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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@sonyae 

Last reply

sonyae

Steroid withdrawal

Hi all! Just got diagnosed a week ago, was put on a 3-day steroid course, and now most of my symptoms feel worse than before 🫠 Also I’ve never had this much acne!! What was your experience with steroid withdrawal? Have the symptoms improved eventually? 🥲
  • Symptoms
  • Diagnosis
  • Newly diagnosed
  • Treatment
  • Relapses
15

@Clary 

Clary

? Withdrawal headache

Hi, just wondering if weekly DMT can cause headaches. I have noticed every week I wake up with a headache just before I take my DMT. The day or now the day before. Could just be a headache or caused by MS. It is driving me crazy. Luckily paracetamol helps. So I just keep taking the drugs. 🤷‍♀️ Head...
  • Which DMT
  • Treatment
  • Fun drugs
  • Work and play
  • Symptoms
  • Dizziness

@Rekha 

Last reply

Rekha

Withdrawal from stopping tecfidera?

Hi guys Ive been on tecfidera for just over 3 years and have now stopped to change over to Copaxone which im starting in a few weeks. Ive been of tec for over a week and since then ive had quite a few headaches, nausea and feeling cold all the time. Has anyone else known to have ‘withdrawal’ sympto...
  • Symptoms
  • Dizziness
  • Hot and cold
  • Treatment
  • Copaxone
  • Tecfidera
2

@Pita 

Pita

Aubagio withdrawal?

I stopped taking Aubagio a few days ago because I've just had my 4th relapse since starting Aubagio in 1/12 so I was advised to d/c it. Over the last few days my balance has worsened dramatically & the bizarre head pains are making me a tad nutty. I'm sure it's partially my imagination but it fe...
  • Symptoms
  • Relapses
  • Aubagio
  • Balance
  • Treatment
  • Brain fog

@ilovems 

ilovems

Does Multiple Sclerosis make you cranky?

I asked artificial intelligence because I am so cranky I can barely stand being around myself. Short answer: yes, it can. But not in a simple “bad mood” way. Multiple sclerosis (MS) is a neurological disease that affects the central nervous system. When brain regions involved in mood regulation ar...
First posted on the Shift.ms app

@Angie03 

EditedLast reply

Angie03

A letter to MS..

Dear MS, Our story came out of the blue and you were found by accident. One minute i was having surgery for removal of endometriosis to then being bed bound with back pain and pins n needles down my right leg. I saw a pain management who did the MRI scans to be told its 99% MS with many lesions on ...
First posted on the Shift.ms app
4

@RobH85 

Last reply

RobH85

Anyone come off Duloxetine?

Recently just finished coming off Duloxetine, was taking 160mg, and now I'm coming off Carbamazepine aswell and my head is a mess. Pain hasn't gone up so they obviously weren't doing anything for the pain but I feel so angry, irritable and just numb to everything, then out of no where I'll nearly bu...
First posted on the Shift.ms app
3

@shellyEd 

Last reply

shellyEd

Baclofen

Warning to baclofen users. I ran out of my medicine for more than two weeks before I received a new prescription from my Doc. I have been noticing an increase of spams and they are more severe. Apparently when you suddenly stop taking it the body can go through withdrawal and increase muscle spasms....
First posted on the Shift.ms app
5

@Rachmp 

Last reply

Rachmp

Methylprednisolene 500mg x 5 days

I was diagnosed with MS at the end of November & am currently awaiting my appointment with the MS nurse to discuss DMD treatment options. In the meantime I was offered a short 5 day steroid course….currently on day 4 but am now concerned by some stories I’ve read regarding dreadful withdrawal sympto...
Cornwall, UK
  • Treatment
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  • Healthy living
  • Steroids
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5

@RosieM 

EditedLast reply

RosieM

Baclofen use in pregnancy

Has anyone here been on Baclofen during their pregnancy and how was the baby afterwards? I know it can cause neonatal withdrawals and I'm freaking out. I tried to drop back my dosage but ended up not being able to walk very well and in a lot of pain. My obstitrician wants me to stay on it (currently...
Dublin, Ireland
  • Symptoms
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1
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