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BFN (Bloody F*king Norah) Hello all Just got back from my 3 monthly neurology appointment, and it wasn't great. (woop-de-shit Marjolie! now there's a surprise) *note for readers: words in brackets (like these) is what I'm really thinking at any given time. (hm, perhaps I should come with su...

Hi all, Has anyone had PML before? The symptoms are the same as an MS relapse so I’m so scared it’s that after ten years on Tysabri. Thank you.

Hello, Does anyone on Ocrevus or Kesimpta worry about developing PML. I've been advised to take one of these but given the risks of PML, which I think is incurable, I'm really worried. The MS nurse didn't seem too concerned but how can we not be?! Is it just me or am I overthinking it? I know it's...

Hi All, I had written a while ago mentioning that I have been recommended to switch from Copaxone to Tecfidera. Well, I decided not to, without first getting a second opinion. I am still waiting for this second opinion apt which apparently is going to take a couple of months.. The reason I decid...

Is PML a risk with all DMT? I'm currently waiting for my Neurologist to review my latest MRI and provide my treatment options but I keep seeing PML mentioned when I read anything and it's making me really anxious about the future. Can anyone give any advice on this?

One of the scariest side effects of ms dmts is pml. This article seemed pretty exciting and didn’t seem to make the news much so I thought I would post it here. Given how serious and rare it is not sure what kind of trial would be needed. I hope to find out more because if anyone gets this li...

My neuro has recommended gilenya, as I have failed rebif. I tested positive for JCV and I'm concerned about the risk of PML. The symptoms of PML are identical to my daily MS symptoms. I understand and that the risk of developing PML is low, but it's really got me concerned and I can't seem to shake ...

Hey all. I was officially diagnosed in November 2022, when I landed myself in the hospital (for a 7 month stay due to paralysis from the ribs down) and was started on Ocrevus. Since then I’ve often found myself going down the rabbit hole of being terrified of getting PML and dying. Can you please g...

Hello I’m on gilenya for years. Symptoms free. But I feel my heart isn’t brave as it used to be lol Anyway I have an appointment with the neurologist on Feb and I don’t want to continue till pml accures with gilenya to be honest I’m afraid what do you suggest I take after I want to take a drug with ...

Hi, I need some advice on KESIMPTA and OCREVUS. I know they both cause infections, including brain infection PML! Does anyone can say something about those drugs and PML (from experience)? Many Thanks!