So, turns out that I have developed a new Plaque of Lesions in the Cervix area of the Brain / Spine but, I have been on the Ocrevus Infusions, thought any progression was supposed to be slowed down not sped up, annoyed isn't even the word.
… this is just a rant! ‘Cause I’m so fed up with having MS. I just can’t believe that there is STILL no cure!! And I’m bored hearing that there’s so many good treatments now. Not that good, I say, since I’m in pain every second of the day. And I think lots of you are too. So that sucks!! I can’t run...
I recieved an official diagnoses last year of Secondary progressive and it’s in writing. After the relapse from hell with crawling sensations in my head going into my ear and my memory is getting so much worse. I won’t explain about the bowels let’s keep it PG but had no accidents just extreme pain ...
In early September, I was diagnosed with rrms. I'd been having gnarly migraines for about a year, when I'd never had them before. I was actually sent to a physical therapist for them which helped. Then I woke up one day and my legs were numb. The numbess eventually spread to just below my ribs. I wa...
If it is not a symptom of MS then what is?!
What is the point of having specialist if they keep telling you to speak to your GP. And you know as soon as you are able to speak to your GP, they are just going to say it is MS related and to speak with your MS team.
I have pee'd myself 4 times within ...
I'm struggling with this issue all the time during my studies... It bothers me and makes my loved one's life miserable... Any suggestions how to control it? Sometimes I'm desperate.
Hi. Before Christmas I was admitted to hospital for blurred, double vision and to have iv steroids. The hospital physios came around to visit everyone and they made me make a cup of tea and walk. I have mobility issues in that my right leg tremors and shakes when exasperated. She made me walk withou...
Hi I'm seriously annoyed and on a low eb now. I thought my partner would understand what ms is. I thought he new what the symptoms are. But it's all been slammed back in my face it's my fault the relationship has broke down its my fault I don't want to do any as being exhausted a lot of the time, it...
So today was my 1st appointment at MS clinic i had been waiting 2 months for this, I had received my copy of the letter my neurologist sent to my doctor and at the bottom it say, "As you know he is due to see the special MS clinic, I will arrange for them to see the results and images of scans as we...
I need a rant!! I like most of you suffer with fatigue, add to this a very active 7 year old, and the fact that I'm a single mom and I have to admit I'm struggling :( So I asked my sons school for a bit of extra help and support for Sam so he doesn't fall behind. Their answer was to move him into...