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I was diagnosed on January 6, 2020. I have a heavy disease burden with almost all of my lesions in my brain. I started taking Tecfidera shortly after. Every MRI I have had except one showed new brain lesions. So now I'm on Ocrevus. My memory has progressively become worse. I forget words, names, an...

If ever I am out and walking, I try to go at a comfortable steady pace. Sometimes, my feet start to slack and I have to make sure I pick them up properly before I start to trip or basically just lose my footing. I get the feeling that passers by or followers are watching me and that can stick with m...

Not good week this week i carnt think straight i lost my balance and fell the other day trying to do a bloody jigsaw my hands wont pick up the pieces i am so strugging sorry for rant

Hi you lovely lot! I’m thinking of going on a cruise next June (big 60 bday!) I’ve never done 1 before & haven’t been abroad since before my diagnosis 3.5 yrs ago & before pandemic lockdowns, the last time was Sept ‘19 😳🥴. By the time we were to be going I’ll be using a motorised wheelchair. Any ...

Does anybody get depression off the back of fatigue, or even simple exhaustion? I ask as I’ve just done two back to back workdays over the weekend, so I expect to be tired today. But every Monday following this rota I feel really desolate and depressed. I can’t see anything good in anything and ofte...

Hi I’m not 100% diagnosed in fact im in the dark, I have suspected I may have ms for around 3-4yrs but put off seeking help things are just getting worse to the point my mobility is now being affected, I made a list of things bother me ie painful spasums weird vibrations and many other things and we...

Can't someone just do it for me? 😢 How have you tried to create a balanced lifestyle for yourself. What works? And what doesn't work? Leave your thoughts in the comments below 👇

In addition to medication, I use a stick for short distances. I have a stint because my left foot drops a lot and can cause me to trip. For longer distances, I use a walker to keep my balance. Of course, though if anybody offers me an arm to hold I will always take it because it is the best.

Just thought I'd introduce myself, I've not been officially diagnosed yet, the UK NHS has a long waiting period to see a neurologist but as the symptoms I currently have and more keep popping up MS is being looked at as what is happening. I got niggling brain freeze type chronic headache, followed b...

In March I was diagnosed with MS at 25. Yesterday I was diagnosed with Lichen Planopilaris, an autoimmune type of hair that is also incurable and causes permanent scarring. I’m trying to keep my head up but I’ve been knocked down so many times this year. Everything has been taken away from me. I’m w...