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We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@gary1978 

EditedLast reply

gary1978

Hi warriors I'm gary nice to meet you all ive been fighting ms for 15 years I was wondering if anyone has any other advice on any other medication I could try as unfortunately for me ive tried everything that ive been prescribed and unfortunately nothing has helped in my situation I have burningand stinging sensation in both feet and legs and I have the ms hug constantly

First posted on the Shift.ms app
16

@ronaldamartin81 

Last reply

ronaldamartin81

Fighting MS

I’ve been heavy-set my entire memory. As a larger man I really wasn’t prepared to what MS does to me physically but how it can sabotage me emotionally. Diagnosed in 2017 I started with Avonex which I learned flu-like symptoms are not okay to have everyday. 2018 tecfidera was more palatable but went ...
  • Symptoms
  • Treatment
  • Balance
  • Work and play
  • Newly diagnosed
  • Diagnosis
  • Avonex
  • Mental health
  • Exercise
  • Accessibility
5

@txteacher75 

Last reply

txteacher75

Hello all! I’ve been fighting MS for 32 years.

I have been feeling more like a burden than a person lately. The depths of depression are so dark but I don’t feel like I can tell anyone because that would only be adding to the burden.
  • Diagnosis
  • Disclosure
  • Symptoms
  • Mental health
5

@A_Girls_Gotta_Eat 

A_Girls_Gotta_Eat

FIGHTING MS

MS has done a great job at sopping my life but I've managed to create this website www.agirlsgottaeat.co.uk to motivate me and remind me that there is still something to look forward to! It's all recipes e.t.c. Please take a look if you love food or wish to support !
  • Work and play
  • Work and Study
  • Healthy living

@R-F-J 

R-F-J

20+ A day....

My latest blog 20 a day is below. I'm having a rough time with infections at the moment (UTI's mainly) and just finished anti-biotics (again), however there are some positives with all the funding now raised for my wheelchair.... https://fightingms.uk/2024/06/29/blog-24-20-a-day/
Corsham, UK
  • Accessibility
  • Work and play
  • Symptoms
  • Balance
  • Bladder and bowel
  • Healthy living

@R-F-J 

R-F-J

Botox the next step....

So following yet another flexible cystoscopy following more bladder issues on top of my Super Pubic Catheter (SPC), they could not find any bladder or prostate stones, so the next step is to have a botox injection into my bladder to try and cancel the spasms and pain and caused leakage. My latest bl...
  • Bladder and bowel
  • Symptoms
  • Pain
  • Spasticity
  • Treatment
  • Betaferon
  • Extavia

@R-F-J 

Last reply

R-F-J

Too close for comfort

Sharing from my blog of a recent hospital experience, (https//:fightingms.uk) Too close for comfort Comfort, it’s not really the best word, yes I would love to be content and comfortable, but that certainly hasn’t been the case lately, far from it! Living with Primary Progressive MS, is not easy a...
  • Symptoms
  • Work and play
  • Pain
  • Treatment
  • Fun drugs
  • Mental health
  • Relationships
  • Healthy living
  • Exercise
  • Diet
8

@R-F-J 

R-F-J

Pain v Pain

I've been struggling a lot lately, so I wrote about it... See my blog below. I am safe and getting help, but a real battle... https://fightingms.uk/2023/11/09/pain/
Corsham, UK
  • Symptoms
  • Pain
  • Work and play

@R-F-J 

Last reply

R-F-J

New beginnings....

its been a few weeks since last posting and getting used to the element of retirement to a degree. Hating the heat at the moment and dog tired, but pushing through. Haven't had the "crap gap" yet with Ocrevus and less than 10 days to go till my infusion.... I have now started (as of today, working ...
Bath, UK
  • Fatigue
  • Symptoms
  • Treatment
  • Ocrevus
  • Hot and cold
2

@R-F-J 

EditedLast reply

R-F-J

In limbo land

The last few weeks have been hard as I face severance at work on medical grounds, plenty to worry about, so a few (well maybe more than a few) words to explain it all..... At present I am in limbo land, waiting for dates and final decisions regarding my future. Ill health retirement or severance o...
Bristol, United Kingdom
  • Work and play
  • Symptoms
  • Limbo land
  • Relapses
  • Pain
  • Exercise
  • Family and children
  • Diagnosis
  • Mental health
  • Healthy living
6
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