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Haematopoietic stem cell transplantation (HSCT) is an intense chemotherapy treatment for MS. It aims to stop the damage MS causes by wiping out and then regrowing your immune system, using your stem cells. Chris has put an amazing vLog together charting his progress and experience of HSCT treatment, Why not give it a watch and then share your thoughts on whether you would go for HSCT if you could get it in a post on the stream.

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@stevethomo

1 May 2025 08:23Last reply 1 May 2025 08:34

My journey, how many share these experiences?

I am sharing my personal MS journey this MS Awareness Week, because I want other people suffering with this disease to know that they’re not alone in their experiences. There is plenty of hope, laughter and joy to be found alongside MS, and I hope that through sharing my story, I can help others fin...

London, United Kingdom

@Trevor

26 Mar 2025 05:55 EditedLast reply 26 Mar 2025 07:49

Why did the MS society deny HSCT efficacy for so many years, although they new if its positive results? Wolves in Sherps clothing comes to mind!

First posted on the Shift.ms app

@Trevor

25 Mar 2025 19:02Last reply 25 Mar 2025 21:52

Nine years no negative MRI activity

Today I celebrate for the reasons noted above. It was nine years ago that I had HSCT! I’m not suggesting a treatment of any kind. I’m just advising you of my positive news

First posted on the Shift.ms app

@Trevor-Best

13 Mar 2025 13:07

Support where you need?

#IHAVEMS The Chief Executive of the MS Society (Nick Moberly) was the Chief Executive officer at Kings College Hospital , when they’re ’mistake caused my disability, after the succesful HSCT Treatment that I had. He ignored my letters to him, but he had Julia Wendon respond about the issue. The deta...

Croydon, United Kingdom

@DominicS

3 Mar 2025 16:24 EditedLast reply 4 Mar 2025 09:09

Do You Get Prof G's Newsletter?

You ought to. It is a brilliant patient focused resource. If you ask him nicely it is free. The big US MS meeting has just ended. It is called ACTRIMS. This is an excerpt from Prof G's report 'There were excellent talks on the biology of myelination and remyelination and their complexity. The que...

@shabnamii

26 Feb 2025 23:49 EditedLast reply 27 Feb 2025 00:03

AHSCT

Hello everyone hope you’re doing good I diagnosed with PSMS 5years ago and walking is so hard for me .. my Dr in San Jose suggested me to do AHSCT! Has anyone did this process? And was it helpful?

San Jose, United States

First posted on the Shift.ms app

@UporDown

16 Jan 2025 23:42Last reply 21 Jan 2025 09:03

Which one ?

Ocrelizumab (Ocrevus) 6 monthly infusion ? Or HSCT (stem cells) ? Whats your thoughts which would you be going for ? Thank you

Edinburgh, United Kingdom

@Trevor-Best

28 Dec 2024 17:27 EditedLast reply 5 Jan 2025 08:15

How many have heard of and what was your response to the idea of HSCT? Not all meet the criteria. You’ll also find information on the MS Society website, although I’d get information elsewhere. For further information you can see a video of A HUGE group of medical professionals at the Aimscharity gala event, featuring some very recognised medical professionals. Link: https://www.aimscharity.org/we-asked-the-experts

First posted on the Shift.ms app

@Sammy92

16 Nov 2024 18:35Last reply 17 Nov 2024 09:21

What's next?

Hi. Hope your great where ever you are in your journey with MS. I have a question for all those on Tysabri infusions or have used it. I have been on the infusions for last couple yrs and I have been having relapses that have been ignored. Now a mri has shown new changes and they have offered me HSCT...

Birmingham, UK

@DVGFleming

9 Nov 2024 16:38Last reply 12 Nov 2024 18:44

HSCT Mexico

Heading to Mexico for HSCT at the end of next week. Plan to document my journey on Instagram @ms.hsct.yolo That for anyone that's interested.

Bristol, United Kingdom

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