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In early September, I was diagnosed with rrms. I'd been having gnarly migraines for about a year, when I'd never had them before. I was actually sent to a physical therapist for them which helped. Then I woke up one day and my legs were numb. The numbess eventually spread to just below my ribs. I wa...

If it is not a symptom of MS then what is?! What is the point of having specialist if they keep telling you to speak to your GP. And you know as soon as you are able to speak to your GP, they are just going to say it is MS related and to speak with your MS team. I have pee'd myself 4 times within ...

I'm struggling with this issue all the time during my studies... It bothers me and makes my loved one's life miserable... Any suggestions how to control it? Sometimes I'm desperate.

Hi. Before Christmas I was admitted to hospital for blurred, double vision and to have iv steroids. The hospital physios came around to visit everyone and they made me make a cup of tea and walk. I have mobility issues in that my right leg tremors and shakes when exasperated. She made me walk withou...

Hi I'm seriously annoyed and on a low eb now. I thought my partner would understand what ms is. I thought he new what the symptoms are. But it's all been slammed back in my face it's my fault the relationship has broke down its my fault I don't want to do any as being exhausted a lot of the time, it...

So today was my 1st appointment at MS clinic i had been waiting 2 months for this, I had received my copy of the letter my neurologist sent to my doctor and at the bottom it say, "As you know he is due to see the special MS clinic, I will arrange for them to see the results and images of scans as we...

I need a rant!! I like most of you suffer with fatigue, add to this a very active 7 year old, and the fact that I'm a single mom and I have to admit I'm struggling :( So I asked my sons school for a bit of extra help and support for Sam so he doesn't fall behind. Their answer was to move him into...

Hello fellow MSers, Hope you are well. Unfortunately, another disabled tale time. This is for Kentish Town Jobcentre (for unemployment benefit). I have been here three times and as a disabled person I have asked to use the bathroom. The response from the staff is shocking. Hey, I'm human, and y...

Hello all. New to the site. Just thought I'd tell you alittle bit about myself. You have all, I'm sure, had similar stories. 2 years ago I started having extreme heart palpitations to the point that I thought I was having a heart attack and crazy fatigue. My pulse went down to 36 bpm and oxygen 87. ...

Hi everyone :) I recently posted about my experience of fatigue and asked about people’s experience of taking time off work. I had so many lovely and encouraging replies, thank you all so much. I just wanted to post a little follow up in the hopes it might help someone else! So after months and m...

i complete today 15 years since i was diagnosed(13y). i feel that i am solid to pass all of these years fighting but sometimes i feel annoyed and tired . sometimes i feel i am grateful for that and sometimes i feel melancholia . all these years passed but i learn that the life is worthless to keep f...

Hey guys, this is going to be a rant because I’m in a ranty mood. !!!Content Warning for medical gaslighting!!! A few weeks ago I posted a review of a neurologist who I feel treated me very poorly (I was quite frustrated when I posted it so it was heated I admit). He tried calling me and left a voi...

First of all hey everyone 🙂💕! I’m just looking for some help or advice.. I am currently on tysabri infusions.. it started off that I had the first 4 infusions 4 weeks apart and then they were moving it to 6 weeks between infusions.. when i finished my last 4 week space between infusions and my ne...

Any one wanna just talk I need someone that hasn't been annoyed as fuck with me to talk to bad.

Hey all, so I seem to be stressed all the time and frustrated, so most of the time I take it out on my husband .. I always come across annoyed and frustrated when I’m talking to my husband … this has led to me neglecting my husband emotionally.. not doing it intentionally! My husband is severely sig...

Hi all, so I’m a bit frustrated with my neurologist, it’s 2 weeks now that I’m thanking 1 pill of tecfidera per day while I’m eating dinner. I sent a list of symptoms to my neurologist and he reply that all I have said are not from the therapy only one is, which is the nausea and to take probiotics...

Hello everyone, I’m new here. Diagnosed in Dec 2021. Have no clue what’s going on with my body right now. Really really annoyed at it. I want the old Ali back . Any advice appreciated. ❤️🇬🇧🇨🇦

Hello everybody, just found out about this site and very relieved it exists. So, I will begin by saying that I’m 20 and I was diagnosed with RRMS November last year. My neurologist decided to put me on Tecfidera. Unfortunately, I couldn’t cope with the side effects (burning stomach). However, my MS ...

Hi everyone, I am new to Shift MS, diagnosed with RRMS in June this year, I first started experiencing symptoms in December 2021 so has all been a bit of a whirlwind to say the least. I had my second Tysabri infusion 12 days ago and still feeling so rough… awful headache, fatigue, snotty and now h...

Hi all, I’ve recently applied for PIP and much to everyone’s shock I got denied (which I was pretty annoyed about at the time). I’ve heard that this is very common in most pip cases. Speaking to my MS nurse she has said that I should at least get the standard rate for both and should push until I do...