#steroids - Shift.ms

Steroids are often prescribed by neurologists to treat MS relapses. Steroids can be given orally or intravenuously. They are not a disease modifying treatment, but can speed up recovery from a relapse for people with relapsing remitting multiple sclerosis.

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@Jpetridish

20 Jul 2025 02:33 EditedLast reply 21 Jul 2025 01:20

Hello, so I have a question or just want anyone’s opinion or help if possible please. I first had optic neuritis in 2021, was put on steroids and eventually got better but did leave some perminent damage. I had my first baby in 2023 and after I started to slow down breast feeding I started to get some interesting symptoms. Every morning my hands would be extremely itchy not like dry skin, but from the inside it was driving me insane it was every day and then I started getting random pain either on the top of my head like a bad bruise or on my back which I even thought was shingles, cause it was so painful to the lightest touch, but there was nothing there I even went to the doctor and in about a week that pain subsided The hand itching and the pain on my head continued though. In January I had noticed signs of optic neuritis happening again, but in my other eye, I went to the doctors right away and they had sent me to the emergency room. I was put on Iv steroids and got an MRI I was there for about four days. They saw some white matter lesions in my brain, but it wasn’t clear because of movement. They then did a spinal tap which came out clear. I had gone home and had to follow up with a neurologist about a week after I got home? I had horrible symptoms I was holding my child and my knees gave out my hands were hurting. I was twitching all the time I could not sit still it was worse when I was laying down at night my body just would not stop moving and at some point I could not feel my foot I felt like it was in an ice bucket. I was extremely tired, and I would get random goosebumps in blotches on my arms for no apparent reason I started getting some bad headaches too I then woke up one morning and I could not lift my left arm. It was like it was asleep. I would get pins and needles and different parts of my body also but the muscle weakness in my left arm was horrible. I could barely hold anything. It is still like this to this day, but not as bad if anybody came up and touched me without me, knowing my whole body would spaz out almost like my reflexes were on high drive I have seen three different neurologist since the first neurologist is convinced I have MS the other two which I actually liked better and our MS specialists keep saying I may have it. They did a repeat of my MRIs and again had some white manner lesions in my brain, but they were identical and not in the usual spots where MS lesions would be so they am holding off on fully diagnosing me and want to wait and repeat and see if there are new lesions in the following months. I have not been able to work since since I have a physical job I have good days and bad days if I get sunburn the very next day my hands feel like they’re in a vice. The pain is horrible. I want to know what everyone thinks do I have MS are they just trying to cover their butts and wait or what

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@lllJlll

11 Jul 2025 12:16Last reply 11 Jul 2025 21:53

I think might be having a flare not sure

So I was diagnosed on May 28 had a 5 day steroid treatment and I'm currently on dimethyl fumarate. I was out late last night had me two beers and barely got any sleep so I'm wondering did I push my body or are this side affects from the meds. Started the meds about 4 days ago and took one last nig...

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@lkr6

29 Jun 2025 06:45Last reply 30 Jun 2025 01:48

Optic neuritis

Hello, looking for some words of wisdom, am fairly recently diagnosed (March this year) luckily symptoms have been fairly manageable so far. However Thursday morning I woke up without much sight in my right eye, trip to eye casualty later and diagnosis of optic neuritis. They’ve said it will heal it...

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@oakjackalope

19 Jun 2025 17:25

I HAD A CHECK UP APPOINTMENT YESTERDAY, REALY QUESTIONING ALOT OF STUFF.

I had a check up yesterday with a slepcalist. They then reasured me that my head akes, kneck stiffness, genral back and wrist pain isnt linked to my ms, i did however get put on a 500mg steroid tablet treatment for the next few days,to subdue my misty eye, im starting to doubt myself, starting to ...

First posted on the Shift.ms app

@AlexanderM

18 Jun 2025 22:16 EditedLast reply 19 Jun 2025 14:14

Scared of disease progression even with DMT (long read)

I’m relatively new to this whole MS thing having gotten recently diagnosed and I haven’t had enough time to process this given that I’ve been distracting myself with work so much. To my detriment at times. My diagnosis has been a bit weird and quite dramatic but I’ll just vent here and hopefully s...

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@BrittanyOwen

13 Jun 2025 16:11Last reply 13 Jun 2025 17:40

What do i do??

I have been on the steroids for almost 2 weeks now, and it seems like im getting worse. EVERYTHING is sooo tight, im holding a bunch of fluid in my mid section from the meds, im sore, im exhausted, and more places are going numb. I go to my first clinical appt on Monday, but im getting very upset. I...

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@wanttorun

13 Jun 2025 15:25Last reply 14 Jun 2025 07:03

Random question about steroids

Hi, I was just wondering how you decide when to take steroids. I have RRMS and am on tecfidera, due to change to Kesimpta in August. For the most part my MS has been stable and more of a label than anything else. However last week I woke up with a lightly numb face, over the week I have regai...

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@Mondaygirl22

12 Jun 2025 23:36Last reply 13 Jun 2025 22:29

How safe is it to get those steroid infusions close together like how far should the gap be between them?

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@Leanne88

8 Jun 2025 19:39Last reply 8 Jun 2025 22:03

I'm currently having a relapse

So for the past few months I've been feeling off. I have a one year old who relies on me for everything as I'm sole carer as her father works away a lot. My mom has been a great support. I'm on day 3 of steroids and I just dont feel like me anymore. Emotional, exhausted, pain, sickness,headaches. I ...

First posted on the Shift.ms app

@AlexanderM

7 Jun 2025 22:22 EditedLast reply 8 Jun 2025 17:45

Does it ever get better?(mini rant)

I’ve recently been diagnosed with RRMS. It’s been a rough couple of months that led to my diagnosis and it has taken every ounce in me and more to just hold it together and not let my life fall apart. According to my neuro I’ve had like three relapses in less than three months and have a lot of inf...

First posted on the Shift.ms app

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