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@cooksey32

31 May 2025 02:52Last reply 31 May 2025 10:26

Hi all. I’m new to this app. I’m 26 years old and have been diagnosed since the age of 18. My MS nurse has said I have one of the most aggressive cases she’s ever seen, which doesn’t bother me personally, I live life as “it is what it is” what I’m wondering is does anyone have plans for future life when it gets worse? For me my plan is when I feel I can’t live a good quality of life I will happily just end my life. I hope it doesn’t get to that point but I am prepared for it. What’s everyone else’s plans? .

Middlesbrough, United Kingdom

First posted on the Shift.ms app

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@Carlos

12 May 2025 11:55Last reply 12 May 2025 12:26

Hi I have rrms but latley I seem to be having more episides than usual , I am pretty used with tingling down one leg and regular pain in my sides which I believe is somthing called the ms hug which is reall annoying, but latley I have been experiencing servere pain in my lower jaw and teeth which happen when I touch a certain part of my bottom lip, even licking my lip can set it of, a few days ago it got scary when I was unable to talk due to the pain when simply trying to speak, I am currently on copaxone, this is the first time I have spoke about my ms on a forum apart from speaking to my long suffering partner ( who has to endure my whinging ) I just would like to know if anyone else has this sort of pain and any advice on how to deal with it . Thanks David

First posted on the Shift.ms app

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@prettysunsetsky

7 Mar 2025 17:23 EditedLast reply 9 May 2025 13:18

Hi, my name is Grace I am 19yrs old, Born and Raised in Philly. I never really knew much about MS though I do have 2 family members who have it. I have been experiencing numbness, tingling, sciatica, fatigue, double vision, itching and tingling sensation in my skin, tremors, weakness in my arms and legs, balance issues, etc… I went to see my Primary and she said it could be MS, though I do have some other things going on. She ordered a MRI for me but they didn’t really find anything. I went to see a Neurologist and he looked over my scans and suggested I get a another MRI just to be sure and this time lthey are looking at the whole spine. I sometimes I feel like I may not be taken seriously because of my age. But hopefully I can figure out what’s going on with me because this whole process has been tiring and frustrating. But the MRI is at the end of the month so I guess we’ll see.

First posted on the Shift.ms app

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@Katie_Harrison

14 Nov 2022 16:47Last reply 3 May 2025 03:51

Just Started Copaxone - When Will The Stinging End?

I had my first injection of Copaxone on Friday morning and I was unprepared for the stinging that followed which lasted over an hour. I had my second one today and again the stinging was unbearable. Has anyone been on Copaxone injections? Did you have this experience? If so, how did you combat it?...

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@SmileyDrag0n

16 Apr 2025 16:07Last reply 16 Apr 2025 21:44

Has anyone had similar symptoms to MS but ended up being diagnosed with something else? If so what were you diagnosed with?

I recently had 4 MRIs due to being under suspicion of having MS but they all came clean. I'm glad it's not MS but I'm frustrated because it means I'm at square one again. Has anyone else had a similar experience?

First posted on the Shift.ms app

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@hick004

15 Apr 2025 03:36 EditedLast reply 15 Apr 2025 23:02

Hey everyone, so I was diagnosed 3 months ago. Saw my neurologist one month ago and they couldn't really tell me which type of MS I have, since the symptoms come and go they said remitting. So I was scheduled for my first infusion today but I didn't go. The last time I let them give me meds I ended up having Stephen Johnson syndrome

First posted on the Shift.ms app

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@Rusty1211

6 Apr 2025 20:25

I know that MS is different for each indhividual but just want those just diagnosed to know I went almost 25 years trying to figure out what was wrong with me. Don’t go off the deep end worrying about what if? Work with your Doctor to find a treatment that is best for YOU. Remember you are your own best advocate! Im 68 now and still fight it every day

First posted on the Shift.ms app

@MichaelO

27 Mar 2025 02:58Last reply 27 Mar 2025 04:04

The endless issues

Totally agree..... I want to share my personal thoughts 💭 "Curse" my long term memories are really good.... It's like in my head it happen yesterday... My "Close Friends" I can remember going to high school with them like it was yesterday wont talk to me anymore...Other close friends who had to ...

First posted on the Shift.ms app

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@Shani6587

23 Mar 2025 22:59Last reply 23 Mar 2025 23:02

End of life care

Hi guys I know this isn't something that we like to think about but due to a couple of losses this year and a cancer scare involving my husband. I depend on my husband for care something he has always been more than happy to do. However what happens when/if he dies? I have no money to fund my care a...

First posted on the Shift.ms app

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@BrianKidd1980

15 Mar 2025 04:04Last reply 16 Mar 2025 12:17

How all y’all peep’s living we all living the dream right one day will wake up yea this ms shit is for the birds changed my whole life I used to be a go getter some days I don’t even wanna move was diagnosed back in 2017 they also said I’ve had it for a few years prior Eason three different meds yeah just sucks anymore man my life is just totally ruined not really ruined but you guys know it’s just a lot of things that we can’t do that. We wanna do. I got a three year-old kid little boy two daughters. I don’t see them. Their mother left me. I was in a freak accident. I got an involuntary manslaughter charge. I worked at a metal shop in. King of Prussia Pennsylvania called Zico and we are playing on the job and the guy got hit him a piece of metal and went right through his head and he died two days later man I kinda messed me up to. I got locked up and I was married. She left me because of the incident she didn’t want me jeopardizing her career so she ended it when I was in jail for the incident. I’ve been in quite a few accidents drinking a drive and you know I mean, I got a metal plate in my face. I got tore my ACLMCL never been sick that day in my life before man it’s crazy now all of a sudden I was in rehab. I stopped doing cocaine back in 2017 when I got diagnosed and one day I went to group and they said I didn’t look right so I had to go get checked out I went and got checked out and they told me it was Lyme disease at first and then they sent me to Christiana Delaware and that’s when I was in there for about three weeks. They finally figured out it was MS they said I’ve had a couple years prior to make diagnosed. It changed my whole life man I don’t even wanna do anything and get up. Just sit here in my ass. It’s wild something like that can change you but the key is just gotta keep fighting man keep pushing it just don’t kill yourself in the process. Can’t wait to talk to you guys. Hope everybody has a good night.

Laurel, United States

First posted on the Shift.ms app

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