My birthday wish has come true, I should be having HSCT this year!! although it is over the Christmas period, I am still so grateful to be having it. LETS GOOOO
I've recently started ocrelizumab, I had a MRI a couple of months after and I had two new lesions. When I received my letter about it they stated it was probably from before my treatment. I'm not convinced, I'm sure I had a relapse afterwards. I have an appointment with my nurse next month and I'm t...
Has anyone had HSCT and feel like it didn't work or do anything for you, I'm struggling; the Chemo took my hair and my taste so in my head I'm yelling WTF
Just an update in 2017 I had a stem cell transplant at Hammersmith hospital in London, after a resent consultation with my neurologist and MRI scan there are no new lesions to be seen. Seems to be doing the job fingers crossed it will stay like that.
I've recently got diagnosed with RRMS and I've stumbled across some information about HSCT. I was wondering if there any people here who have had the treatment, their experience with it and if you'd recommend it. I'm considering asking my specialist about it, I'm interested in the treatment if it's ...
Hi guys,
I've just been diagnosed with RRMS last week after previously having a clinically isolated syndrome about a year prior. I feel I've got off pretty lightly so far (numb left foot and pins and needles in my fingers) but I've been reading up on treatments etc.
The MS nurse is currently recom...
Hey all,
Massive gratitude to the NHS and the wonderful Neurologist Prof. Gavin Giovannani.
I experienced a particularly bad relapse of my MS in early September and was called into the Royal London for a consultation with Mr Giovannani the following day. (Last drug was Lematrada)
Once he’d assessed...