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I know how the cold weather affects me, I get a lot of pain. However, I’ve been under the impression that I’m not affected by heat or hot weather. That being said, today’s weather has been lovely, and I felt nothing but fatigue whenever I’ve tried to do anything and remembered that a hot bath can l...

I'm terrified..for the past two nights my right thigh gets tingly,numb and hot or cold (I can't really differentiate) it happens when I go to bed.It goes away when I get up and doesn't return till bedtime.My MRI was mild and my nerve tests were excellent so I'm confused and I'm afraid my leg will gi...

Feeling Defeated 💔 I was admitted for an MS flare (C1 lesion) on Sept 29 and released Oct 3. They gave me oral steroids instead of IV — and since coming home I’ve gotten worse. Now I’m dealing with weakness, hot/cold swings, mouth numbness & loss of taste, right arm tingling, nausea, rib/back pain...

Hey, just wondering how others generally feel after their infusion of ocrevus or if it’s just because it was my first one. I basically slept for around 24 hours with little wake time afterwards, fatigued, right arm/hand and leg are pretty numb, feel like my sight is off, headache, hot & cold, genera...

This will be my 2nd relapse in 4 months and I didn’t expect another for a while as from as far as I know it’s on average twice a year but I had optic neuritis in July and I believe I also had one in March which caused unbelievably bad vertigo. Woke up this morning to my left leg unable to feel any t...

Hey all, I have this problem and will try to establish a summary; Tuesday i see my neuro to have an honest, serious talk about the way he behaves towards me. Only thing, he doesn't know yet and will not have seen this comming. Last week, i had the 6moths checkup with my nurse. With neuro himself i...

Hi all, I'm not having much luck in my googling to help me process & understand what went down during my 1st infusion this Monday! When I got to just under 1/2 of my first dose (so, less than 1/4 of what I would be getting on an ongoing six monthly basis), my blood pressure dropped then I felt woo...

Does anyone else find that they have no sense of temperature. Whether it’s hot or cold. I find myself not noticing as to whether the outside or room temperature is cold (winter in uk) just people are wrapped in in hats, gloves, thick coats etc then there’s me in shorts and tshirt often with a body ...

So in Nov 2021 I woke up with a numb bottom and foot, brushed it off that I had slept funny. Next morning symptoms worse so went to Doctors, sent to my local hospital and given an mri they did no see Anything and sent me home. Next morning woke up wobbly legs pins needles in legs, went back to hospi...

Hi everyone! My name is Alex. I'm an MS Warrior diagnosed in 2015. I'm sure you all understand these were not the easiest 7 years of my life. After getting my diagnosis, I was almost mindlessly trying every approach and solution I could find online. Different MS medications, homeopathy, countless di...