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@Katejj 

Last reply

Katejj

PML- symptoms

Hi all, Has anyone had PML before? The symptoms are the same as an MS relapse so I’m so scared it’s that after ten years on Tysabri. Thank you.
London, United Kingdom
19
@RC83
@RC83
 

After circa 20yrs of use, neurologists have become wise to the risk of PML caused by Tysabri. The 1 in 250 risk Is almost historic IMO. Aaron Boster has a YouTube video on it. If you opt for 5 weekly infusions then it drops to 1 in thousands. I believe your neurologist should monitor your JCV count and Lymphocyte count and recommend you stop taking it. Being JCV + isn't the end if the world - half the worlds population are JCV+. You just need monitoring by blood tests.

1
@Evie_Meldrum
@Evie_Meldrum
 

I would contact your doctor if you're concerned about new symptoms and JC+

3