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Registered Company: 06000961

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@Melissaglass 

EditedLast reply

Melissaglass

Offloading - The diagnosis process and keeping up with life

Hi guys, here with my first post and just needing to get some things off my chest as I'm struggling. Background is that I am newly diagnosed but not yet on DMT. Last summer had a bout of optic neuritis, and MRI results in January showed 2 lesions. I've since had two appointments with a neurologist ...
First posted on the Shift.ms app
3

@messy100 

Last reply

messy100

What is Benign MS?

I know I can google it but I thought it was when you had some evidence of MS on an MRI but little or no symptoms? I may have had that for years without knowing it then it turned to RRMS? Also, noticed some people on here with it so curious if they have symptoms and at what point you get checked to k...
First posted on the Shift.ms app
14

@kimzy 

Last reply

kimzy

Benign MS

First posted on the Shift.ms app
1

@Sunmmertime 

Last reply

Sunmmertime

Hiya I was diagnosed with a benign ms in brain. Oct 2023 MRI confirm diagnosis on Tuesday. Nhs so bad here. Paying for it. Tried 3 lots of drugs. All really bad side effects. Coming g off Gabapentin now. Who body tingles all day n night. Have drug help sleep. Told should go into remission at some point. Anyone else on here have same ms symptoms? Advise dealing with feeling I’ll all the time. Thankyou for reading this.

First posted on the Shift.ms app
10

@Mnjy 

EditedLast reply

Mnjy

Is apathy common in ms?

Just wondering does ms(even the benign form) cause apathy in life ?
5

@Bladderfun 

Bladderfun

UTIs - anyone had relapse/new activity using Uromune vaccine?

Appreciate this is pretty niche, but hoping others might have tried Uromune (UTI vaccine). Within 4 days of starting I’m getting MS activity down left side - pins and needles and buzzing. Life has been pretty cruel to me but thankfully my MS has been extremely kind, it’s benign and I’ve not had acti...
Leeds, United Kingdom

@Gruff 

EditedLast reply

Gruff

New to the group.

High there, I have had benign MS for 32 years. Finally decided to stop pretending there is nothing wring with me. I take tablets and listen to my Doctors but tend to keep myself to myself re MS. So hello everyone. Gareth
Great Yarmouth, UK
  • Diagnosis
  • Benign
  • MRI
3

@Rachlills 

Last reply

Rachlills

Have I Haven’t I ? And on it goes

MRI 1 visable right side subcortial lesion left side white matter hyperintensitys Urologist absolutely adamant it’s ms Brain rehab consultant also adamant its ms both have sent letters to neurologist stating this Neurologist rang telling me I have not got MS. I asked him how he knew as I have N...
Derby, United Kingdom
  • Symptoms
  • Diagnosis
  • Fatigue
  • Disclosure
  • MRI
  • Work and play
  • Benign
6

@Nikki01 

Last reply

Nikki01

MDT's

Hi everyone, I was diagnosed with benign MS in January 2021 but have not been on any medication. I don't feel that my MS affects me too much on a day to day basis - I often feel tired and get a heavy left leg when I've done too much but that's it really. However, it seems I had a relapse in Septem...
York, United Kingdom
  • Symptoms
  • Diagnosis
  • Treatment
  • Relapses
  • Newly diagnosed
  • Avonex
  • Copaxone
  • Fatigue
  • Blurred vision
  • Betaferon
18

@shiftms-films 

Last reply

shiftms-films

📽️ WATCH NOW: Womanhood episode 2!

MS & medical gaslighting 😷 Medical gaslighting is when a healthcare professional dismisses, trivialises or brushes off a patient’s concerns. Sound familiar? In this episode of Shift.ms’s new video-podcast series Womanhood, Shereena, Evie, Katt, Roxy and Emma dive into their experiences of medic...
  • Relapses
  • Symptoms
  • Limbo land
  • Mind and body
  • Research
  • Fun drugs
  • Work and play
  • Fatigue
  • Benign
4
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