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(There are no apologies for the colourful language, it’s my story, I tell it my way) When you get diagnosed, not only does the bottom, but the top & all four sides fall out of your world. You’re sat there with this seeming 'diagnosis of death' hanging over your head, feeling helpless. So what c...

Hey everyone, I’m new here. I was recently diagnosed with RRMS, and tomorrow I’ll find out which medication I’ll be starting most likely Ponvory. It’s been a lot to process, and honestly, I’m feeling a mix of nervous and hopeful. I’d love to hear from anyone who’s been through this, especially if yo...

Hi m name is Bub. I was diagnosed back in august of 2020. Been on tysabri for a year and a few months. Tysabri was good to me but had to switch to ocrevus according to my neurologist due to JCV antibodies detection . I just received my first ocrevus infusion earlier today. Only side effects were ru...

Making lions mane mushroom burger for the first time . Have a appointment for the neurologist at 1 o’clock tomorrow. Hope I get good news.

Hello all, What a wonderful, supportive and informative community this is! I know a couple of people who have MS, but my foray here is really to undertake research for my next novel. My protagonist suffers from Primary Progressive MS, and I would like to understand what she would have been feel...

Hello, my name is Trisha. I am 43 years old and was just diagnosed with MS last July. I started Ocuvers( I think that is the spelling) last September after I had two 5 day hospital stays for flares. Well this year had been going pretty smooth since starting the infusion. Then in February I lost my g...

I had a terrible time getting a diagnose. First symptoms 2009 with numbness and tingling in hand. 2011 blind spot and visual disturbance. Told by doctor to go to optics ions. Waited 11 months for scan and told a white mark on scan but it was on the film, nothing to worry about. 2012 carpal tunnel op...

Welcome to my first ever blog post. My posts will highlight controlling and living with Multiple Sclerosis in a positive way the ups and downs, and how life has changed since my prognosis in line with groundbreaking treatments and research! So …..about me??? Well here goes….. Hi my name is Pren...

Nine months ago, my life changed when I was diagnosed with MS in 2023. The journey since has been nothing short of transformative—physically, mentally, and emotionally. I’ve faced challenges I never imagined: enduring relentless relapses, the disconnection of not being able to feel my hands, feet, o...

I was born into a loving family, but life wasn’t always easy. Both of my parents passed away when I was young, leaving me and my brother under the care of my uncle, my father’s brother. In their home, I grew up alongside my cousins, who were my age, and together, we faced the trials of life...