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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Found 1256 results

@mlw85

Last reply

mlw85

Some Advice

Hi not been on in a few months, started taking tefidera 6 months ago and had my MRI scan and just got results back and have 2 new lesions on my brain but the neurologist wrote in his letter that he thinks that it might have been the space I had came off tysabri and started tecfidera but I am scared ...
  • Symptoms
  • Relapses
  • Tecfidera
  • MRI
  • Treatment
  • Diagnosis
  • Work and play
  • Mental health
2

@julespickering5

Last reply

julespickering5

Changing DMD | Ocrevus

Hello I haven’t actually written anything on here but always gone on for support, information and to understand what other people are going through. I have been on Tefidera for little under 2 years now, which hasn’t helped in anyway as I am still getting lesions on the brain and spine. I’ve now d...
  • Ocrevus
  • Treatment
  • Healthy living
  • Tysabri
  • MRI
1

@betty

Last reply

betty

I learn something new here everyday!

Wow, I'm so glad I have this group to turn to, I don't feel that I always get the truth from my doctors and nurses here in Canada, so I am a little frustrated! None of my doctors or nurses have EVER cautioned me about taking ibuprofen while on Tecfidera. I take it frequently for back and neck pain ...
  • Diagnosis
  • Disclosure
  • Symptoms
  • Mental health
  • Pain
  • Treatment
  • Copaxone
  • Tecfidera
3

@Littlemisssunshinedon

Last reply

Littlemisssunshinedon

Babies!

Hi everyone :) I was diagnosed with MS aged 27. Since turning 30, I have had the overwhelming urge to try for a baby. Started on Tecfidera six weeks ago but discussed with my neuro about trying and he said to get an mri and then he will see me and if the ms is stable he is happy for me to come off t...
  • Diagnosis
  • Newly diagnosed
  • Symptoms
  • Mental health
  • Relapses
  • Treatment
  • Which DMT
  • Work and play
  • Family and children
  • Positives of MS
6

@Tash41

Last reply

Tash41

Tecfidera - advice please

Hi, just looking for some advice please. I know it's only early days but I took my first Tefidera this morning and within two hours I felt terrible. I felt really sick and then began having hot flushes. I know these are common side effects but wasn't expecting to feel so bad. I don't want to give up...
  • Symptoms
  • Hot and cold
  • Mental health
22

@Joakat

Last reply

Joakat

Tecfidera side effects

I started tecfidera on Saturday and today I have a weird itcy feeling all over my body, and it moves from my arms then to my neck all over. Is this normal? I also had my ears burning when it all started now the ears are fine but I'm still itcy.
  • Tecfidera
  • Treatment
  • Symptoms
1

@laurend77

Last reply

laurend77

Tecfidera

I started Tecfidera last week. First week was 120mg. This week I started the higher dose. It's so hard to not know what to expect. I'm not having flushed side effects, but I'm not feeling great. I don't know what is anxiety, what is MS, what is medication side effects. This is hard...............
  • Tecfidera
  • Treatment
  • Mental health
  • Symptoms
  • Dizziness
3

@Thedonasara

Last reply

Thedonasara

Tecfidera

I’ve been using Tecfidera for one week and I feel super tired and fatigue, I wonder if its because of the medication. Is anyone else having the same side effects?
  • Tecfidera
  • Fatigue
  • Treatment
  • Symptoms
21

@Priscilla

Priscilla

Tecfidera

Hello $Thedonasara, I have been on this medication for 6 years. Yes, I feel fatigue and I can fall asleep at any time of day, when I'm at home. This disrupts my night time sleep routine, but I just work out a schedule. Apart from that, I do not experience other side effects.
Northolt, London, UK
  • Fatigue
  • Symptoms
  • Work and play
  • Balance
  • Tecfidera
  • Treatment
  • Work and Study

@Thedonasara

Last reply

Thedonasara

Tecfidera

Hey guys today I started my Tecfidera 120mg and after 2 week they gonna change it to 240mg. Any tips for me ?
  • Tecfidera
  • Treatment
6

@Thedonasara

Last reply

Thedonasara

Tecfidera

Having red itchy arms and hot flashes after Tecfidera ….it’s Normal right?
  • Tecfidera
  • Treatment
  • Symptoms
  • Numbness
7

@Thedonasara

Last reply

Thedonasara

Tecfidera

Hello guys, yesterday I went to my neurologist and he said we should start a medicine called Tecfidera its chemical name is Dimethyl fumarate.It’s going to be my first time using medication for MS i wonder if there is anyone who’s on this as well? How is it?
  • Tecfidera
  • Treatment
  • Diagnosis
  • Work and play
17

@Wiebke

Last reply

Wiebke

Tecfidera and immune reaction

Hi, does anyone know about risks of getting infections with Tecfidera? I've been wondering about this since I read that immune reactions differ and MS patients often suffer from "silent" infections when taking immune suppression medication. As I understood Tecfidera works as a modulator but I'm not ...
  • Tecfidera
  • Treatment
43

@Shonacampbell

EditedLast reply

Shonacampbell

Tecfidera bloods

My Tecfidera bloods are done by my gp and as far as I know my neuro hasn't even seen them and fails to ask for them for years now,Completely incompetent. My issues is because my gp is doing this will he know what to look out for? Congnativley I have been getting alot worse on Tecfidera.Im worried an...
  • Tecfidera
  • Treatment
  • Work and play
3

@Wiebke

Last reply

Wiebke

Tecfidera side effects

I'd say I'm doing fairly well with Tecfidera but ever since I've started taking it I have a weird cough. Does anyone else experience this with Tec?
  • Tecfidera
  • Treatment
  • Symptoms
2

@Rox993

Last reply

Rox993

Tecfidera

Hi all, I was first diagnosed on the 17th November 2022 and was prescribed to take Tecfidera twice a day, vitamin D and aspirin for flushing.. anyone noticed that whilst taking Tecfidera the flare ups getting worse? I keep on getting very weak/numb legs, I have 2 young children and cannot enjoy the ...
  • Tecfidera
  • Treatment
  • Newly diagnosed
  • Diagnosis
  • Symptoms
  • Numbness
  • Healthy living
  • Vitamins and supplements
  • Work and play
  • Relapses
2

@Spinninja

Last reply

Spinninja

My first flush with Tecfidera

I started my treatment just over a week ago. The half dose went fine but I'm now up to the full dose and had my first flush this afternoon. It was fine until the chronic itch kicked in. I am trying to have high protein meals but any other tips that anyone has stumbled upon?
  • Treatment
  • Tecfidera
  • Symptoms
  • Diet
2

@Spinninja

EditedLast reply

Spinninja

Starting Tecfidera

Hi all, My Tecfidera is due to arrive tomorrow and I'll be starting it right away. Taken everything in my stride so far but suddenly I'm very nervous about this... Wish me luck!
  • Tecfidera
  • Treatment
18

@jennymay1548

Last reply

jennymay1548

Tecfidera

I’ve been on dimethyl fumarate for nearly 3 weeks and have had stomach pains/sickness for about 5 days now, I’m just wondering how long I’m going to be getting these side effects for as it’s slowly beginning to drain me. I’ve spoken to my ms team but they’ve only said to keep and eye on it🤦🏼‍♀️
  • Tecfidera
  • Treatment
  • Symptoms
  • Diagnosis
  • Work and play
4

@IJoda12

Edited

IJoda12

Tecfidera and increased heart rate

Hi all, I started Tecfidera several weeks ago I am now on full dose. Since a couple of days my heart rate is really high. Went to the GP and he gave me some beta blockers to decrease the heart rate , my GP suspects that the stress is the cause. Is there anyone who experienced this with Tecfidera?
  • Tecfidera
  • Treatment
  • Symptoms
  • Mental health
  • Diagnosis
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