Avonex
Hi All! Is anybody really struggling with Avonex? Side effects and actually doing the injection? For the last few months I have sat in tears every injection night and having a panic attack trying to do it. Last night it was so bad I just couldn't do it. I've tried getting someone else to do it and also had counselling, nothing has helped. The side effects also really floor me, I am still trying to go about my normal life the day after injection but feel ill.
I called my MS nurse this morning who thinks I should possibly change treatment but the options are Tecfideria and Aubagio. I'm 26 with no kids and plan on having them in the future so these options sort of limit me, especially Aubagio as mu nurse said it’s still in your system 5 years after coming off it. I just don't know what to do.
Has anybody experienced this? I feel quite lost atm.
Totally. I lasted on Avonex for 12 weeks. I managed to swap, but it took me another 9 months. That’s how long it took to see my neurologist. It was covid at the time. I would definitely recommend switching if you are unhappy with Avonex. There are other options and if you plan to have a baby I totally recommend speaking with your clinician. All the best.
@Clary it’s horrible. I was absolutely fine the first few months then I just hit a wall with it. I’m due to see my neurologist in March so I may have to take a pause before then. Thanks for your help x