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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@RonWils40 

Last reply

RonWils40

New here just saying hi 👋

Hello everyone, I've had ppms for 11 years this August, my old life without seems a distant memory... it's not all bad having Ms 💪🏼😁
First posted on the Shift.ms app
20

@maz1172 

maz1172

Yeah I had many diagnosis, Positional Vertigo acute aneamia a

I had to have a Lumbar puncture to confirm MS. I went through 10years of feeling no one believed me, that I was just looking for time off work. Even had to wear pressure stockings for 2 yrs, & yeah didn't even help, just made an expense which was unnecessary. Mine is PPMS, the only thing I've been ...
Leeds, United Kingdom

@Craig1 

Last reply

Craig1

PPMS

PPMS anyone? It seems to be a rare thing. Has anyone been given any medication for this ? Just wondering what lays ahead.
First posted on the Shift.ms app
7

@bugsy 

bugsy

A long wait.............

No, I was never misdiagnosed but, once I went to my Dr. with the symptons, it took him 10 yrs. before I was told I had PPMS. I was very upset with this Dr. as he always made me feel like I was wasting his time at each appt. Lorna
Winnipeg, Canada

@bidderz1 

bidderz1

Mis diagnosis

After a pituitary tumour was removed I had a condition called Cushings Disease which has similar symptoms to MS . After saying I still didn't feel well , by pure chance a doctor decided to look a my MRI's and tests it was discovered that I had PPMS .
Weston-super-Mare, United Kingdom

@GerardMcC1 

Last reply

GerardMcC1

Disc Bulge

Hello All, I have PPMS - I think at least five or six years but diagnosed just over two. An MRI around three months ago showed a disc bulge on L4/5 which causes regular pain - especially in night/mornings and weakness on that side (right) and thus mobility and balance issues. I know three non-MS fri...
Belfast, United Kingdom
6

@sdown1970 

Last reply

sdown1970

Hi, I’m Shannon and new to the group. I’m 54 and was diagnosed with PPMS when I was 19. I’m wondering if anyone else feels that Menopause is making your symptoms worse? Thank you!

First posted on the Shift.ms app
9

@bugsy 

bugsy

Any activity is a chore for me!

I am 78 yrs. old and use a wheelchair outside of my home and a wheelchair inside the house. I have fallen a few times lately and I have to be extra cafeful when I move around. I have PPMS & I feel like I have reached my limit. I have an stretchy band that I try & use weekly. Exercises with a chair...
Winnipeg, Canada

@Nando10 

EditedLast reply

Nando10

Anyone?

I have been fighting with PPMS now for 16 years the left side of my body is falling me could you all recommend an exercise for my hand and leg please?
First posted on the Shift.ms app
2

@Dnorwood 

Dnorwood

PPMS

I’m just wondering if anyone with PPMS has anything that they’ve tried. This is a new experience for me so I’m open to suggestions that’ll help.
First posted on the Shift.ms app
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