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Hi all. First post as I await confirmation of my MS diagnosis, and apologies in advance for my long post!! However, my path that has led me here appears unusual based on usual early symptoms and what I have read here and elsewhere. I am currently 38 years old, and going as far back as 15 years ago...

I have had nerve pain in my neck back for about 16 years over the this has spread to all parts of body. I have also with brain fog alot over the last month I have now developed a tremor in my right hand and arm also my legs feel like they are jelly also my balance has been really bad to the point th...

Hey all, I’ve been on Tysabri since March 2020 and have been fortunate to have no relapses but my MS team told me a couple of days ago that I need to change to Gilenya due to a change in my JC status. I had my last Tysabri infusion earlier today and the neuro nurses seemed very confused about wh...

I am currently taking steroid tablets over 5 days at home. Those were prescribed by GP (it wasn't easy to get prescription) for very serious relapse - I wasn't able to walk. What is concerning, that my MS nurse advised me not to take them, only wait and see, maybe it will improve by itself! And that...

I am such a lucky lady!!! If u read my last post you will see that PIP decided I don't need my car any more even though I walk with a stick, ankle braces and ankle straps. I was diagnosed with Primary Progressive Multiple Sclerosis in February this year. I wrote to PIP to disclose my Change of Ci...

Morning everyone, can anyone please help me? I was diagnosed 3 years ago, but has symptoms for the last 5-6 years. I am on Tysabri and have done wonders, my last MRI showed nothing, I had a very active MS, lesions seemed shrink, the remaining ones not active anymore. It is just in the last MRI resul...

I have had an underbite and it has always been my biggest insecurity. As a child, I remember people always staring at me very confused when I would eat. As I got older and became conscious, I became more aware of my underbite and chewed differently to mask it. My teeth bites only on the sides and a ...

https://www.instagram.com/p/Ch-Waz1tpl0/?igshid=YmMyMTA2M2Y= If you know this feeling yourself, please talk to me because I'm still very confused with it and would like to talk about it 😥

I am very confused with isolation rules! I tested positive for COVID last Saturday and am I still positive on day 5 yesterday and day 6 today! Do I have isolate still if I’m positive with a temperature? I have relapsing remitting - I’ve stayed home to protect others Thanks Jane

Hey fam. Im very confused at the moment and trying to understand what's going on with my body. Ive been having some recent trouble with symptoms that are unusual. A few months after my initial diagnosis in 2018 I had a "relapse" and at that point I lost pretty much all function in my left arm and le...

I have been trying to sort the reasonable adjustments stuff out which has to be done before an application for the Access to Work Scheme can be made. I work at one of the largest Universities in England which has the double tick disability logo. This is meant to show it is responsive and supportive ...

My mum got miss diagnosed as having secondary progressive ms long story but now in hospital had mri and has now been told it’s relapsing and remitting and she’s currently having a relapse that’s been going on since January. She’s to get 1000mg steroids for three days starting today. This relapse has...

Hi all New to the site. Been given 3 options for treatment and I am siding with Rebif as we are thinking of starting a family soon. What’s people’s thoughts on it? So much information to take it. I’m feeling very confused and overwhelmed. Got diagnosed about 3 weeks ago. Thanks in advance Lucy

Hi All, I am writing on here for the first time, I have RRMS and was diagnosed back in 2012. Since diagnoses I now have 2 young children, I always worried this would be a problem however my amazing nurse at the time discussed options. Meds’ were changed to Plegridy instead of Pregabalin whilst tryin...

Hi all. Just wondering if you can clear something up for me as getting confused!!! What is actually classed as a relapse? As to me I have had 1 relapse since diagnoses in march, which I was told was not a relapse!!! Woke up with slurry speach and the ride side of my face had dropped like I had had a...

Hi everyone. I was diagnosed in January with rrms. I was in the hospital yesterday to tell them what treatment I wanted to take. My choice had been for rebif. My doctor was leaning more towards tecfidera as the chances of relapse are lower. She spoke to me about the JC virus and PML. I'm not very c...

I haven't been on shift.ms in a while but I was also very busy with work. I was just at my last Tysabri and told that I'm JC+, now I will be put on ocrevus. I'm ok with it but I'm not sure if it will have the same effect that Tysabri had. I upset about the switch especially since Tysabri was worki...

Hi everyone, Looking for some reassurance if thats possible! I was diagnosed just recently with MS by a neuro who referred me to an MS consaultant. Really nice chap but said that its difficult to get a clinically definitive diagnosis at this stage? Confused me a little so i asked was there a chance ...

Hello everyone. First I would like to thank whoever thought of this group because iin the two hours I have been reading posts and educating myself tonight I do feel a little better knowing Im not alone. I was Dx'ed with RA in 2003. First they said Psoriatic arthritis and Fibromyalgia-the usual co...

I have never posted/joined anywhere before so I hope i am doing this right. I have a question regarding relapsing I'm in a relapse at the moment how long do relapses generally last? Any information would be greatly appreciated from a very confused human being.