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I've had trigeminal neuralgia since 2015 when I was diagnosed. It's become a bit more prominent and a problem in my life since my MS diagnosis. I was previously on tegretol (carbamazapine) for a period of time, unfortunately that stopped working even when increasing. I was then given the option of...

I had my first child in February this year, and unfortunately within the first 3 months, we call danger zone for MS patients after pregnancy, I ended up relapsing. Hasn't been an easy ride for me as of late, although I'm very much on cloud 9 with my little family and the new role as mum I had a rec...

Hi everyone, recently diagnosed with relapsing remitting MS. It is something I am very familiar with as 3 other members of my family have it. Just wanted to check in and say hello 👋

I have been in a relationship with my partner for 9 years, we were together for about 1.5 years when the MS hit bad, he stuck through it, not without upset, but here we are 9 years later, when we get into arguments it always reverts back to “I stuck with you through your illness” which I take on bo...

My dad died in 2001 from ms, 5 years after diagnosis. Last August I was diagnosed with ms by a private neurologist. I was then referred to nhs neurologist who I saw in November. Since then I’ve had an mri and am waiting for a lumber puncture. I’ve had great help from the nurse, physio and OT but I’m...

Hi everyone. I am so glad this app exists and grateful for all of you who take the time to write. I have to decide between the 4 high efficacy treatments very soon and I'm leaning towards lemtrada. I am however a bit scared of the unknown, how am I going to react to the infusions, isolating the 1 m...

My birthday wish has come true, I should be having HSCT this year!! although it is over the Christmas period, I am still so grateful to be having it. LETS GOOOO

Good morning all hope all is well, I will like to know if anyone is struggling with mental health since they was Diagnosed with MS? I am asking because since I was diagnosed my mental health has been off so bad, maybe it is because I seem not to know how to except it fully especially when my little ...

This is my first time posting on here and I'm feeling quite depressed and scared about talking about it. I am 25, have been diagnosed with MS as of the 25th of March. I know its been less than a month since my diagnosis but I still can't come to terms with it. I can hardly say out loud that I have...

Having had my ocrecus 2 days ago i was hoping to have more of a spring in my step and find myself in the dumps again 😔 I could have survived not having a family of my own, i could have survived not having a dog but not this..not even being able to dance is gutting,,i look at photos around the hou...