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Charity Number: 1117194 (England and Wales)

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Recent activityNewest posts

@Nina18 

23 May 2025 05:45Last reply 23 May 2025 21:48

Nina18

Switching from Ocrevus to Kesimpta

Well I think that this has been the shortest time frame I have ever been on ANY! type of medication. I was diagnosed in March of this year with heart palpitations due to the medication. I gave it fair shot and I just can not deal with the anxiety attacks feeling, the off beat of my heart once in aw...
First posted on the Shift.ms app
8

@MariaAnn7293 

20 May 2025 11:50Last reply 20 May 2025 15:17

MariaAnn7293

Migraines....still

Hey guys!!! So before I had posted about my migraines. Im on A bunch of stuff that has helped with blocking the migraines but I still have headaches on the daily. Its more of a pressure in my head all over. I'm getting really frustrated with it at this point. I have an appt with my neurologist on th...
First posted on the Shift.ms app
1

@Spiderhack 

12 May 2025 13:58Last reply 13 May 2025 01:33

Spiderhack

Normal medication

Hello fellow MS people I am currently on DImethyl fumarate (Tecfidera) and whilst it’s done its job as far as I am aware. Are there any other natural Meds people recommend and if so where you get them from ? I am in the UK I appreciate exercise is a great one which I do but sometimes I am too tir...
First posted on the Shift.ms app
4

@Chrissykain 

11 May 2025 02:39Last reply 11 May 2025 23:48

Chrissykain

cladribine

So I was dx 2009. Copaxone nearly killed me. Tecfidera caused me severe acne. I lost the feeling from my neck down September last year and finally had an mri in April. I broke my shoulder in October (slipped on holiday in Bulgaria) had surgery there and had plates and pins , they flew me home too ...
First posted on the Shift.ms app
12

@SennaWaiIChan 

25 Apr 2025 22:56Last reply 26 Apr 2025 12:16

SennaWaiIChan

Advise

Hi everyone, I’ve been diagnosed with RRMS for four years now and have been on Tecfidera since the beginning. My latest MRI showed a bit of progression, and my neurologist has suggested switching to Siponimod. I was wondering if anyone here has any personal experience with this medication – how have...
First posted on the Shift.ms app
10

@Shelleyjo1969 

23 Apr 2025 03:17Last reply 24 Apr 2025 09:38

Shelleyjo1969

Copaxone or tec fidera? Have had some progression sence i switched from copaxone

First posted on the Shift.ms app
8

@Lightning87 

15 Apr 2025 19:28Last reply 15 Apr 2025 21:40

Lightning87

Ocrevus - your experiences

Hello! I was diagnosed in June 2018 and was on Tecfidera for 6 years before my Neuro advised I would require to come off the DMT as my lymphocytes were below 0.5 for longer than 6 months. I had to go ’cold turkey’ until my lymphocytes went back up to 0.8 which they just have, thankfully. They hav...
First posted on the Shift.ms app
7

@kikigurl 

11 Apr 2025 23:51Last reply 9 May 2025 17:02

kikigurl

Techfidera, I was on it for two weeks and got god awful sick.. I had the worst bellyache in the world… i stoped it by my self… I decided I’m not taking meds for Ms… two months ago I tested negative for the JC virus and Sunday got a results back and they were positive… so yeah there’s that now!!!

First posted on the Shift.ms app
5

@Jillianleigh16 

3 Apr 2025 19:30 EditedLast reply 14 Apr 2025 14:43

Jillianleigh16

Tecfidera (dimethyl fumerate)

Has anyone taken this Medication? I took my first dose Last Friday and had a horrible reaction of severe flushing, high BP and HR I was sent to ER from work. Any advice or similar reactions? Update: I have been completely stopped on the Tecfidera. I will be switching neurologists due to mine movin...
First posted on the Shift.ms app
43

@clars64 

24 Mar 2025 20:20Last reply 24 Mar 2025 23:42

clars64

I was diagnosed 17 years ago. Started with Tecfidera then Ocrevus, and now Kesimpta. My question/frustration is as follows. What should i expect from my Dr.? He is a neurologist. I see him 1 time a year which follows an MRi. We meet for 10 minutes and he tells me the MEI showed “ no remarkable changes”. Appointment complete. I get nothing about me and my progressing disability. I feel like a data point and nothing else. Thoughts? Thanks

Suring, United States
First posted on the Shift.ms app
5
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