@Ac1114 

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Ac1114

Unusual trajectory of symptoms: Very confused

Hi all. First post as I await confirmation of my MS diagnosis, and apologies in advance for my long post!! However, my path that has led me here appears unusual based on usual early symptoms and what I have read here and elsewhere. I am currently 38 years old, and going as far back as 15 years ago had some issues with erectile dysfunction which gradually improved over the years on and off. No other obvious neurological issues until around 6 years ago when swallowing certain foods became more difficult and I had to use water at times to help me out. A barium swallow test showed that I had significant reflux, and although the swallowing issue still persists, it has become must better with reflux treatment. Following COVID almost 2 years ago, I had what I would call a 'relapse', I had a numb right foot/shin for around 3 weeks and speaking became a little 'clumsier'. I also had noticeable fasticulations over my body. Both symptoms lasted about 4 weeks, and my right went back to normal. At the time I paid privately for a nerve conduction study and an EMG specifically to rule out motor neurone disease. The tests were clear thankfully but they did find some nerve damage in my right foot, which they put down to how i had been sitting whilst working at home. Since then, I have noticed some minor aches and pains and my lower back can become painful (but doesn't stop me doing anything at all), and I have some slight bladder/bowel issues occasionally, but no numbness or weakness like I had during my ‘relapse’. I have generally felt very well, fit and active, and regularly exercise and walk for long periods with no pain/issues at all which is why MS was not on my radar until just recently. After some blurry vision prompted me to book an eye test, it was highlighted that I had thinning of my optic nerve. This happened at the same time as my second ‘relapse’, where I had similar symptoms to 2 years ago (weakness in my right foot, but not as severe this time). What I am confused about is that my first possible symptoms (erectile dysfunction - 15 years ago and swallowing 6 years ago) are often seen as occurring later in the disease, and I have seen improvements in these areas over the years, with the more usual 'early' symptoms like limb numbness appearing more recently and seemingly following a relapse-remitting pattern, with no evidence of fatigue. I know this disease can be unpredictable, but I would really appreciate thoughts on the trajectory of how my symptoms have presented. Thank you all
@MissC

Have you had an MRI of your spine/brain/optic nerve? Or a lumbar puncture? These are what seems to be the diagnostic tests that could help confirm a diagnosis. Really the key is - lesions on your central nervous system. If you’ve got them then I would say it’s quite possible you have MS. No two people have exactly the same journey through the symptoms. From my research having been diagnosed this year, everything you describe could be MS. But that’s just the thing with MS, it’s a diagnosis of elimination. There is no definitive test that will tell you. They have to rule out everything else first. Not sure that helps answer your questions? Seems like you need a neuro consultant 🙂. I only really know about MS so, yes I have heard of all those things associated with MS. But that’s the thing about MS. The symptoms are common to a lot of conditions.

@LouiBurns

Just recently been diagnosed with MS August 2022. Everything minus the erectile dysfunction has been my experiences also. I have foot drop in my left foot. Weakness in my left leg. Bowel and bladder issues (improving after my first treatment of ovrecus) to me, it certainly sounds like early stage MS.