@julespickering5 

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julespickering5

Changing DMD | Ocrevus

Hello I haven’t actually written anything on here but always gone on for support, information and to understand what other people are going through. I have been on Tefidera for little under 2 years now, which hasn’t helped in anyway as I am still getting lesions on the brain and spine. I’ve now decided to go for Ocrevus as this is one of the options that I was given. I know have to go through the blood tests and hopefully I will get the COVID booster before I start - which I understand that I need to wait 4 weeks before I can have the infusion. To be honest, I am nervous and probably a little scared with the side effects but what do I have to lose right! I get side effects now. I have read through everyone’s posts and its great that everyone has given some really good advice which I am taking on board. I’ll update everyone on my journey before, during and after Ocrevus - its really great to be part of a community. If there is any other ‘tips’ people think I should know, please let me know as I’m like a sponge for information :) Thanks to everyone who does share and post as its so informative to people like me. Jules #tefidera #ocrevus
@BethHx

Hi, one thing I can say is, especially for about a month after an infusion just take extra precautions, because of Covid. Whilst having the infusions, it helps to keep up with drinking water, as it helps reduce the severity of side effects. Also, they will give you paracetamol on the day, before starting your infusion, and keeping on top of that once you’re home also helps lower the chance of side effects. The side effects I usually get are fatigue, a little bit nauseous and a headache, usually for up to a week after, but these are reduced with the paracetamol and water! If you have any questions, you’re more than welcome to message me. Hope this helps, take care and good luck with your infusions :) x