Ocrevus "wearing-off phenomenon"
who has this? or has a snappier name for it?
i have my next dose, my first full one since the 2 starter halfs, and i'm bad. like walking bad, spasdicity bad, fatigue bad, the worst its ever been.
Funnily enough ive also not needed as much pain medication which is a massive plus (its not withdrawals before you ask!).
mental health done downhill due to worsoning symptoms, feeling embarrased but congnative abilities have not got worse, but not any better.
having a quick mooch around the internet, i found that this is a very common thing? i just want to see if anyone would like to share their thoughts or experiences?
Thomas ☓
It’s called the crap gap. 🤦🏻♀️ I think most people get it with ocrevus
I just had my first full dose in June and yes crap gap was in full force the 2 weeks before hand . was like a fresh daisy within 48hrs of my infusion until 3 weeks later I finally caught the RONA for the first time . Was in a pub for the first time in 3 years #MurphysLaw