#treatment - Shift.ms

17 May 2022 16:59 EditedLast reply 19 May 2022 01:17

New to treatment

Hi all, I am new to this site, I'm looking for any advice really. I've been diagnosed with RRMS for approximately 10 years with no 'major' problems, I know how lucky I am. I recieved no check ups or MRIs through lockdown & lost somebody extremely close to me Christmas eve. I have since had a MRI whi...

6

@karolinaherbut

11 May 2022 20:04 EditedLast reply 18 May 2022 19:08

Deciding on treatment..

I had my first zoom call appointment with my MS nurse today! We went over what treatments I should be looking into - even though I have been trying to choose what treatment to go onto since my diagnosis last month but I still feel really stuck! I am torn between Tysabri, Ocrevus, Mavenclad or Lemt...

16

@Mudrunner

12 Jun 2021 12:17Last reply 18 May 2022 12:14

Deciding on treatment...

Officially diagnosed in Feb 2021. Consultant has suggested I start treatment and I’ve been given 3 options - Copaxone, Tecfidera or Ocrevus. His opinion is that I should go in strong, I’m otherwise young and fairly healthy so try to nip the MS in the bud if possible. But it feels like a huge decis...

11

@TLauder87

16 May 2022 12:19Last reply 16 May 2022 15:47

Treatment options

Just had my first appointment with the MS nurse and I've been offered Kesimpta Any experience with this drug please? She said she will push the consultant for Mavenclad as that was initially my preference as hadn't even read up on Kesimpta. Also been offered the usual aubagio and interferons. Tha...

2

@lucys

12 May 2022 12:27Last reply 12 May 2022 22:50

Time between diagnosis and treatment in the UK

Hi everyone! Already feeling thankful for this community even if we all wish we weren’t in it! Last week my GP and then the on call neurologist confirmed over the phone I have MS after MRI results. I had a scheduled appointment with my neurologist (who I saw at the hot clinic due to numbness and ti...

13

@TatianaAvaeva

9 May 2022 23:35Last reply 12 May 2022 21:42

Any alternative treatments including herbs??

Hi there I am CIS patient for now but I am looking for any alternative treatments including herbs and supplements. Anybody has a good experience with that?

Lake Forest, United States

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@michellesmith

13 Apr 2022 08:24Last reply 2 May 2022 11:52

Treatment?

Hello! I was diagnosed with RRMS in Jan this year and despite the fact that myself and my neuro consultant have chosen Mavenclad to try first, I'm still waiting to actually be put onto it. How long have others taken to be put into treatment? I understand I'm not the only person in the world so I'm n...

Sutton in Ashfield, United Kingdom

21

@NatalieNoor

28 Apr 2022 22:14 EditedLast reply 1 May 2022 01:02

Newly diagnosed - copaxone or tecfidera for treatment?

I’m so grateful to you all! I was recently diagnosed (early April) and have found this forum a great relief and source of support. I’m currently working out meds with a couple of neurologists… Just wondering who has tried copaxone and or tecfidera? I’ve had my first isolated symptoms (numbness and ...

Sydney, Australia

10

@samr

27 Apr 2022 15:19Last reply 27 Apr 2022 17:50

Anyone in South Africa on treatment?

Looking to understand the complexities of treatment in South Africa.

Durban North, South Africa

1

@Rowan_carrell

26 Apr 2022 19:47Last reply 26 Apr 2022 23:29

Treatment trouble

Hey all, I could really do with a pep talk at the moment. I developed optic neuritis in summer 2020 which resulted in an eye consultant requesting a deep brain mri, low and behold many lesions found. Jan 2021 consultant neurologist said its most likely ms, scan on my spine and lumbar puncture needed...

3

@andrew4612

16 Apr 2022 16:40

Ppms treatment

Hi any one out on the trial for FENtripid?

@amsut

11 Jun 2021 21:28Last reply 15 Apr 2022 10:47

New here and to MS! Looking for treatment advice

Hi everyone, I'm new here and new to MS (three weeks diagnosed). I'm on a really long, 12-17 week waiting list to see an MS specialist and to start the ball rolling with treatment. I was wondering if anyone would be able to share their experiences of choosing treatment? From what I've read, I wo...

Glasgow, Scotland, United Kingdom

18

@shelbie

10 Apr 2022 05:58Last reply 10 Apr 2022 18:41

Changing treatment

Hi I wondered if anyone could tell me their experiences with tecfidera about to change from copoxone to tecfidera due to new lesions and having a relapse plus so sore from the injections big dips in legs tummy etc... heard about the side effects just wondered is this short term or do they last while...

3

@eshostoimarop

3 Apr 2022 12:10Last reply 6 Apr 2022 16:33

Treatment Options

So I was newly diagnosed last week by letter. I was told they saw new activity in my brain in addition to the two lesions they saw in my spine previously. The letter said the disease was ‘active’ and listed Tysabri, Lemtrada, Kesimpta, and Ocrevus as the main options (in that order) and Mavenclad as...

4

@Louis1shirley

31 Mar 2022 01:56Last reply 31 Mar 2022 08:12

Treatment

Hi all! Looking for some advice. My mom has MS for 34 years now. She's been on Rebif for most of them and it's worked well for her however she's starting to get infections at her injection site. At 60 years old now it's getting difficult for her to do her injection herself. We are looking for altern...

1

@kenmorson

13 Mar 2022 19:32Last reply 14 Mar 2022 09:54

Had the CCSVI treatment back in 2001

Any one else had the CCSVI treatment for MS ?

Saskatoon, Canada

7

@hdhaliwal

10 Mar 2022 21:05Last reply 13 Mar 2022 17:36

Mavenclad Treatment?

Helloo everyone, So I am new to this site, found it while I was trying to do research for Mavenclad treatment. I am very excited and hopeful to have this community as a support system as I haven't had anyone to talk to who can relate to my MS. I have been on Glatect (copaxone) for the last 2 year...

3

@friendly_james

23 Feb 2022 12:07Last reply 23 Feb 2022 14:15

NHS treatment guidance?

Hey friends, need a link to NHS guidance. Specifically for frequency of testing and scans of head and spine once a DMT has started because I'm receiving conflicting messages from NHS folk..

1

@Karima123

21 Feb 2022 22:26 EditedLast reply 22 Feb 2022 15:12

Updated on Ocrevus treatment

It went right feel very tired and sick don’t have any energy at all any advice about how to stop feeling sick Thanks, guys ☺️

6

@BL91

17 Feb 2022 09:36 EditedLast reply 17 Feb 2022 14:33

Awaiting treatment

Hi everyone! I was diagnosed with RRMS September last year after a year of just not feeling right always falling over then loosing vision in my left eye after MRIs that’s where I was diagnosed! 26 lesions on my brain a very large lesion on my left lobe. Also 4 lesions on my spine. I have struggled a...

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