#stem-cells - Shift.ms

5 Sep 2016 08:02Last reply 30 Jan 2021 04:07

Stem cells

Hi everyone, I received a call from my nuro this morning to say they have accepted me for stem cell therapy. I'm both excited and slightly terrified. Has anyone else had stem cell therapy? Looking for advice on success and experience really. Thanks x

25

@Monica2015

4 Jun 2016 12:00Last reply 9 Oct 2016 14:55

Lemtrada round 2 or stem cells?

Hi all, Out of interest, if you had an option which of the above would you opt for, the stem cells being from one's own bone marrow? If the lemtrada had not performed as well as expected on all 4 counts, namely symptoms, MRI results depicting prominent inflammation in key areas, 3 relapses in 7 mo...

18

@andysot

20 Jul 2014 18:36Last reply 21 Jul 2014 17:57

Stem Cells

Hi all, I have been diagnosed since 2008 but never had any DMDs offered to me until earlier this year. I turned them down to join the STREAMS trial which involves taking intravenous stem cells harvested from my own bone marrow. Is anybody else on the trial? There are only 13 patients on it in the U...

11

@RachaelLouise

5 Aug 2017 15:44Last reply 8 Aug 2017 15:55

Stem Cells

http://www.dailymail.co.uk/health/article-4369310/Musician-RELIEVED-diagnosed-MS.html Is their stem cells in this country now ? This guy says its £80,000 privately . Rachael X

8

@helen15

15 Jul 2017 17:17Last reply 16 Jul 2017 11:52

Stem cells directly into spine

Has anyone heard of research of stem cells directly into the spine? My neurologist mentioned it last September and said I would be a good candidate for trials. I spoke to my ms nurse this week and she had heard about it but it wasn't being trialled in this country and she is now on long term leave....

6

@Sydney_M_Spraggs

8 Mar 2017 19:01Last reply 26 Mar 2017 19:05

Fetal Stem Cells

I am anxious to chat with any one with MS who is interested in having Stem Cell Therapy possibly in Mexico.

6

@RachaelLouise

24 May 2018 07:15Last reply 25 May 2018 14:07

Stem Cells

Hi I am still drawn to this since I was diagnosed last year I was wondering if any of you knew anything about the one that doesn’t require chemo where they give you a stem cell transplant and not one with chemo ? I was wondering if this one might give some relief without chemo Thanks Rachae...

5

@Ashory

18 May 2019 04:01Last reply 20 May 2019 09:50

Baby Stem Cells

Hi All, Currently 26 weeks pregnant and am considering the process of collecting bubs stem cells and tissue to store for future use, by bub if needed of course. Just wondering what people's thoughts are on this? Obviously having MS I'm a little concerned bub may also end up with it and I want to ...

3

@Bonang1975

11 Sep 2018 20:18Last reply 12 Sep 2018 04:58

Stem cells

Gidday all just wondering if anyone on shift has done the Russia trip fo r the stem cell treatment? I just wanted to hear personal opinions and figure out if its all worth it.

3

@jenko1972

2 Jun 2015 15:34Last reply 2 Jun 2015 21:13

stem cells

Hi, Hope everyones ok just wondering if anyone has received stem cell treatment and what the out come was. best wishes Neil.

1

@Tabbycat

21 Oct 2014 17:38Last reply 21 Oct 2014 19:06

Stem cells just got real

Did any one hear the news today about the Polish paraplegic who walked after successful stem cell implants from his own body? The cell implants allowed severed nerves to regrow. This is not science fiction any more! It may be along way from helping us yet, but it looks like the most hopeful thing I ...

1

@sheetal

10 Jan 2021 05:33Last reply 10 Jan 2021 14:28

Umbilical Cord Stem cells Therapy

Hi frnds Just want to know Hows Umbilical Cord Stem cells Therapy for MS ? Had any one did it ?? Hows result for MS ?

1

@Monica2015

12 Oct 2016 08:54

Stem cells experience:@snowbeetle et al.

Hi all, Just wondering whether others would be kind enough to share their thoughts/experiences if have been fortunate (?) to have forayed unwittingly via neurologist's recommendation or through sheer perseverance on your own part, into this controversial treatment? I am sincerely hoping that yo...

Treatment

@Christopher_David_Wasey

26 Apr 2020 11:38

Vlog - Stem cells back! (HSCT)

New vlog - I get my stem cells back!!! I leave you with the smell of sweetcorn 🌽 :-D https://youtu.be/6BeElWKFYi4

@RachaelLouise

28 May 2018 13:41

Stem Cells

I want to learn more. So far I have learned their are two types of procedures that I know of so far.HSCT and MSCT Has anybody done any research on the centres doing them. I want to know more about the MSCT . What qualifications/ accreditations do the centres have to have? A lot comes up on the inte...

@sheetal

9 Jan 2021 11:21

Umbilical Cord Stem cells Therapy

Hello friends Just want to know about Umbilical Cord Stem cells Therapy for MS Any one had done this ?? Any use for MS ?

@RachaelLouise

7 Sep 2018 12:28Last reply 10 Sep 2018 14:59

Really not happy with my medical team ..

I’m having a bad time at the moment had relapse and steroids a few weeks ago . I’m just fed up of being treated badly . It’s like they think we have all the time in the world - we have lives or want to have a life Just because my body got sick doesn’t mean I don’t want a life They Just mess arou...

52

@DominicS

5 Jul 2019 18:57Last reply 22 Jul 2021 13:44

I'm off to see the HSCT wizard(s)...

Well, wizards of a sort. It is an open day all about HSCT (stem cells) in London tomorrow. Ought to be very interesting. Really looking forward to it.

23

@DominicS

2 Jul 2019 17:36Last reply 3 Jul 2019 20:56

The first full 600 tomorrow!

Looking forward to my enforced rest day with drug induced temporary snooziness. Having been Dx'd for 26y, Ocrelizumab is my 4th DMT. Rebif and Copaxone are so very yesterday - had them both back in the day - then Tecfidera until Ocrelizumab was licensed back in Dec 18. I had my first hit Jan 5th th...

21

@DominicS

18 Jun 2019 04:37Last reply 20 Jun 2019 07:25

Wait. But why?

Does anyone else find the idea of waiting until sicker before stepping up treatment rather odd? I am getting v. slowly increasingly frustrated with the attitude that in order to access the most efficacious MS treatment (HSCT - Stem Cells) I have to decline to a certain point degree of disability...

19