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Recent activityNewest posts

@sasha999 

27 Jul 2025 16:29Last reply 27 Jul 2025 17:35

sasha999

Why I’m Coming Off Ocrevus: My MS Stor

Living with multiple sclerosis (MS) means constantly adapting — to symptoms, to uncertainty, and to treatments that don’t always work the way you hope they will. After starting Ocrevus (ocrelizumab) in June 2024, I’ve now decided to stop — just over a year later. It wasn’t an easy choice, but it fee...
First posted on the Shift.ms app
3

@Jpetridish 

20 Jul 2025 02:33 EditedLast reply 25 Jul 2025 03:49

Jpetridish

Hello, so I have a question or just want anyone’s opinion or help if possible please. I first had optic neuritis in 2021, was put on steroids and eventually got better but did leave some perminent damage. I had my first baby in 2023 and after I started to slow down breast feeding I started to get some interesting symptoms. Every morning my hands would be extremely itchy not like dry skin, but from the inside it was driving me insane it was every day and then I started getting random pain either on the top of my head like a bad bruise or on my back which I even thought was shingles, cause it was so painful to the lightest touch, but there was nothing there I even went to the doctor and in about a week that pain subsided The hand itching and the pain on my head continued though. In January I had noticed signs of optic neuritis happening again, but in my other eye, I went to the doctors right away and they had sent me to the emergency room. I was put on Iv steroids and got an MRI I was there for about four days. They saw some white matter lesions in my brain, but it wasn’t clear because of movement. They then did a spinal tap which came out clear. I had gone home and had to follow up with a neurologist about a week after I got home? I had horrible symptoms I was holding my child and my knees gave out my hands were hurting. I was twitching all the time I could not sit still it was worse when I was laying down at night my body just would not stop moving and at some point I could not feel my foot I felt like it was in an ice bucket. I was extremely tired, and I would get random goosebumps in blotches on my arms for no apparent reason I started getting some bad headaches too I then woke up one morning and I could not lift my left arm. It was like it was asleep. I would get pins and needles and different parts of my body also but the muscle weakness in my left arm was horrible. I could barely hold anything. It is still like this to this day, but not as bad if anybody came up and touched me without me, knowing my whole body would spaz out almost like my reflexes were on high drive I have seen three different neurologist since the first neurologist is convinced I have MS the other two which I actually liked better and our MS specialists keep saying I may have it. They did a repeat of my MRIs and again had some white manner lesions in my brain, but they were identical and not in the usual spots where MS lesions would be so they am holding off on fully diagnosing me and want to wait and repeat and see if there are new lesions in the following months. I have not been able to work since since I have a physical job I have good days and bad days if I get sunburn the very next day my hands feel like they’re in a vice. The pain is horrible. I want to know what everyone thinks do I have MS are they just trying to cover their butts and wait or what

First posted on the Shift.ms app
10

@jumpingJacks 

8 Jul 2025 21:29 EditedLast reply 9 Jul 2025 13:16

jumpingJacks

10 things that get mistaken for Multiple Sclerosis

1. Vitamin B12 Deficiency Symptoms Numbness, weakness, balance problems, brain fog, very similar to MS. Diagnosis Blood tests measuring B12 and methylmalonic acid levels. Why it is different Caused by a vitamin shortage rather than immune attack. Symptoms improve with supplements instead of immun...
First posted on the Shift.ms app
2

@Marjrscott 

3 Jul 2025 22:06Last reply 3 Jul 2025 23:29

Marjrscott

What else could it be?

Blood tests came up negative for lupus and other autoimmune…but here I am still on a cane with neuropathy and leg weakness
First posted on the Shift.ms app
3

@Tessa1972 

1 Jul 2025 15:44Last reply 1 Jul 2025 22:54

Tessa1972

Do anybody have problems with your left arm an leg with pain an weakness

First posted on the Shift.ms app
3

@purplepoppy 

27 Jun 2025 13:26

purplepoppy

DMT CHANGE

When I was diagnosed with MS the only option I was given for DMT was Tecfidera, my last MRI was stable but I only had an MRI on brain & neck & not spine in the last 6 months I’ve starting to have back pain & weakness & my walking has got worse, I’m just wondering why I wasn’t given any options?
First posted on the Shift.ms app

@Detrucci 

26 Jun 2025 19:09Last reply 27 Jun 2025 09:00

Detrucci

Drop foot vs leg weakness

I've noticed over the past few weeks that even though they both come from over pushing myself they are very different. So drop foot seems to stem from down in the calf area and I've found leg weakness is upper in the thigh/hamstring area. So if im gonna collapse due to muscle weakness its not as rel...
, United Kingdom
First posted on the Shift.ms app
8

@AlexanderM 

18 Jun 2025 22:16 EditedLast reply 19 Jun 2025 14:14

AlexanderM

Scared of disease progression even with DMT (long read)

I’m relatively new to this whole MS thing having gotten recently diagnosed and I haven’t had enough time to process this given that I’ve been distracting myself with work so much. To my detriment at times. My diagnosis has been a bit weird and quite dramatic but I’ll just vent here and hopefully s...
First posted on the Shift.ms app
10

@skezz 

17 Jun 2025 12:55 EditedLast reply 19 Jun 2025 14:27

skezz

Is this MS?

Had a couple days this week where when I got up my legs felt a bit like jelly, like I had done a workout the day prior and my legs felt weak, is that how leg weakness feels in MS? I’m not sure
First posted on the Shift.ms app
8

@simon99 

17 Jun 2025 11:14Last reply 17 Jun 2025 14:18

simon99

Leg Weakness

Hello everyone. Over a period of about a year I have noticed increasing weakness in my left leg. This has got to the stage that walking even a very short distance is getting to be a problem. I religiously stick to the exercises that my physiotherapist has given me, however I still feel my strength ...
First posted on the Shift.ms app
12
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