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Three days ago I had the honour of being a member of a small team of counsellors who supported participants at a Kairos Blanket Exercise. This exercise is an emotional, eye-opening look at the relationship and history between Canada’s Indigenous People and Canadian immigrants for the last 300 years....

https://youtu.be/iZOrYcdkjoA Post yours and we’ll dilute the drepressing stuff until Monday

I have M.S. and Fibromyalgia... Pain is neva ending.. just have dif levels of pain.. You have the pain that's nagging always.. then the pain that BUSTS THE DOOR.. saying..OOH U THOUGHT I WAS GONE... knocked u off your feet and u want a cool.. quiet / silent spot wit no scent... NO MOVEMENT...

I had my first injection of Copaxone on Friday morning and I was unprepared for the stinging that followed which lasted over an hour. I had my second one today and again the stinging was unbearable. Has anyone been on Copaxone injections? Did you have this experience? If so, how did you combat it?...

Hi guys! I’m wondering where everyone’s thoughts are on continuing with your anti-CD20 meds given the world just kind of pretending like Covid no longer exists at this point. Do you plan to continue and just roll the dice with Covid? Switch to another medication? Lock yourself inside your house for ...

So had my appointment with my neurologist to discuss a few things especially how my journey so far on Ocrelizumab so far has been. He said it’s seems that the 3 lesions on my brain have shrunk and they are stable. He is also extremely happy with how the ocrelizumab (infusions) are working. There ...

I am hopeful to the rest of this year being very calm and easy going for everyone ! Whether you are new to this journey or years in !! Feel freee to message me let’s chat !

Rock bottom has called me once again and here I am. Mentally I feel done. Physically I feel done. I don’t know what else can help me right now. Suffering from so many more symptoms will of MS. It’s 1 year since my first ever relapse and official diagnosis. I had an MRI over 5 months ago…still no ...

To my American #EndMS #HelpFindACure family, yes I'm from Canada but unlike @Bernie sanders will have you believe that the healthcare system in Canada is really good. I barely eat anything literally one meal every 2-3 days a week. There are medications that I can't afford. My MS is almost at the sta...

After a couple of years, working good, I have had an Infection that caused a total loss of White bloodcells. Recovered good but kept on Mabthera treatment, A year later I got some arrhythmia. Ended Mabthera after that and will change to Cladribine

Hi guys I was advised by my MS advisor to join this app today because I wanted to share my endless trauma regarding my RRMS. I was diagnosed last year with RRMS - it felt like an intensive rollercoaster ride that wouldn’t end and I’m finding it difficult to accept my diagnosis. I was only 21 when...

Hello again Just want to rant again but don't actually have the energy. Latest from my employers Insurers is they have over turned their original declinature and accepted the claim and backdated payments to my employers , all sounds good. Problem is they say as an Independent medical physician ...

Hi everyone. I have had MS for 4.5 years, received first round of Lemtrada in May 2016. I have gotten much, much worse since Lemtrada. Coincidence? I stopped Aubagio to go on Lemtrada. Does anyone think that maybe I have gotten worse because of stopping Aubagio? I can barely walk and my balance...

I'm struggling at the moment. I broke my ankle in a fall in April 2019, and it's never fully healed up. After the ligament damage was missed and I was wrongly discharged initially, I was referred back for surgery in February 2020, only to watch the country go into lockdown and all surgeries postpone...

Hey, I’m new to the MS community, I was only recently diagnosed (2 weeks ago) so I don’t know much about ms. I have endometriosis and experience daily pain however now I’m a little confused as to what is ms pain and what is endo pain. Does anyone else have both conditions and could perhaps shed some...

Just wondering

Just wondering how long does it take to end up in a wheelchair if you have primary progressive MS Or is it just different for every person

Just got email today that im jc positive. Typical! I want to shout out f u but Im tired. Stuff on my mind eg Im wondering how to tell my boss im leaving for most of the day for an infusion. I dont want to tell work about my diagnosis. Ill be offline for most of one day every month for tysabri, they'...

come join is on Zoom at 11 am (uk time) where we don't just talk MS /Users/craigwatson/Desktop/Screenshot 2020-06-14 at 09.22.45.png

Hi all, While I'm trying to stay active by exercise/yoga, I do fine strength training (both upper and lower body workouts). But do poorly in cardio/endurance activities which I really need. Walking for more than 25-30 minutes is a challenge. Toward the end, I find it difficult to catch myself with...