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Hi all! Just got diagnosed a week ago, was put on a 3-day steroid course, and now most of my symptoms feel worse than before 🫠 Also I’ve never had this much acne!! What was your experience with steroid withdrawal? Have the symptoms improved eventually? 🥲

Hi guys Ive been on tecfidera for just over 3 years and have now stopped to change over to Copaxone which im starting in a few weeks. Ive been of tec for over a week and since then ive had quite a few headaches, nausea and feeling cold all the time. Has anyone else known to have ‘withdrawal’ sympto...

I stopped taking Aubagio a few days ago because I've just had my 4th relapse since starting Aubagio in 1/12 so I was advised to d/c it. Over the last few days my balance has worsened dramatically & the bizarre head pains are making me a tad nutty. I'm sure it's partially my imagination but it fe...

Hi, just wondering if weekly DMT can cause headaches. I have noticed every week I wake up with a headache just before I take my DMT. The day or now the day before. Could just be a headache or caused by MS. It is driving me crazy. Luckily paracetamol helps. So I just keep taking the drugs. 🤷‍♀️ Head...

Hello, So I found this website because I needed support. Meanwhile found help and this help decided to push me towards Lemtrada. I was reading a post a couple of weeks back about how Lemtrada changed that person's life, and how it helped others and how others are going to fight to get it. So Questi...

So I stopped gabapentin ages ago as I was trying to figure out what was causing my breathing issues (wasn’t that but good ol’ ms) but the nerve pain and numbness came back with a vengeance. I started Pregabalin but am now withdrawal-ing from that since yesterday. The blurry eyes, dizziness and thump...

I need my ms buddies to give me the run down on what med they take. Tysabri was great I only had 1 infusion a neuro gave it to me while I was recovering from a relapse in March (he took me under his wing so to say) but I moved to Clarksville and the after effects of not having it for about three mon...

I've had MS for 23 years and I've had every single symptom it's possible to have. As there were no drugs available when I was diagnosed and no internet or mobile phones, it was a very lonely time. I started Tysabri 9 years ago and it has been brilliant. However, 14 years without any treatment and 3 ...

What do you do for relief when you're in so much pain and neuropathy, that it feels like you're in drug withdrawal...in the middle of the night? I'm only on Neurontin, Advil and LOTS of Chamomile Tea! I just woke from a nap, but had a terrible night. (Time to get back to stuffing eggs for church!)

Last week my doctor took me off my Klozepam by Friday I was in a panic my heart was pounding! I went hospital, they did an EKG and a heart x-ray, took my blood work and let me sit until they understood what was going on with me, I was only going through withdrawal they said, they gave me two of my m...