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Hi all, This is my first post on here. I'm newly diagnosed (a few months) and have been taking some time to try and get my head around it all. As part of this, I've thrown myself into research and have found two things that have really helped me: (1) a number of population studies showing, on the...

Hi all,new on here. Been diagnosed 3 1/2 years. Just started Kesimpta after being on Ocrevus. So far so good! Just wanna say that on Sunday I completed my first race of the year! 8 miles coastal path challenge with 1,400 feet elevation. Over the moon with my time. Living in West Wales hills and elev...

What ever we are going through with the illness and with other issues going on around us. Let us remain upbeat and positive. Indeed, that is my message for today. It's tough, it's very tough. I try, I do try to smile through it.

Live for today. Tomarrow is a gift not promised. Find the good no matter how bad. I say no cause no cure why the pricy meds? They say they help with relapses. Hmm okay. Well, I have been on my fav copaxone for over 14years. I don't do rebif it was suicidal Tecfidera made me rudolf the rein...

Hi Everybody. I have been diagnosed and been living with MS since 2010. Don't get me wrong it has not been easy living with this condition but then again i have been living type 1 diabeties for 18 years and that has not beaten me and that goes for MS. Don't get me wrong i have my good days and my ba...

Seem to be posting a lot recently but it’s on my brain.. has anyone got any positive stories of living with ms? Everything is so doom and gloom has anyone had the condition say for 20 years with little progression? I think everyone needs some positivity

Hey all! Just wanted to say a big thank you for the past few days, it has meant so much to me knowing that I'm not completely mad in my thought process!!!! Had appt with Neuro and will be switching to Lemtrada....that's a whole other post! But managed to actually tell my hubby what I was feeling a...

So I just found shift.ms due to a intense match of scrolling through my Instagram feed while I should be going to bed. I am so glad this popped up. I can't stop scrolling throw everyone's post and just feel like I finally found a place to talk to people who understand what it's like. NOW I want to a...

This week we're highlighting an awesome blog from @jennifer exploring toxic positivity around MS. Have you ever felt pressured to downplay how hard MS can be? Click below to read the blog by @jennifer ⬇️ https://shift.ms/blogs/when-positivity-becomes-toxic

Hi everyone, I know that it just isn't possible to stay positive all the time in the face of MS, and we shouldn't be expected to, sometimes it's tough and we just need to let ourselves feel how we do in that moment. BUT I would really love it if from time to time we could all share something that w...

Hi Everyone, Please check out my latest Lighting Talk. Thanks https://emea01.safelinks.protection.outlook.com/?url=https://www.youtube.com/watch?v=3T0NRl2rNbc&data=04|01||e61b538f70134382141d08d9c488027e|84df9e7fe9f640afb435aaaaaaaaaaaa|1|0|637756910700688857|Unknown|TWFpbGZsb3d8eyJWIjoiMC4wLjAwMD...

I know MS can be a pain in the arse but it isn't all bad. I've had quite the positive week😊. I've managed to pass my level 1 at uni and I'm now going into level 2. Managed a drive to Norfolk and pitched a tent and set up with the kids, caught some pesky crabs and looking forward to seeing some seal...

I've recently been diagnosed with RRMS. After the issues I've had over the last year, I feel better knowing what I have and can now try to move forward. I'm here for a chat if you need. Stay positive folks..

Hey, this is my first post..... lately my positivity has kinda gone out the window😕I'm 33yrs old and just feel like my ms is taking over me. I used to be able to just forget and get on with everything but ms has slowly crept up on me and feel like the simplest of tasks nowdays is a struggle. I hate...

Hi everyone I hope we are all well and glad to see the back of the horrible snow ☃️ Thought I would share a bit of positivity... went to visit a Neuro optomologist today as it’s now been 7 months since my second ever ms relapse and 4months post lemtrada round 1...so back in August my double vision p...

Hi all I was reading a post a while back and somebody within the thread had mentioned that they thought that a cure wouldn't be far away. I wondered if the person who said it remembered saying it and could throw a little more positivity my way? What makes you think that? I had a long awaited appoin...

Hi my fellow MSers, Hope you are well. I work in marketing however as it's digital and CRM it's not as creative as people think. My work although unemployed currently consists of working with data, GDPR, analytics, writing data logic, buidling customer journeys, marketing KPIs (key performance in...

Hi MSers First of all hope you are all good as much as we can me. I write this as my body tingles. So today I had my appointment with my neurologist pharmacist and finally meet the MS nurse. From 9 am till 11:30 am and getting medicine for the body tingling. I also did blood tests and although mi...

Hi, just a little bit of background I was diagnosed with ms in 2020 following an episode of optic neuritis and a severe relapse about 2 months after. I fully recovered from my second relapse, however the optic neuritis never fully recovered. I went complexly blind in my left eye and I am now left w...

I have tinitus. Really loud in one ear. I have a mri booked for this. The neurologist does not link it to ms. It started when the optic neuritis ended. I started ms treatment July 2022 and as per procedure I should have a further mri. The neurologist was not planning on doing this until she confirme...