#end - Shift.ms

@Jpetridish

1 Aug 2025 01:33Last reply 2 Aug 2025 16:56

So my family decided to surprise me for my birthday the other day by inviting a bunch of my friends and family over to the house, it was so thoughtful and I truly was really surprised was not expecting it at all. I was a bit overwhelmed and ended up going to bed early because I was so drained. The next day my symptoms for some reason were so bad. My left arm and hand were completely pins and needles the whole day and my right foot to. I kept walking into things and my knees were killing me going up and down stairs. I was also dizzy. Has this ever happened to anyone after a surprise event or emotional event?

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13

@k4l0n

30 Jul 2025 21:06Last reply 31 Jul 2025 12:21

Where do I begin?

I had a clinically isolate episode as a teenager, confirmed by a lumbar puncture and MRI, neurologist said 'if this comes back it's MS'. The odds are 60-86% following the CIE that I will get MS in my lifetime, depending on what study you read. I've had cramps and spasms and muscle tension moving ar...

First posted on the Shift.ms app

5

@Jimmy369VT

29 Jul 2025 21:10

Since I have moved to Florida from Vermont, I have been learning a lot more about MS as it’s whole until I actually found a neurologist that was actually specializing in MS. I did not know that not only is it a nervous system problem, but it is also autoimmune and I did not know That extreme cold and extreme heat can actually make flareups worse and if it is hereditary, it can also make the MS come out quicker. I did not know that I did 13 years making snow at a ski resort in Vermont and then when I moved to Florida, I did Five years underground construction and I always wondered why I felt funny and triple digit heat, but it wasn’t heat stroke, and there were days where if it got below zero or into the negative temperatures, my body would tighten up intense up like I was getting squished by a bow constrictor. I went years until my primary care physician told me to go see a neurologist, and then he gave me the evaluation told me to take an MRI. They did not find anything in my spine, but my brain said a lot is what the neurologist said, and then he started poking and stab in the bottom of my feet with stuff and doing a tuning fork all over my body and when I told him I couldn’t feel it in certain spots and then in other spots, I could just slightly feel it or it just felt like a ant crawling on my leg or on the top of my foot. I’ve never seen anybody that evaluated me for anything get so concerned, looking on their face and then now he wants me to do a spinal tap, which I am doing August 8. I already know it’s not going to be like the movies or television shows where it’s gonna be excruciating painful off the back. It’s going to be the next day. I’m going to have to recuperate. I have several family members with MS as well so they are kind enough to give me peace of mind explaining to me how they felt after all the stuff they had to do and I am pretty much doing the same thing and my neurologist did put me on something. I can’t remember the name of it or pronounce it but my flareup weren’t so bad, but then my colitis started getting worse so he took me off it and now as long as I just stick to easy tasks, I’m not so bad but it hurts sometimes to move. I can relate to how my mom felt towards the end now, she said she was in so much pain, but because her mind was slipping back into a childish state of mind. She had good spirits about her. My dad just turned into a zombie and he said that he only focused on walls or focused on watching a television show because it was the only way he could control the pain. I meditate to help with my pain and I listen to the doctors and follow my prescription regiment, but there are still days where it feels like I got hit by a truck and I just stood up out of bed. The scary days are when I can’t get out of bed altogether. I do not know if anybody else has ever felt like this, but there are days where I wouldn’t wish this on my worst enemy and to get places of business to understand what you’re going through and to explain to them OK if you have me do these tasks then don’t expect me to come to work tomorrow because I won’t be able to move. I have been rejected so many times my wife just finally decided to fill out for disability and now between my attorneys and Social Security I have my doctors not only giving me tests and labs for their peace of mind but now I have them filling out papers and forms for my attorneys and Social Security and it’s been like that for almost 3 years now every time I think we’re getting close I have more papers in the mail for my doctors to fill out or my neurologist there are days where I just wanna give up but then I think about what it would do to my family and then I sit with my son and play video gamesuntil the feeling goes away, and I snapped back into my normal self

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@Lizabeth

25 Jul 2025 02:33Last reply 25 Jul 2025 04:12

A dose of good news

We all face so much fear and have been on the receiving end of some of the worst news. So I wanted to share that it’s been 3 months since my first Ocrevus infusions and I have moments of almost feeling normal. You know: like the old me. Maybe I’m adjusting to my new diagnosis (just 4 months) or mayb...

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3

@tingilingi

24 Jul 2025 03:44 EditedLast reply 24 Jul 2025 04:29

My story(open for tips and tricks 🥰)

Hi guys, here's my story. I guess it would be nice to share it with people who would understand how I feel. It all started with my overworking myself at my nursing job. I noticed that my back is tingling when I bend my neck but I ignored ofc because I thought that it must be pinched nerve.. I never ...

Neu-Ulm, Germany

First posted on the Shift.ms app

2

@Abz671

23 Jul 2025 14:53

PIP/ADP?

I wanted to know what people’s experience of applying for (previously known as PIP) ADP? I applied for PIP the year I was diagnosed and I scored 0. So to them my disability does not affect any aspect of my life. I obviously wasn’t hitting enough of their buzz words! I also think because MS is life...

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@Helz

22 Jul 2025 14:32Last reply 23 Jul 2025 04:23

Sad

So, 2ary progressive MS but copingwell really. End of April relapse changed everything for a while, am stuck in chair in lounge,sleeping in lounge,carers 3 times a day atmo. Just at rock bottom at mo and crying constantly...my pooŕ husband!How do you get over something like this and get your life ba...

First posted on the Shift.ms app

3

@Knuckles1980

15 Jul 2025 16:56Last reply 15 Jul 2025 20:49

Normal temperatures at last

The heatwave is ending at last. A drop of 9 degrees C here and wow what a difference it makes. So much more awake and able to get up and actually do something....until the tizanidine starts wearing off anyway. It's still so shocking how much difference the ambient temperatures make now. I used to ...

Marden, United Kingdom

First posted on the Shift.ms app

1

@Forever35

14 Jul 2025 20:53Last reply 25 Jul 2025 13:23