Hsct
Hey all,
Massive gratitude to the NHS and the wonderful Neurologist Prof. Gavin Giovannani.
I experienced a particularly bad relapse of my MS in early September and was called into the Royal London for a consultation with Mr Giovannani the following day. (Last drug was Lematrada)
Once he’d assessed me, he recommended that I consider HSCT treatment. I, like most of you guys had done my research on anything and everything that may help in my fight with this horrific disease. Suffice to say I didn’t have to consider for a second. I was all too aware of my deterioration and was becoming increasingly frightened by the day, so you can imagine relief when he said he’d be putting my case in front of “the panel”.
That was some three weeks ago, three weeks of hope tinged with uncertainty and the fear “my last chance” would be taken away from me……so you can imagine the sense of relief and multitude of emotions I felt when I received the news that I’d been accepted and planning for my treatment was underway!!
I have a wait of up to three months before my three weeks of isolation and am trying to keep a reign on my hopes, fears and expectations…..(any advice and experience welcome)
Will post again nearer the time.
Best to all x
@Magdoni , I have no personal experience to share. I just wanted to wish you good luck. You're very fortunate to be under Prof. G.
Amazing news, Congratulations! I had HSCT in Mexico, so slightly different to the UK way but everyone I had treatment with (mostly older) are doing very well (certainly no worse) a year on. Some people do spectacularly well, some 15 years+ in remission :)