My birthday wish has come true, I should be having HSCT this year!! although it is over the Christmas period, I am still so grateful to be having it. LETS GOOOO
Hey all,
Massive gratitude to the NHS and the wonderful Neurologist Prof. Gavin Giovannani.
I experienced a particularly bad relapse of my MS in early September and was called into the Royal London for a consultation with Mr Giovannani the following day. (Last drug was Lematrada)
Once he’d assessed...
Hi. I am a 2 on the EDSS disability scale. I am being tested for consideration for this aggressive treatment. i want to know what you all think about it. Should i go for it or are the side effects to risky? Does it work to keep me walking for a bit longer?
Hi guys,
I've just been diagnosed with RRMS last week after previously having a clinically isolated syndrome about a year prior. I feel I've got off pretty lightly so far (numb left foot and pins and needles in my fingers) but I've been reading up on treatments etc.
The MS nurse is currently recom...
I've just had hsct (stem cell therapy) to try and halt the progression of my secondary progressive MS.
I've been at home recovering for nearly 2 weeks now, mostly concentrating on the physio exercises I was given and trying to retrain my bladder after the onslaught known as chemotherapy.
It was qui...
I've recently got diagnosed with RRMS and I've stumbled across some information about HSCT. I was wondering if there any people here who have had the treatment, their experience with it and if you'd recommend it. I'm considering asking my specialist about it, I'm interested in the treatment if it's ...
Hi peeps. So I was going through the news today and noticed that stem cell transplant therapy for multiple sclerosis started in my country yesterday. I really don't know anything too deeply about this treatment, so I was wondering if anyone here has any direct /indirect connection to it and did you ...
Hi everyone. Not been on here for a while, I have been busy raising money, obtaining visas for my hsct in Moscow. Unbelievably I have raised over forty grand in two months! Not bad for a 46 year old man that lives in rural southern Spain and hasn't spent his years being a people pleaser. Any way the...
Are there any ms’rs on here that have had the hsct treatment? I’m planning to get it done. I want to hear some suggestions, do’s and dont’s. Etc. Was it a success for you? What is your life like now? What was it like before? Is it worth the money?