#work and play - Shift.ms

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Any MS diets?

Does anyone follow/recommend any sort of special anti-inflammatory diet for those with MS? I'm pretty healthy don't drink, don't smoke and practice very low impact yoga. I just wondered if anyone on here swears by a specific diet. Thank you x #diet #workandplay #nystagmus #tremor #yoga

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@TonyMS47

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Work and play

You know that thing with MS where they tell you not to overdo chores ETC? Well I think I have over done it...BLAHHHH :o/

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@DuncanPercy

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Hi 59 year old finally waking up to the challenges MS presents

My MS journey started in 1989 with what transpired to be optic neuritis. Living in London in a bachelor pad that resembled a scene from the movie Animal House after a major relapse and a dose of steroids life went on. Yes rugby was a non starter but the chaos of a 20 year old continued at a ridiculo...

2

@Tia_q

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👋

Hello fellow MSers Nice to meet you all. Newbie MSer here. I am usually nervous when joining group but I came across Shift MS by chance and appreciate I found a place where others have questions and worries that I also share. It's refreshing since those around me sympathise but don't understand. ...

5

@Will_Berard

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Send pictures of cats!

I thought I knew #ChronicPain ( and I don't mean being unable to score some sticky Icky) Then, during a month long attack of #sciatica (not my first) I developed a fucked ankle (not a medical term) - presumably #MS #spasticity in the peroneal muscle (shin/calf - not per_I_neal!). Can't walk (got t...

First posted on the Shift.ms app

4

@ashia2013

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PIP review anxiety

Anyone else get a dreaded brown envelope arrive on the doormat and think 'great another fight to face!' I think the endless reviews of Personal Independence Payment for those of us with MS is absolutely disgusting! I mean did I miss something? Or is there suddenly a cure for Multiple Sclerosis that ...

16

@Amunet60

My Amazing husband did this

He created the music and the artwork...everything. I'd be soooo grateful if you would listen/like/follow... https://open.spotify.com/album/6DrG6eOXPqCWW3MR9osdVO Sorry, sorry, sorry if I’m breaking any rules. I’m so heart-breakingly-hyper-happy-proud. EXPLANATION BELOW: So… Secondary Progressive...

Cardiff, UK

@Leahdanielle

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Immune system

Hi all, Do you think MS or the drugs play with your immune system. I work full time and in a school and always seem to get hit quite bad with colds, coughs, throat problems. Can it be classed as connected to MS? Worried about having time off.

5

@Sarah_Dawn_Lewis

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What a weekend...

Well after looking forward to having my first Easter weekend off work for 7 years my MS has played up. Started with pain in my left hand and an ice pack seemed to help with this. Went back to work Friday night and the pain had spread all the way up my left arm and the lower half felt like it was bur...

4

@Jimmy369VT

Since I have moved to Florida from Vermont, I have been learning a lot more about MS as it’s whole until I actually found a neurologist that was actually specializing in MS. I did not know that not only is it a nervous system problem, but it is also autoimmune and I did not know That extreme cold and extreme heat can actually make flareups worse and if it is hereditary, it can also make the MS come out quicker. I did not know that I did 13 years making snow at a ski resort in Vermont and then when I moved to Florida, I did Five years underground construction and I always wondered why I felt funny and triple digit heat, but it wasn’t heat stroke, and there were days where if it got below zero or into the negative temperatures, my body would tighten up intense up like I was getting squished by a bow constrictor. I went years until my primary care physician told me to go see a neurologist, and then he gave me the evaluation told me to take an MRI. They did not find anything in my spine, but my brain said a lot is what the neurologist said, and then he started poking and stab in the bottom of my feet with stuff and doing a tuning fork all over my body and when I told him I couldn’t feel it in certain spots and then in other spots, I could just slightly feel it or it just felt like a ant crawling on my leg or on the top of my foot. I’ve never seen anybody that evaluated me for anything get so concerned, looking on their face and then now he wants me to do a spinal tap, which I am doing August 8. I already know it’s not going to be like the movies or television shows where it’s gonna be excruciating painful off the back. It’s going to be the next day. I’m going to have to recuperate. I have several family members with MS as well so they are kind enough to give me peace of mind explaining to me how they felt after all the stuff they had to do and I am pretty much doing the same thing and my neurologist did put me on something. I can’t remember the name of it or pronounce it but my flareup weren’t so bad, but then my colitis started getting worse so he took me off it and now as long as I just stick to easy tasks, I’m not so bad but it hurts sometimes to move. I can relate to how my mom felt towards the end now, she said she was in so much pain, but because her mind was slipping back into a childish state of mind. She had good spirits about her. My dad just turned into a zombie and he said that he only focused on walls or focused on watching a television show because it was the only way he could control the pain. I meditate to help with my pain and I listen to the doctors and follow my prescription regiment, but there are still days where it feels like I got hit by a truck and I just stood up out of bed. The scary days are when I can’t get out of bed altogether. I do not know if anybody else has ever felt like this, but there are days where I wouldn’t wish this on my worst enemy and to get places of business to understand what you’re going through and to explain to them OK if you have me do these tasks then don’t expect me to come to work tomorrow because I won’t be able to move. I have been rejected so many times my wife just finally decided to fill out for disability and now between my attorneys and Social Security I have my doctors not only giving me tests and labs for their peace of mind but now I have them filling out papers and forms for my attorneys and Social Security and it’s been like that for almost 3 years now every time I think we’re getting close I have more papers in the mail for my doctors to fill out or my neurologist there are days where I just wanna give up but then I think about what it would do to my family and then I sit with my son and play video gamesuntil the feeling goes away, and I snapped back into my normal self

First posted on the Shift.ms app

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