I get very hot, to the point where i go limp and weaker. I have to have fresh air but my mum who i live with sits with a blanket, could be m s related, i am 43 so im i just starting with that time of live??? 😳
I’ve been off the app for a while but I love a good hot vs cold deep dive.
I HATE the cold with my entire being…autumn/winter is the absolute worst for me because it makes me feel like a literal slug, every movement is a chore and I nap like a hibernating bear but in the summer months there is a m...
Hi, i feel like the new kid on the block, having only received my MS diagnosis a couple of months back and am waiting for my first infusion.
I’m in NZ and we’re heading into winter so I’m grateful for the cooler weather, and how it reduces the symptoms.
Speaking of which i am finding that having...
Hi everyone! I have RRMS and I found out that I had MS after going completely numb on my left side. Even then the Doctor was still uncertain and chose to call it Tranverse Myelitis. 5 years later, same symptoms. Only this time, I was sensitive to hot and cold. I had an MRI, Spinal tap, and evoked po...
Last night was scary... I had just come in from the garden, stood up and felt of balanced and legs went to jelly, took a slow walk indoors... Got inside and was by dinning chairs went I felt the MS hug.... It kept getting tighter and tighter, pins and needles started down both arms, pain in my chest...
Ladies within child bearing ages on Ocrevus -
**{ if you are not a woman, or a woman within child bearing age please keep scrolling.}**
When you began Ocrevus did it disrupt your cycle? I took my first dose (full dose) of Ocrevus 1/31/2025. The first day of my last period was February 5th, no flow...
Does anyone else have a hard time actually being able to warm up? I also get hot flushes and can’t cool myself down. Any advice for staying at a neutral temperature would be great.
I’m 29 and live in the North of England where it’s always grey, cold & raining 🙈
Maybe I'm not up to date on this app but I was scrolling through some posts about pain and I was surprised that cannabis is rarely mentioned for pain management, sleep and general wellbeing. Personally it's made a massive difference in my own battle over the years for the better and I'm just surpris...