Shift.ms

24 May 2022 20:35Last reply 25 May 2022 06:16

Some Advice

Hi not been on in a few months, started taking tefidera 6 months ago and had my MRI scan and just got results back and have 2 new lesions on my brain but the neurologist wrote in his letter that he thinks that it might have been the space I had came off tysabri and started tecfidera but I am scared ...

2

@julespickering5

11 Sep 2021 11:52Last reply 11 Sep 2021 23:26

Changing DMD | Ocrevus

Hello I haven’t actually written anything on here but always gone on for support, information and to understand what other people are going through. I have been on Tefidera for little under 2 years now, which hasn’t helped in anyway as I am still getting lesions on the brain and spine. I’ve now d...

1

@betty

9 Jul 2016 21:04Last reply 10 Jul 2016 19:03

I learn something new here everyday!

Wow, I'm so glad I have this group to turn to, I don't feel that I always get the truth from my doctors and nurses here in Canada, so I am a little frustrated! None of my doctors or nurses have EVER cautioned me about taking ibuprofen while on Tecfidera. I take it frequently for back and neck pain ...

3

@Littlemisssunshinedon

24 Jan 2016 17:38Last reply 25 Jan 2016 17:44

Babies!

Hi everyone :) I was diagnosed with MS aged 27. Since turning 30, I have had the overwhelming urge to try for a baby. Started on Tecfidera six weeks ago but discussed with my neuro about trying and he said to get an mri and then he will see me and if the ms is stable he is happy for me to come off t...

6

@Tash41

4 Nov 2014 17:07Last reply 9 Nov 2014 13:51

Tecfidera - advice please

Hi, just looking for some advice please. I know it's only early days but I took my first Tefidera this morning and within two hours I felt terrible. I felt really sick and then began having hot flushes. I know these are common side effects but wasn't expecting to feel so bad. I don't want to give up...

22

@Jeng

7 Jan 2021 13:02Last reply 15 May 2025 19:04

Brabio or Tecfidera🤔🙃

I was diagnosed RRMS in Dec 2020, the neurologist believes I've had it for 11 years. I've had 2 relapses in 2 years and currently have 1 active lesion (great way to end the year!) I have narrowed my choice of DMT down to Brabio 3xweek or Tecfidera, I like that Tecfidera is more effective and a pill ...

18

@motorhead

22 Jul 2024 13:26Last reply 26 Apr 2025 20:32

Generic Tecfidera

Hi Everyone! Has anyone had any issues since their Tecfidera has been move to the generic version of the medication? I've been on the generic version for around 3 weeks now- since moving to the new medication I've been flushing literally every night, even after taking an antihistamine and aspirin ...

London, United Kingdom

10

@Jillianleigh16

3 Apr 2025 19:30 EditedLast reply 14 Apr 2025 14:43

Tecfidera (dimethyl fumerate)

Has anyone taken this Medication? I took my first dose Last Friday and had a horrible reaction of severe flushing, high BP and HR I was sent to ER from work. Any advice or similar reactions? Update: I have been completely stopped on the Tecfidera. I will be switching neurologists due to mine movin...

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43

@clars64

24 Mar 2025 20:20Last reply 24 Mar 2025 23:42

I was diagnosed 17 years ago. Started with Tecfidera then Ocrevus, and now Kesimpta. My question/frustration is as follows. What should i expect from my Dr.? He is a neurologist. I see him 1 time a year which follows an MRi. We meet for 10 minutes and he tells me the MEI showed “ no remarkable changes”. Appointment complete. I get nothing about me and my progressing disability. I feel like a data point and nothing else. Thoughts? Thanks

Suring, United States

First posted on the Shift.ms app

5

@lizzie20

7 Mar 2025 13:57Last reply 7 Mar 2025 18:44

tecfidera

This may be a silly question but when i was speaking to my ms nurse the day i was starting tecfidera she said im not due for more bloods till may and about a week ago im getting told i need to get bloods done before i go onto the higher dose but the nuse gave me the higher dose i just dont start it ...

First posted on the Shift.ms app

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