Ignorant
Despite researching and reading various bits, and having my diagnosis consultation, I still don't understand what's happening with my body. My first noticeable symptons was tingling down my left side in late January.
As time went on, I felt tension in my muscles but I was still able to exercise and run short distances. I understand then this was a relapse. There was the odd day my limbs felt heavy, but the tingling mostly wore away and by July, I was able to go to the gym 3 times per week, do a class in the morning and then clean my flat fro a few hours no problem, then I lost momentum. 21st September, the tingling returned with a vengeance, muscles seem stiffer and my legs feel heavy when walking, I couldn't even envisage getting on a treadmill and I can only spend an hour cleaning before feeling heavy and tired, and the tingling remains. Is this another relapse? If so then does that mean a new lesion, or just inflammation returning the lesion that starts me off in january (as just seems an exacerbation of same symptoms). I just don't understand?? Nor do I know whether this feeling will be permanent now, or will disappear for a period and return again?? I just dont know. I can just about accept a recurrence every now and then etc , but to feel like this every day for the rest of my life, I just dont know 🙆♀️🤦♀️😞😞

Can you go in when you have these symptoms and be checked for active inflammation? If I have new symptoms that last more than 24 hours I am to report them to my neuro and often I have an MRI then to check for a new active lesion and massive steroids use to shut them down...back in the old RRMS days ;-) now more in SPMS so I don't have these types of flares after 15 years...but that used to give me a reprieve...
It's a very hard journey at the start and feels so unfair. I'm sorry that you're experiencing the weakness and tingling. You should definitely tell your consultant or at least the MS nurses. They will let you know what you need to do (if anything). If it makes you feel any better to know - I could barely walk 17 years ago when I was diagnosed but now I run, skip, hop and jump. Nothing is set in concrete. No journey is the same for everyone. Xx