Shift.ms

20 Sep 2022 01:20 Edited

MS with Epilepsy and panic attacks

Okay I'm just going to put it all out there. I've had my RRMS long enough to say I'm rolling with it the best I can. Then the fibromyalgia and chronic migraines that I had before that I'm rolling with. Long list of other problems, still rolling. Then the Epilepsy hit me. No more rolling. My first gr...

@WayneH143

23 Oct 2020 15:33 EditedLast reply 24 Oct 2020 23:01

MS means Must Start!

Hello all! My name is Wayne, I was Dx'ed June 1987. I've survived 71 trips around the sun. I've been using canes, walking sticks, rollators, (current) and for long excursions an electric scooter. I love my scooter, a Glion Snap n go, I'm looking forward to getting a large capacity battery that will ...

New York, United States

2

@Shannon_Devlaminck

20 Jun 2020 14:55Last reply 20 Jun 2020 21:01

Well it’s been a minute.

Hey all, Hope everyone is well. Been not doing to bad here the last little while. Excluding today. But the last I don’t know 5 weeks or so now been feeling pretty good. Been getting stuff done outside that hasn’t been able to get done in the last 3 years. So was a lot of work. Also had to move ...

4

@m05us13

11 Apr 2016 18:49Last reply 14 Apr 2016 18:47

Fear

Anybody else having this problem? I am disabled. I am afraid of starting anything. There's the painful lack of attention span, fear of failure. I used to be pretty brave and fearless. Back in the day I entered pageants, had plastic surgery to get rid of fat on the sides of my knees, also entered a ...

4

@lailai93

13 May 2025 18:42Last reply 14 May 2025 14:14

Can your balance come back to normal? I can walk a lot better but when I come to stop to stand I feel like I’m swaying forward and backwards

First posted on the Shift.ms app

24

@Djfergie

11 Jan 2025 14:30Last reply 11 Jan 2025 15:00

Feeling like falling backwards

Hi, Recently I have had a strange feeling that I am going to fall straight backwards when walking. I have only had it twice but it's a strange one. Anyone experienced this?

First posted on the Shift.ms app

1

@YKT1994

4 Feb 2023 23:38Last reply 5 Feb 2023 22:56

Falling backwards!

So sorry for being so quiet on here! I’ve been falling more often, causing damage to my ego!! I actually fell in the service station toilets, wacking my head and elbow!! Luckily a stranger helped me get up, nice to know there are still nice people in the world willing to help!

3

@deano

20 Feb 2025 09:37Last reply 20 Feb 2025 11:23

DMT Treatment Bloods , Labs results Liver highlighted

Checked hospital online portal bloods & Alanine aminotransferase level (liver) results high Thought I would check in with MS nurse in London and they have removed e-mail group to contact them I suspect they would request another blood test next month and monitor - if I could contact them ( I...

London, United Kingdom

2

@JonMWraight

16 May 2024 19:47Last reply 6 Jun 2024 08:28

Help pages

Anyone know of any instagram pages that are good to follow with MS? 8 years in, just turned 29 struggling a bit lately. Maybe its because I’m 30 in a year and feel like I’m moving backwards instead of forwards. Any other 29 year olds or of similar ages out there feeling the same?

First posted on the Shift.ms app

5

@Gijoe

22 Dec 2023 19:04 EditedLast reply 22 Dec 2023 23:19

Dealing with in laws this weekend

My mother and father in law have their own share of chronic health issues so they empathize somewhat with what I have, yet they haven’t seen me since my diagnosis and there will be other relatives there that won’t understand. We live several hours away and we’ll be going to visit them and all my h...

Wilmington, United States

3

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