Shift.ms

23 May 2025 01:39

Struggle Bus

Hi! My name is Cheyenne and I was officially diagnosed 2yrs ago but have had symptoms since 2019. Iv hit my crap gap for my treatment plan (ocrevus) and am struggling a hit to keep up with all the end of year things as a parent of an elementary school aged child, as well as her end of year wrap up w...

First posted on the Shift.ms app

@wjgregg

20 May 2025 09:35Last reply 20 May 2025 14:44

Really important petition, please sign

https://chng.it/htYxfZc8Yf Dear fellow sufferers. Julie Cowdrill, who has been forced to take Tyruko, the Tysabri generic, with disastrous results. Please sign her petition, and help end this dreadful experiment.

Sign the Petition

MS Patient Choice: Reinstate Access to Tysabri IV for Those Affected by Tyruko switch

chng.it

Skipton, United Kingdom

@GerardMcC1

20 May 2025 09:00Last reply 21 May 2025 22:24

Disc Bulge

Hello All, I have PPMS - I think at least five or six years but diagnosed just over two. An MRI around three months ago showed a disc bulge on L4/5 which causes regular pain - especially in night/mornings and weakness on that side (right) and thus mobility and balance issues. I know three non-MS fri...

Belfast, United Kingdom

@Mithria

19 May 2025 20:35Last reply 20 May 2025 18:03

Miracle

Two days ago a miracle happened with me. I walked 12000 steps, was playing frizbi and "football " Without being tired. Wasn't running just walking without stops 🥲 It was amazing 👏 Just one day miracle, now back to less, and in the end tired mode, but I'm happy 😊

First posted on the Shift.ms app

@brunapinhoni

15 May 2025 00:58Last reply 15 May 2025 12:38

Major change in pain, mobility still the same

Hey guys, I started the Wahls Protocol in July 2024 which has ended my neuropathic pain I had for 7 years. However, i’m still struggling with my mobility. More specifically, left side, foot drop, heavy arm, heavy leg, hand. Anyone has any advice?

First posted on the Shift.ms app

@Carlos

12 May 2025 11:55Last reply 12 May 2025 12:26

Hi I have rrms but latley I seem to be having more episides than usual , I am pretty used with tingling down one leg and regular pain in my sides which I believe is somthing called the ms hug which is reall annoying, but latley I have been experiencing servere pain in my lower jaw and teeth which happen when I touch a certain part of my bottom lip, even licking my lip can set it of, a few days ago it got scary when I was unable to talk due to the pain when simply trying to speak, I am currently on copaxone, this is the first time I have spoke about my ms on a forum apart from speaking to my long suffering partner ( who has to endure my whinging ) I just would like to know if anyone else has this sort of pain and any advice on how to deal with it . Thanks David

First posted on the Shift.ms app

@Hough1981

4 May 2025 09:19Last reply 4 May 2025 18:52

Copaxone side effects

Morning all. I was using Copaxone for many years, but stopped around three years ago due to experiencing awful side effects. I used to inject myself in privacy when nobody was at home. One occasion I injected into my right thigh, then experienced what can only be described as a feeling that I was h...

First posted on the Shift.ms app

@stevethomo

1 May 2025 08:23Last reply 1 May 2025 08:34

My journey, how many share these experiences?

I am sharing my personal MS journey this MS Awareness Week, because I want other people suffering with this disease to know that they’re not alone in their experiences. There is plenty of hope, laughter and joy to be found alongside MS, and I hope that through sharing my story, I can help others fin...

London, United Kingdom

@carmenrivera

1 May 2025 02:12 EditedLast reply 1 May 2025 17:25

JCV

Hello everyone! So im not sure but does everyone gets all this like 8 or idk how many bloodtests done before picking their treatments? Because I did just to make sure of I was good for whichever I picked I was ok for and Today I got a result positive for Jcv ? What is this ? Is this related to MS An...

First posted on the Shift.ms app

@puhgena90

30 Apr 2025 20:07Last reply 1 May 2025 04:35

Newly diagnosed in Cardiff

Hi all 👋 I was diagnosed at the end of January this year, 2 weeks after my 35th birthday. Was wondering if there was anyone else in a similar position in/or near to Cardiff, Wales. I'm due to start treatment within the next few weeks and my specialist is optimistic 😊 One thing I have mentioned ...

First posted on the Shift.ms app

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