I go on holiday at the end of May for a wee...

When someone asks me about MS, if they know anything, it's usually that it affects a person's ability to walk. If only it was that simple....We (MSers) have a little of almost every disease to deal with. Think about it - the brain controls everything the body does. MS causes brain damage and causes ...

I feel guilty every single day. I have 2 boys ages 18 and 14. I sometimes cry because bc I feel like they’re missing out on having a “normal” mom. My boys are the best! As soon as we park they immediately get out of the car and get my walker for me. As much as I love and appreciate them for their ki...

Has anyone else experienced severe abdominal pain requiring you to go to hospital? I’ve had a lot of tests and even surgery to find out the problem but nothing is coming back. I was just wondering has anyone else ever experienced this type of issue: severe bloating, inability to eat, nausea, vomitin...

Just bin shopping with my kids and it was really busy and kids kept showing me lots of bits to buy my eyes felt like they were shaking because there was so much movement? Any 1 eyes had that ?