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Registered Company: 06000961

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  • Balance
  • Bladder and bowel
  • Blurred vision
  • Brain fog
  • Brain health
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  • Fatigue
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@lawson316 

Last reply

lawson316

Balance

Does anybody have any balance exercises that they find actually helps improve it?
Bradford, United Kingdom
13

@NickEady 

Last reply

NickEady

Balance

I can take a few steps with a zimmer frame, or while furniture surfing, the minute I stop moving, I loose my balance and fall over, I learnt to parachute roll when falling if I get chance, avoids major injuries, broke my arm twice, anyone else have balance issues?
Wales, UK
9

@lcritchl 

Last reply

lcritchl

Balance

Anyone use balance exercises that have helped them?
First posted on the Shift.ms app
10

@Dnorwood 

Dnorwood

Balance

I recently got my AFO brace and I’m finally able to pick my entire foot off the ground. I still have problems with my balance but this is a start.
Kenner, United States
First posted on the Shift.ms app

@laurianne25 

Last reply

laurianne25

Balance

Feeling a bit Weebly these days, stupid MS! 😜
  • Symptoms
  • Balance
5

@Gypsyrose 

Last reply

Gypsyrose

Balance

Can i ask what sort of balance issues do MS suffer with
  • Symptoms
  • Balance
8

@janna 

janna

balance

On this site I saw a video about balance. Christy Holland was asked for solutions at balance problems. For me this is a terribele video. For during the whole video her hands are MOVING constantly over the screen, in all directions inclusive her pen! Terrible for persons with balance problems! The...
  • Symptoms
  • Balance
  • Blurred vision

@Motorsportpete 

Last reply

Motorsportpete

Balance

Been nearly 4 years since I was diagnosed with MS and I haven't had great balance for ages but lately it's getting worse I'm struggling to walk in a straight line and it takes a lot more effort to walk It doesn't help that I suffer with fatigue and get tired after I've been walking for a while now...
  • Diagnosis
  • Newly diagnosed
  • Healthy living
  • Exercise
  • Symptoms
  • Balance
  • Fatigue
13

@Weegie 

Last reply

Weegie

Balance

My balance is not so good at times, does anybody do anything to improve it, that helps it, thanks.
  • Symptoms
  • Balance
7

@nkinley 

Last reply

nkinley

I was diagnosed with RRMS over 10 years ago, but only recently started experiencing what seem to be flares and relapses. I’m meeting with a neuroimmunologist tomorrow and would appreciate hearing from others who have been through something similar.Was anyone initially misdiagnosed or told their MRI findings were unclear? My MRI only shows a few white matter lesions/scars, and I also have a history of Traumatic Brain Injury, which makes it difficult to know which symptoms are coming from MS versus TBI.Some of the symptoms I’m experiencing include:• Blurry vision, double vision, impaired color vision, and eye pain• Muscle weakness, stiffness, balance problems, dizziness, tremors, and difficulty walking• Numbness, tingling, heat intolerance, and possible Lhermitte’s sign• Brain fog, memory issues, concentration difficulties, depression, and mood changes• Bladder urgency and bowel issuesFor those with RRMS:Were you ever misdiagnosed before receiving a definitive MS diagnosis?Did your MRI show only a few lesions initially?What questions do you wish you had asked your neurologist early on?Which treatments have helped you most with fatigue, brain fog, mobility issues, vision problems, or relapses?Have any affordable medications or infusion therapies worked well with insurance coverage?Thank you for sharing your experiences and insights. I’m still learning how to navigate this journey and appreciate any advice.Questions I’d ask your neurologist tomorrowDo I meet the current diagnostic criteria for RRMS, or is further testing needed?Could any of my symptoms be related to my TBI, migraines, vascular changes, or another neurological condition rather than MS?Do my MRI findings show active inflammation, old lesions, or evidence of progression?Should I have MRI scans of my cervical and thoracic spine if they haven’t been done recently?Would a spinal tap (lumbar puncture) or additional testing help confirm the diagnosis?How can we tell whether what I’m experienced recently are true relapses versus symptom fluctuations?Am I a candidate for a disease-modifying therapy (DMT), and if so, which one do you recommend and why?What are the risks, benefits, and expected effectiveness of oral medications versus infusion therapies?What can be done specifically for fatigue, brain fog, pain, bladder issues, vision symptoms, and mobility problems?Given my family history, TBI history, and concern about possible CADASIL, are there additional tests you recommend?Common MS Treatments to Ask AboutDisease-modifying therapies (to reduce future relapses and new lesions) often include:Oral medicationsTecfideraVumerityAubagioMavencladInfusion therapiesOcrevusBriumviTysabriKesimpta (monthly self-injection rather than infusion)Many insurance plans cover these, and manufacturers often have copay assistance programs. Your neurologist’s office typically has staff who help obtain prior authorizations and financial assistance.One thing I’d specifically tell the neuroimmunologistBring up:Your history of MS diagnosis 10+ years agoRecent worsening symptomsHistory of TBI and cerebral contusionCognitive changes and memory issuesVision symptomsFamily history of stroke/CADASIL concernsAny heat intolerance and bladder symptomsThose details may help them determine whether there is one diagnosis explaining everything or whether multiple conditions are contributing to your symptoms.I’ll hoping tomorrow’s appointment gives me some clear answers and a concrete treatment plan. A neuroimmunologist is exactly the kind of specialist who can help sort through complicated situations like MS and my other neurological conditions.

First posted on the Shift.ms app
4
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