Shift.ms

2 Jun 2025 19:49

Shortness of breath

Hi everyone, On top of being extremely exhausted all of the time, pains, headaches , dizziness , off balanced, etc, I am starting to get shortness of breath if I am doing anything that involves a little bit of exertion. Has anyone else had this with MS? I still haven't been clinically diagnosed yet...

First posted on the Shift.ms app

@Benk

2 Jun 2025 17:47Last reply 2 Jun 2025 18:34

New to this

Hi I thought I would introduce myself Firstly, thank you for letting me in to your community I have not yet been diagnosed but I have been referred to a MS specialist team by my neurologist due to having legions in both my spinal cord and brain, as well as fatigue, PEM,memory issues, spasticity in...

First posted on the Shift.ms app

@Henrietta

2 Jun 2025 17:30Last reply 3 Jun 2025 10:09

Complacency comes before a fall…

Oh. Diagnosed 2020 aged 56. On Aubagio ever since. MRIs stable, no new symptoms, no new lesions. Had my annual MRI on Friday prior to my annual check up on July 1st. And then bam, call from MS neuro out of the blue requesting I go see him tomorrow as MRI is ‘not good news but not bad news’ and I may...

First posted on the Shift.ms app

@skezz

2 Jun 2025 09:19Last reply 2 Jun 2025 16:03

Pressure feeling in spine?

Hi, I’ve been having an annoying symptom,Which is a feeling of pressure in my middle spine, as if someone is pushing into my back, I had a lumbar puncture months ago but I don’t think I had any issues so I’m not sure if it’s a coincidence and it’s just a symptom or if it could be to do with the LP. ...

First posted on the Shift.ms app

@toohotforms

2 Jun 2025 00:12Last reply 2 Jun 2025 05:03

Periods and ocrevus

Hi, has anyone experienced delayed periods after starting ocrevus ? I’ve only had the first half of my first infusion and my period is already 7 days late and I don’t have any pre menstrual symptoms that I usually get.

First posted on the Shift.ms app

@Phillip101

1 Jun 2025 14:57Last reply 2 Jun 2025 05:00

Continued frustration and pain

I went to my appointment this week at Duke University. After talking with the Dr I didn’t leave feeling better or validated. I’m not a hypochondriac and I’m tired of chasing for someone to hear me and give me a professional opinion instead of well I don’t know exactly what is going on. Let’s run all...

First posted on the Shift.ms app

@Bethb

1 Jun 2025 14:25

Mounjaro

Hi, I’m due to start kesimpta, I am also struggling with BMI due to depo to calm ms symptoms down from periods etc. just wanted to see if anyone else has this issue and if taking both has caused any worsening symptoms x

First posted on the Shift.ms app

Deleted

@BlackPhoenix

1 Jun 2025 12:24Last reply 1 Jun 2025 13:14

Emotions.

I’m struggling to articulate today. Bear with me. I can’t stop crying. I don’t feel like there’s anything going on that is worthy of such a strong emotional response. New. Optic neuritis. Ocular migraines. One point away From being legally blind with corrective lenses. Photophobic. Dizzy. Na...

First posted on the Shift.ms app

@Johnwayne

1 Jun 2025 06:47Last reply 1 Jun 2025 20:34

Question for anyone with MS or this symptom.... DOES ANYONE HAVE PROBLEMS WITH EXTREME BRAIN ZAPPERS THAT FEEL LIKE LIVE ELECTRICAL WIRES FOR HOURS, to the point that you feel like you're going out of your mind..... Also when talking the brain zappers intensify

First posted on the Shift.ms app

@kyrgyzkiwi

1 Jun 2025 03:44Last reply 2 Jun 2025 12:01

Hot Showers

Hi, i feel like the new kid on the block, having only received my MS diagnosis a couple of months back and am waiting for my first infusion. I’m in NZ and we’re heading into winter so I’m grateful for the cooler weather, and how it reduces the symptoms. Speaking of which i am finding that having...

First posted on the Shift.ms app

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