Shift.ms

5 Dec 2024 09:43Last reply 12 Dec 2024 07:56

PML concerns

Hello, Does anyone on Ocrevus or Kesimpta worry about developing PML. I've been advised to take one of these but given the risks of PML, which I think is incurable, I'm really worried. The MS nurse didn't seem too concerned but how can we not be?! Is it just me or am I overthinking it? I know it's...

First posted on the Shift.ms app

14

@MSfighterAR

5 Dec 2023 03:04Last reply 5 Dec 2023 15:35

Drug no pml cases

Hello I’m on gilenya for years. Symptoms free. But I feel my heart isn’t brave as it used to be lol Anyway I have an appointment with the neurologist on Feb and I don’t want to continue till pml accures with gilenya to be honest I’m afraid what do you suggest I take after I want to take a drug with ...

3

@Duggles2000

28 Aug 2023 13:33Last reply 29 Aug 2023 12:58

PML risk

Is PML a risk with all DMT? I'm currently waiting for my Neurologist to review my latest MRI and provide my treatment options but I keep seeing PML mentioned when I read anything and it's making me really anxious about the future. Can anyone give any advice on this?

Wolverhampton, UK

9

@Akjoyce1988

8 Jul 2023 21:38 EditedLast reply 9 Jul 2023 10:01

MS, Ocrevus and PML.

Hey all. I was officially diagnosed in November 2022, when I landed myself in the hospital (for a 7 month stay due to paralysis from the ribs down) and was started on Ocrevus. Since then I’ve often found myself going down the rabbit hole of being terrified of getting PML and dying. Can you please g...

Hamilton, Ontario, Canada

5

@hannahvbanana

10 Jan 2023 19:00Last reply 12 Jan 2023 19:48

Fear of PML

I am going into my second Rituxan infusion this week after being diagnosed with MS last May. I can't help but get extremely anxious in the weeks before and the weeks following infusion due to the reminder of the very rare risk of PML. I think I get so anxious because it is so unknown, my neurologist...

Vancouver, Canada

1

@Alicja

28 Nov 2022 20:20 EditedLast reply 13 Dec 2022 21:51

KESIMPTA or OCREVUS - PML

Hi, I need some advice on KESIMPTA and OCREVUS. I know they both cause infections, including brain infection PML! Does anyone can say something about those drugs and PML (from experience)? Many Thanks!

3

@MiaPi

26 Sep 2020 14:21Last reply 27 Sep 2020 17:29

PML risk with OCREVUS or Cladribine

Hi All, I had written a while ago mentioning that I have been recommended to switch from Copaxone to Tecfidera. Well, I decided not to, without first getting a second opinion. I am still waiting for this second opinion apt which apparently is going to take a couple of months.. The reason I decid...

9

@californiadreamin

24 Oct 2018 12:02Last reply 24 Oct 2018 20:41

Pml treatment

One of the scariest side effects of ms dmts is pml. This article seemed pretty exciting and didn’t seem to make the news much so I thought I would post it here. Given how serious and rare it is not sure what kind of trial would be needed. I hope to find out more because if anyone gets this li...

8

@alt258

15 Jun 2017 13:00Last reply 1 Nov 2017 10:55

Gilenya and PML

My neuro has recommended gilenya, as I have failed rebif. I tested positive for JCV and I'm concerned about the risk of PML. The symptoms of PML are identical to my daily MS symptoms. I understand and that the risk of developing PML is low, but it's really got me concerned and I can't seem to shake ...

6

@roxanne

25 Jul 2013 13:21Last reply 8 Aug 2013 15:36

Upset tummy - possible PML?

Hi I am currently 3 months into Tysabri treatment and have to be vigilant of new symptoms because of the risk of PML. I have had a funny stomach that started with bloating but has been upset for 7 days now. Could this be a new symptom and has anyone had this as a MS relapse before? Thanks Roxann...

2

Shift.ms is better if you're logged in

Topics