HSCT
I’m thinking of trying this but, haven’t spoken with anyone who has done it. Asking for help from this community with any information positive or negative. Thank you
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I had HSCT in Mexico , November 2024. I have progressive MS,not been sub diagnosed yet so I wasn't waiting on nuero or nhs to make a decision. Did it work? Time will tell. If I am like I am in 5 years , Ill say it did. The "Mexican Method" is a weaker chemotherapy than the hsct you will receive in UK. My nuero told me I would die in Mexico & HSCT didn't suit my type of ms. Although they have still to decide what type of ms i had. Level of care/ treatment in Mexico was first class. Some people I was in Mexico with (RRMS) have had some benefits since the treatment. I am similar know as to before treatment. My edss is 3.5, in Mexico they said they would get my edss to 1 or 0. It is still 3.5 🤷. The first few months home I felt really quite good but I know believe that was the benefit of the retuximab. They also said it can be 2 years until you are fully recovered & see any improvement 🤷(i think the way I am at moment is as good as it gets) One thing I was very impressed with was they explained all my lesions & how they affect me. Unlike my yearly 2 line nhs letter. Do I regret it - NO. It was a great experience and the NHS were doing & still.continue to do little for me.
Until it is approved I won't ever try it. Remember Mexico would say any drug will cure it