Day before yesterday magic happened,after 3years I've reached 12500 steps dayli walk.
At the end was extremely hard, but I did it with PPMS, my Long distance walk reached it's peak.
Hope that superpower will stay with me 😉
I am between a rock and a hard place at present, lets says that things have not been easy and I ended up doing some stupid things (harm - I am safe), but with all that is going on my counsellor said I'm not surprised with a diagnosis with PTSD, I had to tell I wasn't. That's now leading to all sorts...
Everyone close to me has recently had a cold/flu symptoms. I'm on ocrevus and you can probably guess....I've come down with it. Today is the worst I've felt and all I've done is sleep the day away. I'm then told to get over myself, it's flu.....we've all had it and that they are watching me waste aw...
Went in for my infusion of Ocrevus on Friday, ended up fainting when the premeds went in and having a seizure! Doctors said it was down to stress as they struggled to cannulate me & not due to what I was being given. I Was kept in overnight with the aim of doing my infusion today but I came home yes...
Hi I have been on this drug for around seven years; I still do not endure the flu-like side affects and other symptoms after taking the bi-weekly drug. Despite its efficacy being relatively low I have been stable so who knows whether it is helping. My neuro has approved for me to take a two month to...
Hope you're all well and thinking of you all.
Has anyone ever had a Neuropsychology assessment? I am having one at the end of the month at my hospital and quite nervous for it. Its 3 hours long! Does anyone know what it is and what will happen? Thank you
After 8 months of scans, lumbar puncture and tests I was finally diagnosed with Tumefactive MS last month.
To be honest I was relieved to be diagnosed as knowing something was wrong but not knowing what was very scary. In hindsight all the symptoms were there but it wasn’t until I ended up in hospit...
So it’s come to a crashing halt. After buying a house together last year and a 6 month rough patch it has ended. Together 7 years like 6 months after I was diagnosed with ms. So now I find myself in what seems like a nightmare. The prospect of leaving and renting a room in a house share in my late 3...
I I can’t handle it anymore. My little sister it with this guy that literally hates me and wants to live in our moms house and wants to take control of it and it’s it’s just stressing me out and I’ve been feeling like if they move in I’ll end up have a relapse and no one seems to care if I do. I’m s...
Hello everyone. I feel like the 3 “MS CENTERS” I’ve been too always ended up being mostly medication/infusion monitoring. When I read about a center and all they have to offer they don’t really have it all and/or some kind of road block occurs. Like, waiting list for wellness program.
Problem is as...