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Recent activityNewest posts

@sonyae 

29 Jun 2023 17:55Last reply 7 Aug 2023 12:42

sonyae

Steroid withdrawal

Hi all! Just got diagnosed a week ago, was put on a 3-day steroid course, and now most of my symptoms feel worse than before 🫠 Also I’ve never had this much acne!! What was your experience with steroid withdrawal? Have the symptoms improved eventually? 🥲
  • Symptoms
  • Diagnosis
  • Newly diagnosed
  • Treatment
  • Relapses
15

@Clary 

27 May 2021 08:17

Clary

? Withdrawal headache

Hi, just wondering if weekly DMT can cause headaches. I have noticed every week I wake up with a headache just before I take my DMT. The day or now the day before. Could just be a headache or caused by MS. It is driving me crazy. Luckily paracetamol helps. So I just keep taking the drugs. 🤷‍♀️ Head...
  • Which DMT
  • Treatment
  • Fun drugs
  • Work and play
  • Symptoms
  • Dizziness

@Rekha 

10 Oct 2019 05:07Last reply 10 Oct 2019 16:56

Rekha

Withdrawal from stopping tecfidera?

Hi guys Ive been on tecfidera for just over 3 years and have now stopped to change over to Copaxone which im starting in a few weeks. Ive been of tec for over a week and since then ive had quite a few headaches, nausea and feeling cold all the time. Has anyone else known to have ‘withdrawal’ sympto...
  • Symptoms
  • Dizziness
  • Hot and cold
  • Treatment
  • Copaxone
  • Tecfidera
2

@Pita 

29 Sep 2015 17:48

Pita

Aubagio withdrawal?

I stopped taking Aubagio a few days ago because I've just had my 4th relapse since starting Aubagio in 1/12 so I was advised to d/c it. Over the last few days my balance has worsened dramatically & the bizarre head pains are making me a tad nutty. I'm sure it's partially my imagination but it fe...
  • Symptoms
  • Relapses
  • Aubagio
  • Balance
  • Treatment
  • Brain fog

@Rachmp 

5 Feb 2024 22:37Last reply 6 Feb 2024 14:54

Rachmp

Methylprednisolene 500mg x 5 days

I was diagnosed with MS at the end of November & am currently awaiting my appointment with the MS nurse to discuss DMD treatment options. In the meantime I was offered a short 5 day steroid course….currently on day 4 but am now concerned by some stories I’ve read regarding dreadful withdrawal sympto...
Cornwall, UK
  • Treatment
  • Newly diagnosed
  • Which DMT
  • Diagnosis
  • Symptoms
  • Relapsing remitting
  • MRI
  • Healthy living
  • Steroids
  • Relapses
5

@RosieM 

30 Jan 2024 11:55 EditedLast reply 30 Jan 2024 12:29

RosieM

Baclofen use in pregnancy

Has anyone here been on Baclofen during their pregnancy and how was the baby afterwards? I know it can cause neonatal withdrawals and I'm freaking out. I tried to drop back my dosage but ended up not being able to walk very well and in a lot of pain. My obstitrician wants me to stay on it (currently...
Dublin, Ireland
  • Symptoms
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  • Family and children
  • Work and play
  • Healthy living
  • Pregnancy
  • Relapses
  • Exercise
  • Accessibility
  • Which DMT
1

@jacob 

12 Sep 2023 18:17Last reply 13 Sep 2023 16:40

jacob

Neuropathic pain, does anything actually work for anyone?

Hi everyone, The pregabalin was doing nothing for me except making my bladder worse, so I have been titrating off it for the last two months after almost two years on it. I had my last dose yesterday and I'm really feeling the withdrawal today but I'm just going to have to ride this feeling out as ...
Edinburgh, UK
  • Work and play
  • Symptoms
  • Pain
  • Bladder and bowel
  • Mental health
  • Mind and body
3

@facemanfacey 

31 Aug 2023 14:08Last reply 31 Aug 2023 15:35

facemanfacey

Ocrevus "wearing-off phenomenon"

who has this? or has a snappier name for it? i have my next dose, my first full one since the 2 starter halfs, and i'm bad. like walking bad, spasdicity bad, fatigue bad, the worst its ever been. Funnily enough ive also not needed as much pain medication which is a massive plus (its not withdra...
Grimsby, UK
  • Symptoms
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  • Exercise
  • Fatigue
  • Pain
  • Mental health
  • Work and play
  • Treatment
  • Work and Study
3

@BULLMAN 

29 Dec 2022 11:31Last reply 29 Dec 2022 12:03

BULLMAN

Today’s post

This old lady handed her bank card to the teller and said "I would like to withdraw $10". The teller told her "For withdrawals less than $100, Please use the ATM." The old lady wanted to know why... The teller returned her bank card and irritably told her "These are the rules, please leave if there...
  • Disclosure
  • Diagnosis
  • Work and play
  • Symptoms
  • Money
  • Balance
  • Relapses
  • Accessibility
  • Family and children
  • Fun drugs
1

@rachela 

16 Dec 2022 13:28Last reply 16 Dec 2022 14:09

rachela

Gabapentin

Well, it seems like I will never learn. With various obstacles in my way to actually pick up my prescription in time I ended up missing 3 doses...and wow has it made me feel like crap! Yesterday I was utterly, totally and completely wiped out. I was living in this fog of exhaustion that I can't qu...
  • Symptoms
  • Going out
  • Work and play
  • Mental health
  • Pain
  • Relapses
  • Which DMT
3
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